|
29.12.2006 Our hospital has celebrated the New Year. All the
700-odd patients who had to spend the holidays in their hospital
wards received personal congratulations and presents from Santa
Claus.
Just as last year, there were fireworks at night.
It is funny that there was also a short winter thunderstorm right after
the pyrotechnic show was over...
We thank everybody who helped in providing the presents for so many children.
More and more people help us every year.
The celebration was shown on TV
by the NTV news channel. In several days, we will place all the photos
on our site.
Special thanks to Armen Popov and his colleagues, Elena Smirnova
and the Sozidanie (Creation) foundation, Karina Mikhailova,
the Podrugi club of the wives of Russian politicians, Ilya Polesskii
and coworkers, Kirill Zavada, OOO Infogrupp, Chicco, VideoInternational,
Bonduelle, OOO PiroClassic, Alexander, Roman, Vneshtorgbank, and
many other private persons and companies who helped in the organization
of this celebration.
And we also thank Maxim for the fireworks!
* * *
The total sum paid by the Regional Public Charity Foundation for
Seriously ill and Abandoned Children for buying medications
and consumables in December 2006 was 1,061,288.84 roubles ($40,050).
Continued...
* * *
In December, the Boomerang charity foundation paid for the radiation
therapy of the following children from the Departments of Oncohematology-16
and -27, Oncology, and Marrow Transplantation:
Vladislav Parashchenko, Anya
Klyakovkina, Dasha Kuzerina, Artem Chumakov,
and Fedor Bragin. The total cost of the treatment was
83,267 roubles ($3142).
The same foundation also provided Sulperason, Vancomycin, and Albumin
for Faina Trofimova; Ampholip for
Vitalik Sotnikov;
Rocephin, Albumin, Selemycin, and Leucovorin for Vitalik
Bestaev; and Albumin, Selemycin, Leucovorin, Vancomycin,
and Sulperason for Ramina Kostoeva. The total sum was
210,721 roubles ($7952).
We thank the Boomerang foundation for regular help and cooperation.
28.12.2006 The news from Munster about
Nastya Kuzmina.
Up to yesterday, she had all the necessary examinations and CT scans.
A joint meeting of physicians decided that radiation therapy should
be started on January 3. The course will last three or four weeks,
depending on the girl's condition during the treatment. Nastya likes
Munster very much, especially the Christmas decorations in the streets.
* * *
We thank VideoInternational Inc., which has provided hygienic goods
for patients of our hospital. Some time ago, this company bought
a lot of Johnson&Johnson diapers for our children. This time, the little
patients of all hospital departments received shampoos, soaps, creams,
baby powders, wipes, etc.
* * *
A year after the completion of treatment,
Dima Zemlyanskii came for a check-up.
Examinations showed that he is in fine condition. Dima is presently
a third-year student of the History Department of the Saratov
State University with a major in law. He is very good in all his studies.
He is also interested in foreign languages and speaks fluent English and
German. He plans to receive another education as well, this time something
related to economy. His teachers say that he is a real intellectual and
has great professional potential. It was a real pleasure to meet Dima.
He thanks everybody who helped him in overcoming his illness and
congratulates the readers of this site.
25.12.2006 We have received a letter
from the physicians and administration of the
Russian Children's Clinical Hospital. Although it was sent to our
foundation, the words of gratitude are addressed to all of you, our
friends and sponsors.
"The Administration of the RCCH, represented by Head Physician
N.N. Vaganov, the staff of the Departments of Marrow
Transplantation and Oncohematology-16 and -27, and all parents of
patients from these departments thank the Charity Foundation for
Seriously ill and Abandoned Children and personally
its president Lina Saltykova for their constant readiness to
help in the treatment, timely purchase of lacking drugs, consumables,
medical equipment, games and computers for the children. We
are grateful for this fruitful and noble cooperation, and we
value the help and the wonderful spiritual qualities of the
people working in the Foundation.
Thanks to this help, many of our patients continued the
vitally necessary treatment and received a chance for survival.
Also, the staff of the Foundation provide moral support for the
parents and the children, thus again helping them in the struggle
with grave diseases.
Thank you for your noble and selfless work!"
Head Physician of the RCCH N.N. Vaganov
Head of the Department of Marrow Transplantation E.V. Skorobogatova
Head of the Department of Oncohematology-27 N.V. Myakova
Head of the Department of Oncohematology-16 D.V. Litvinov.
24.12.2006 Head of the Department of Oncohematology-27
Natalia V. Myakova tells about the condition and treatment
of the patients of this department:
"Serezha Simonov and his
mother returned from Berlin on December 21. Although at first they
went there only for an examination, the boy also had surgery. The
residual tumor was completely removed. On December 23, they went
home to celebrate New Year. His mother has already learned to smile
again. She thanks everybody who has helped Serezha.
Nikita Semenov is in remission.
Marrow transplantation is planned for the beginning or middle of
January. The Health Department of the Novgorod region has provided
10,000 euro for marrow donor activation.
