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 News archive for 1999

Dear friends!
When I learned how much money was collected during this time of preparation for Christmas and New Year, I was amazed to the depth of my soul!
Of course it is my responsibility to be up to date on the book-keeping and learn where and to what purpose the money is spent. So, it would seem, I should have long ago become used to the numbers in the money that is collected. But this number - the number that specifies the sum collected due to your support for the children who undergo treatment in the Republican Children's Hospital - it is simply astonishing. Because I very much understand that to find this sum for you was very difficult. Behind this money there are not only good intentions, there is real love and compassion and participation in the lives of the children. Mainly we know you, dear friends, only by your first names, and sometimes we do not know your names at all. But along with that, we feel, we very much feel your participation in our work, in our lives and, what is most important, in the lives of these children. I do not want to speak loud words, although it may be at some times necessary. And it is really because of that that I now do want to say one or two loud phrases. That which you do, it is the very rebuilidng of the Church, it is the rebuilding of society, it is indeed that only thing that is today necessary for Russia - because Russia now needs for us all to work together, to support each other, to find resources for all different sorts of undertakings. And that which is done for the children is always done for the future generations. And even not only in the sense that, having been cured, these children will be able to work. No, in a different, much more important sense - in that the young people today are already incomparably kinder than the people of my and elder generations - and Internet is used primarily by young people. I understand very well that most money was donated by people who are not even fourty.
Dear friends!
I would like to hug and congradulate with Christmas and New year each and every one of you separately, but, understanding that is is impossible, I would like to tell some personal words to all of you. Thank you! I am proud of this virtual friendship with you, and I hope that in the future we all will be useful to each other, that every one of us will be able to do something really important, needed and meaningful not only for self but for each other.
Priest Georgiy Chistyakov.

28.12.99 Jeff and Natalia, with their American friends, collected 11,165 USD for the pediatric hospital. Of this sum, they give 7,000 USD for the medicine needed for bone marrow transplant for Pasha Khilko; and 4,165 USD for bying the infusion pump for dosage of medicine.
Victor gave 200 USD for medicine for the kids in general haematology ward.
Pyotr brought 100 USD for medicine.

26.12.99 Employees of "DHL International" gathered 15,700 rubles for toys. We are grateful to everyone who donated money for the New Year presents. Thank you for this help; if not for the presents, the kids' life would have been a lot more dull. Quite often, joy — and you gave this joy to the kids — leads to the change in the course of a disease!

25.12.99 25 December 1999. Mother of Kostya Mitko, the boy in the immunology ward, wrote a poem for everyone who helps children:

In this poor and tormented country,
Which is angry and struggling and sick,
Some people are lending a helping hand,
Some people have generous souls!

Thank you, thank you, thank you,
We are saying this loud and clear.
The kids born anew through your hope and your love
Will never forget your help.

Pavel bought for the immunology ward a perfusor and additional materials for it, totalling a sum of 3,500 USD. It is an electronic device for uninterrupted, high-presicion dosage of medicine.
The money sent from Canada was used by the immunology ward to buy 4 boxes of Orungal, Rovomicine antibiotic, 160 catheters.
The company "Medial-M" gave to the immunology ward Christmas decorations, videocassettes with movies and candy sets.
Sergei donated 5,000 USD for the New Year holiday in the hospital; and 4,000 USD for 15-year-old Marifat Khamdamova from the general haematology ward. The girl is diagnosed with Falconi's anaemia; it is inborn aplastic anaemia; the only cure is the transplantation of bone marrow. The operation was radical, Marifat was cured, but, unfortunately, a life-threatening complication has developed — the reaction of the transplant against the host. Now the doctors are giving her a unique treatment, the girl's condition is much better, but this treatment requires a vast sum of money — 4,500 USD. Thanks to Sergei, this sum is almost collected.

24.12.99 Olga transferred 1,500 rubles for medication for the children.

23.12.99 Dear friends! We are grateful to all who responded to our request to gather New Year presents for the kids. Danila gave 2,000 USD for presents, Sabina gave many wonderful toys, Irina gave great presents for the smallest patients, the employees of a beauty parlor "Natur-Niko" gave 200 rubles for presents. If someone wants to join them and bring presents, we would be very grateful. After all, Orthodox Christmas closely follows the New Year celebration.

20.12.99 On 21 December 1999 the project "HELP SAVE CHILDREN" turns one year. We would like to share with you the results of our work, to tell you what we have achieved.
During the year, a system was set up — a system which helps sick children to hope for the better. We do not know whether it is much or little, but we were trying to do everything that depended on us.
During the last year, the site http://deti.msk.ru helped us collect over 130,000 USD and 170,000 rubles. It allowed us to pay for the treatment of 15 kids. The search for the money to treaat 8 more kids continues: Our plea "Help us save children" drew responses from hundreds of individuals and dozens of companies all around the world. Journalists and politicians, students and schoolchildren, businessmen and officials, people of different social status, well-being and creed united with the only aim — to save children. Their efforts proved to be a success.
Our plea "We understand that to find such vast money for the cure is very difficult and virtually impossible for one individual, but if each of us inputs a small part of what is necessary, we might make it" — this plea turned out to be efficient!
Only together did we manage to solve difficult and at first sight unsolvable problems. We very much hope that we shall stay together in the coming year. Once again, with all heart — THANK YOU SO MUCH!

16.12.99 Danila bought for the general haematology ward 2 washing-machines with driers. It is a very important purchase, since children with blood diseases must stay in conditions of utmost purity.

15.12.99 Our acccount in RLE network received 50000 banner displays from the account #7104.

9.12.99 Katya transferred 7201 banner displays to our RLE network account.

5.12.99 Dear friends! Very soon on December 21 we celebrate the first anniversary of our site. We have a wonderful initiative to get all people who are involved in the project together and have celebrate tis date. All people helping us writers, translators, journalists and of course you our sponsors we invite to this party We'd like to meet and get to know each other more in a warm and friendly atmosphere. If you support this idea, please write to Elena Muliarova. Suggestions are welcome.

3.12.99 On today's site the chart with all data on sponsorship money transferred to charity fund account for treatment of children was published. You can look at it here on the page.

2.12.99 December 2. Two friends, the two Kirills organized a real festival for children of the Ward of General Hematology , Restructive Surgery and Kidney Transplantation. They bought and brought to the children Sony Play Station with a set of education and fun CD -ROM. But since A TV set in the Ward of Reconstruction Surgery was too old and did not match Sony Play Station they did not think too long and brought a new TV set!! Children were so grateful!!! Thank you very much the two Kirills!!!

25.11.99 On the 24 th of November Yulia Bessonova finally got electrically operated wheel chair produced by the German company "Meyra" . Money for this wheel chair was collected back in summer time by our friend in America Elena and her friends, but wheel chairs to the store of " Meyra" company were delivered only recently. Most probably for patience and long waiting the company presented Julia and Traumotology Ward of the All Russia Children Hospital several other items.

22.11.99 Dear Friends!
The favorite children's holiday New Year is coming soon. Unfortunately some of our little patients will have to see New Year's Eve in the hospital. Only by our joint efforts we could make this holiday more festival and cheerful for those who had to stay in the hospital. We have a request to everybody to help us with toys for them. We have already started to collect New Year presents for kids and we sincerely hope and count on doing it together with you. Please, realize that only seriously sick children have to stay in the hospital on holidays , so for health reasons they need clean and preferably brand new toys. It goes without saying that kids like bright and amusing toys. If this message is read by farther Frost and Snegurochka, be sure that children will be happy to see you.

20.11.99 Russian Orthodox Parish in Toronto collected and transferred 485$ for the department of clinical immunology of All Russian Children Hospital. The Lonbergs' family from far Holland, from Amsterdam donated 4980$ for all children represented on the site.