Unfortunately, Eugene Yakovlev
has had reactivation of his disease during the therapy after the
attainment of remission. The disease is aggressive and refractory
with respect to the therapy. So, unfortunately, marrow transplantation
is no longer considered in this case.
As to Artem Romanov, marrow
transplantation is postponed, because the bone marrow analysis showed
up to 20% blast cells. Treatment has been started to achieve the 3rd
remission. If this attempt is successful, we will consider the
possibility of marrow transplantation again."
Stas and Natalia, the parents of Matvei
Korzh, thank the readers of this site:
"We are grateful to everybody who helps our Matvei. After
treatment with Proleukin, which was bought thanks to your donations,
our son is feeling much better. We thank the founders of the charity
foundation. Their work enables the children to receive expensive
drugs, which give them hope and save their lives."
Katya Sh. and her new mother Olya
have recently visited our hospital. Both have a short haircut and
look very much alike. And both are so happy! They have found each
other via our Web site.
21.12.2006 The situation with Artem
Romanov is extremely difficult. The boy has had a relapse. Marrow
transplantation has been postponed, and intense anti-relapse therapy
has been prescribed. And right now, to crown it all, Artem's mother
is in critical financial situation. The family urgently needs your help!
19.12.2006 Some news about the orphan children.
The small kids from the Department of Urology,
Dima S. and Lera V.,
have had a successful surgery. Lera has already been allowed to walk,
and Dima will get up some time later. Their treatment will last
a long time, and they will arrive at our hospital for follow-up
surgiries several times.
Alesha K. from the Ivanovo
region has arrived for follow-up treatment. Our wonderful volunteer
Masha is taking care of him again. Unfortunately, the boy arrived
in poor condition. During his previous visit to the Russian Children's
Clinical Hospital, our physicians worked a lot to choose the
optimum anticonvulsive therapy for the child. As a result, they managed to
get rid of Alesha's epileptic seizures. When the boy was discharged from
hospital, he was provided with these drugs for two weeks, and then
the anticonvulsants were to be received free of charge at the local pharmacies
according to documents from the hospital (the total treatment course should
last several years). But nobody at Alesha's orphanage cared to receive
them! We have checked the situation: all the anticonvulsants are available
at pharmacies in Ivanovo, and there are no problems with receiving
them as prescribed free of charge. We just can't understand why the
administration of the orphanage treated the boy with such negligence
and indifference. Our physicians have received no normal
explanations from Ivanovo. Now it will be difficult to achieve remission
for the second time. And the prospects of the continuatio of this
treatment is unclear. It is such a pity this has happened to the boy!
His intellect is absolutely all right, and adequate treatment could
enable him to have a normal life. Besides, he is such a fine and kind boy!
Sasha K. has had an expander set on
his cheek for deep stretching and smoothing of post-burn scars. He
will stay at the hospital for a fairly long time. Many of our volunteers
have become his friends. Now the boy is much more sociable and less
shy. Besides, he is no longer afraid of being photographed.
Zhanna has recovered after the surgery
and left the hospital. The follow-up surgery is to take place three
years later. Zhanna is a very smart girl, with excellent speech development.
She often has fantasies about her mother: as if she has a mother but
this mother has just gone away, but soon she will come back and bring
a little dog... The girl was happy to receive a Barbie doll as a
New Year present.
Charming Anton has
also left the hospital after the examination and necessary treatment.
He has grown up a great deal and gained some weight. Now he proudly shows
a set of wonderful milk teeth. He made his first steps and said
his first words at our hospital. It was a real pity to part with him.
The elder girls Katya A. and
Zhenya F., have also left the hospital.
They have received good New Year presents in advance.
Sasha and Kolya have left the
hospital. They will arrive after the New Year holidays for follow-up
treatment. All the presurgical preparations are over, but the doctors
have asked to bring them for the surgery one after the other, because
both need very serious medical care.
Good news from Smolensk: little
Katya Sh.
has been adopted. She will leave Russia soon. Let us wish her good luck!
14.12.2006 Dear friends,
a traditional December exhibition of our patients' drawings has been opened
at the exhibition hall of the Russkoe zarubezhye
(Russia abroad) foundation library.
It will be held from December 14, 2006, to January 14, 2007. This exhibition
is a continuation of the last-year exhibition My Reflection.
The drawings have been made in art studios organized by the Alexander Men
Help group, including the art therapy
program at oncohematological departments of the RCCH.
The authors of the drawings are from 2 to 18 years old. Sensitive
and talented, wise and sincere, they know the value of each day. Many
of them are extremely talented. If you are in Moscow, just visit
this exhibition and see. The address is ul. Nizhnyaya Radishchevskaya 2,
phone (495) 915-1030.
Continued...
Nastya Kuzmina left for
Germany this evening. Alexander provided 2500 euro more for the
treatment and tickets. Since it is impossible to postpone the
radiation therapy any more, the administration of the German
hospital agreed to admit the girl for treatment without complete
preliminary payment. The final payment will take place after
the completion of the treatment, according to the sums actually
spent.