19.11.99 After the course of chemical therapy Katya Savelieva reached the remission in her principal disease. Soon she will go through typification , so that the doctor's get to know whether marrow of Katya' s brother is suitable for transplantation. If the marrow of Katya's brother matches then doctor's will go for operation. If the marrow does not match Katya will have auto immune marrow transplantation. Doctors estimate Katya's chances as relatively high.
Pasha Khilko had the second course of chemical therapy. The boy went through the therapy well and is feels fine. He will be given one or two more courses of chemical therapy , then doctors will consider the question of his possible operation that is auto immune marrow transplantation. Doctors are seeing his chances as relatively high.

22.10.99 On Sunday, 17 October our good friend Danila has organized a wonderful holiday! Sasha the clown came and, as a fairy-tale magician, brought five boxes of ice-cream. The clown has visited three wards - general haematology, oncology and traumatology. It was Sasha's first experience in front of such audience, but he made it quite neatly and it was great fun for kids and their parents. He was assisted by Chizhik the dog, who earned his share of applause. Sasha said he would now come to the hospital every week, with Chizhik and the ice-cream. Many thanks to Danila and Sasha for this holiday!
Photo: children, Sasha the clown and Chizhik the dog.

21.10.99 We are very grateful to our friends from the Russian foundation of Assistance, because they are never indifferent to our needs, they find people and means to support the children. The Russian foundation of Assistance helps these chilren a lot: Vova Leskov, Tamara Khutiyeva, Katya Savelyeva, Serezha Panchenko and many other chilren.
We want to say a big Thank You to them!

11.10.99 Pavel bought tickets to the circus for children from the genetics ward.

30.09.99 Irina, having visited the hospital church, displayed great compassion for our problems. She gave 11,000 rubles for the immunology ward. We want to thank her very much.

19.09.99 "Alita" trade house made a present to the general haematology ward — two computers! We want to thank them so much, now the kids may play and learn. "Alita" also gave a personal computer to Serezha Panchenko. The boy was dreaming of one for so long that he could not even believe it was true. "This can't be! - he said. - This is not for me". We are deeply grateful to the company: it helped Serezha's dream come true.

18.09.99 Denis Andriyenko was at home for a month. Yesterday he came back to Moscow. Doctors consider that he responded to the treatment: his analyses are good, no trombocytes are being transferred, he feels fine. Of course, he will have to undergo treatment for a long time and to take medicine for at least two years, but the doctors hope his treatment would be eventually successfully completed. Denis is now going to his hometown Maikop; in December he would come for control.

9.09.99 We would like to tell you about the health status of kids you've been taking care of. Kristina Kupreyeva feels very well; bone marrow had been transplanted; doctors say the transplant has fully rooted, the girl experiences complete remission, there are no symptoms of her main disease (aplastic anaemia). Sasha Shevchenko has also undergone such operation; however, he was operated during an acute phase of leucosis, so experiences certain problems. He is now in the early post-transplantation period, and his prognosis lacks certainty. Still, he feels quite well, and doctors think that he has good chances to recover.

3.09.99 Dmitry gave to the kidney transplantation ward "Indesit" washing machine. Elizaveta bought 300 USD worth of Orungal and Citozar for the wards of general haematology and oncohaematology and brought toys for orphanage children who are undergoing treatment in the hospital.

1.09.99 Dear friends! We would like to ask you for some favors. You might be able to help us. The kids we're taking care of need more than just medicine and drugs. They have to stay in the hospital for months and even years, they have to learn, to develop their skills, to think about future profession. A computer could be a wonderful way to provide the kids with fun and learning tools. Unfortunately, the hospital cannot provide a personal computer for every kid, though it has a computer class which is open for all patients. Our appeal addresses to those who upgrade their computers. If you do not want or cannot sell your old machines, give them to our children. We shall take them from you to the hospital.
The hospital has several wards which require special sterile conditions: the ward of general haematology, oncohaematology, oncology, bone marrow transplantation. All these wards badly need soft washable furniture, like couches and arm-chairs for the halls and playing rooms made of artificial leather or other washable materials. Perhaps you have such furniture in your home or office and you are planning to change it. We would be very grateful if you could give the old furniture to the hospital.
More good news:
The people whom we have known only through the Internet, sponsors of our children, become our friends "in real life" too! Four people from Switzerland, having come to Moscow, visited the oncology ward, brought many presents to our children, visited Sasha Shevchenko whom they had helped before. Our links to the world ceases to be purely financial, modifies into friendship ties. This is a great source of joy for us!

20.08.99 Dear friends, we want you to share our grief. On August 19, at 3 am in the intensive care unit of Russian Pediatric Clinical Hospital Olya Kudashkina has passed. Olya had spent a half of her short life in the hospital; she lived there, played there, got to know the world. Olya was practically incapable of walking, playing outdoors, running, doing things all kids adore. In spite of these tragic circumstances, the girl loved life with a passion, she used to be joyful all the time. She loved people, and everyone who knew her got to like her immediately. Olya had a real passion for life, she struggled for her life up to the very last minute. Unfortunately, the disease had won.
We would like to say a few words about those who was with Olya in the hospital. Olya's mother and grandmother believed that the girl would live; they constantly struggled with despair and hopelessness. Olya's mother, Natasha, lived in the hospital with the girl, not leaving the ward, even though she was expecting a child at the time. Olya's little sister was born the exact day and hour of Olya's death. We want to say a huge Thank you to all those who was supporting Olya and her family during these months. To those who gave money to buy medicine and food for Olya, for those who gave blood to her. Please do not think you have wasted your time and efforts. We are sure that good deeds do change something for the better in this world. Maybe the sense of Olya's short life was to make people feel kind and necessary. Many people from all places united in an effort to save Olya Kudashkina. Please, do not forget Olya.

15.08.99 Unexpectedly for everyone, a new grief has striken: Olya Kudashkina suffered a brain haemorrage. She is now in intensive care in a very serious condition. We are extremely worried about her life, but we still hope for the better. The girl still needs trombocyte donors (any blood group). Alexander transferred his fee, 435 rubles, for Olya.

7.08.99 Olya Kudashkina feels much better. She relocated with her parents to the apartment rent with money given by Marina. Olya still gets transfusions of trombocytes. The treatment should be continued until transplantation of bone marrow from the future sister is possible. During that time she has to live in Moscow, since such operation cannot be carried out in her native town. So the family badly needs money so they could rent an apartment for 2 to 3 months.

7.08.99 Lena from America and her friends collected 2800 USD for Yulya Bessonova! We shall order a "Derby" wheelchair at the "Maira" company very soon; we expect it to be delivered to Russia within 10 weeks. Yulya's mother sends her heartfelt thanks to all who helped collect money. With the wheelchair, Yulya, who spent her last 10 years lying, would be able to learn, to live an active life - go out, to to theaters and museums, visit her friends at the hospital.

17.07.99 After "Vzglyad" program was aired on July 12, more than 50 people came to the hospital, willing to volunteer their blood for trombocytes for children (any blood group is okay). And this is only the beginning!

5.07.99 Olya Kudashkina's condition was absolutely hopeless, she did not respond to three courses of specialized treatment, besides, she developed a fatal complication - lung aspergellesis. She was operated, a portion of a lung was removed, but Olya's condition was still extremely grave - no leucocytes, no haemoglobin. In spite of despair, the treatment continued. Now Olya feels much better, she eats again, walks, draws, plays with toys. But the best news is her analyses. Her leucocytes are at 1.3! There is hope that bone marrow transplantation might be possible. Olya's mother is expecting a baby, and during the childbirth umbilical cord stem cells shall be taken. If the baby would be suitable regarding tissue antigens, bone marrow transplantation would become possible. We all hope that it would be so.

26.06.99 Denis Andriyenko and Vova Leskov began to undergo Neupogene treatment. The results are very good, according to doctors, both boys show signs of improvement. The problem is, they are running out of Neupogene. Abruptly ceasing the treatment now might cause grave troubles. We are asking all good people to help these kids and doctors continue the treatment.

6.06.99 Olya's condition has slightly deteriorated, so the doctors decided to suspend intensive treatment. The collection of money for Olya's expensive medicine is also suspended, since the doctors have everything that is necessary for her in her present condition.

31.05.99 Vanya Scherbenev is going to be released from hospital! He will attend physicians twice a week, and then, should everything be all right, go back home.

30.05.99 Finnish pharmaceutical company "Nikomed" in anticipation of Day of Protection of Children donates to the Republican Pediatric Hospital 1000 flasks of liquid vitamins "Sana-Sol". Many thanks for helping our children.

28.05.99 Web site http://www.sos.ru/ is launched (for everyone in need of help and everyone who can help).

18.05.99 In the near time SOS.RU project will be launched (for everyone in need of help and all who can help). For the time being, we invite you to take part in the discussion on this project in the news conference http://www.sos.ru/

10.05.99 At the moment, all problems related to blood availability for Frantishka Pavlovskaya have been resolved!

9.05.99 Tanya Sholokhova and Kristina Kupreyeva were operated for bone marrow transplantation. The operations were successful, but it is too early to speak of results. The doctors say that Vanya Scherbenev's bone marrow has completely adapted after the transplantation operation of two months ago!

21.03.99 The transplantation of bone marrow was performed in Russia on children with immune deficiencies were for the first time. At the moment, it can be ascertained that the operation was successful for Vanya Shcherbenev and Alesha Pavlov , and the donor bone marrow has taken. The children feel normal, they are cheerful, active, gaining weight, have an excellent appetite. However, further analyses are required to evaluate the transplantation efficiency. New information will be available, at least, in two weeks, while surgery results may remain unclear up to 120 days.

16.03.99 The money, required to purchase drugs for Marianna's treatment, has been collected. Her health improved significantly, and the girl is released home for outpatient therapy.

4.03.99 Natal’ya has donated $200 for to the Hematology Department. Sterile masks will be purchased with this money.

17.02.99 Vanya Shcherbenev and Alesha Pavlov have undergone a bone marrow transplantationation. The surgery results will be clear in about three weeks.

1.02.99 The letter from Sergey Krzhizhanovsky: «At the moment, Borya is in Kiev. He will go to Germany on February 8. We were under physicians' observation in the Kiev Hematology Clinic. Many thanks to the physicians for support and especially to Professor Drozdova and her assistant Sergey! I’ve got 1500 grivna (equivalent of $420) as a clearing transaction from Kalibrist Company (Kiev). Many thanks!»

26.01.99 Konstantin from USA donated $200 to the Hematology Department. The money was spent for on purchasing catheters, which allowed to minimize the number of punctures of children’s veins.

23.01.99 Dear Gentlemen:
We would like to express our gratitude for your letters and offers of help. Unfortunately, help from abroad was a very irregular occurenceasion, and every time we looked for a special way of receiving the money offered. Now we get offers more often, and we try to find a way how to receive your money without unduly high taxes. Various options are under consideration, and we hope that the problem will be solved in the nearest future. On behalf of the charity group after Father Alexander Men’, we thank all of you.

21.01.99 The physicians and parents, related to the General Hematology Department, thank the staff of the Moscow News newspaper for 5,600 syringes of a 5, 10 or 20 ml volume, which were purchased for the entire department. This will last for 1.5 months. Also, many thanks to Larisa, whose money was spent to purchase 700 droppers.


Many thanks to all who have responded!