The same Alexander, who regularly helps us, paid the debt
of 9769.85 euro to the Freiburg University Clinic, where
Vadik Markunin had his
treatment.
* * *
Almost a Christmas fairy tale. Two days ago, we published an appeal
signed by leading physicians of some hospital departments, who
asked for financial help necessary to ensure the work of their
departments during the approaching holidays, when budgetary
supply of many drugs is interrupted. Today we received
accounts for a total of 1,900,000 roubles ($73,000) from pharmaceutical
companies. And suddenly the bank informs us about two large donations
that have arrived at the account of our foundation! One, for 500,000
roubles ($19,230), is from our old friends Yulia and Sergei, who are
always ready to help us, and the other, for 1,044,000 roubles ($40,154),
is from PremiumLine JSC, which has transferred the money without
any preliminary talks and agreements with us. We still don't know
how these people got to know about us and why they believed us at
once and decided to help the children.
The rest of the sum was available at our account as "donations transferred
for all the children." So, the problem with supply of drugs
at the beginning of January has been miraculously solved! We thank
everybody for this great and timely help!
* * *

Today we also learned of another story, which is not so optimistic.
One of our best-loved orphan girls,
Ira R., has had to return to
her orphanage in Belgorod. Her new mother suddenly fell gravely ill
and will need very long in-hospital treatment and then rehabilitation.
She will be unable to take care of Ira any more. Ira has already
gotten used to home life, to a new and very good school in Moscow.
And now she has to part with her new home, with her friends, with
the school, with the city. But we still believe that she will
have good luck some time.
* * *
Some news about the orphan children at our hospital.
Valya Ch. has again arrived
at the Department of Maxillofacial Surgery. The physicians have long been
waiting for her arrival. We even had to phone to her town several
times and remind the administration of her orphanage that Valya should
be sent to Moscow. The girl has traces of a deep burn on her face.
Long treatment is necessary. However, Valya does not feel bored in Moscow:
she loves reading, and volunteers bring her a lot of new books. Besides,
Valya is great at handiwork.
Zhenya F. has arrived at the
Department of Endocrinology for her annual examination. She has become
much more grown-up and much prettier. She is a very serious
and hard-working girl. Presently she is in her 9th school year,
and she is going to enter a college this spring. She wants to
have some good, reliable profession associated with contruction or
railways.
Zhanna from an orphanage in Vologda
has also returned to the Department of Endocrinology after a year's
break. Now she is a lovely long-haired four-year-old girl. She
has already had her surgery.
Little Dima S. has also undergone
a successful surgery. Everybody at his department loves the kid. He
is a real and courageous man: while having an infusion drip after the surgery,
he didn't whimper at all, only smiled.
SOS!
Dear friends,
New Year and Christmas are approaching. Alas, among other things,
this means interrupted budgetary supply of necessary drugs to
the hospital during the holidays. Even departments that host children with
the most grave oncological and oncohematological diseases
and provide intensive polychemotherapy may suffer from
shortage of medicines.
Leading physicians of the RCCH write:
"We, physicians of four oncohematological departments
of the RCCH, ask for urgent help in providing certain drugs to
our departments. We treat a total of 150 patients. All of them are
gravely ill, and all of them need expensive treatment, including
chemotherapeutic drugs, antibiotics, solutions for supportive
therapy, etc. Now the difficult moment has come again: without
charitable donations, the work of all our departments will be
paralyzed. We will fail to provide the scheduled course of
treatment to the children, and the consequences may be more than
grave.
According to our preliminary estimates, the drugs required for
adequate functioning of our departments till the moment
when budgetary supply will be resumed cost about 2,000,000 roubles
(over $75,000). It is a lot of money. But the possible consequences
are incomparable with any expenses.
Please help us and our little patients!"
With respect and gratitude,
Head of the Department of Oncohematology-16 D.V. Litvinov
Head of the Department of Oncohematology-27 N.V. Myakova
Head of the Department of Marrow Transplantation E.V. Skorobogatova
Physician of the Department of Oncology O.B. Polushkina
The situation is aggravated by the fact that very little time
is left:
the last day when we can pay for the
drugs in order to receive them in time is December 20, 2006!
11.12.2006 Some news about our patients. Dr. E.V. Skorobogatova,
Head of the Department of Marrow Transplantation, is telling:
"Serezha Shapoval has had rejection
of donor cells after a haploidentical
transplantation from his father. Transplantation from his mother
will also be haploidentical; i.e., only one-half of all antigens
will be matching. This means high risk of rejection even after T-cell
selection. We need a graft that will contain a sufficient amount
of immunocompetent cells. Therefore, search for a matching unrelated
donor is still an issue. So far Serezha is in fairly stable condition,
without serious infectious problems. But the blood counts are low,
and the child needs transfusions. Although he lives in a sterile
ward, there is high probability of infectious complications,
viral ones above all. In addition, activation of his main disease
is not excluded, and aggression of the lymphocytic pool against
his own skin or mucous cells is possible. The sooner he has the
second transplantation, the better."
An unrelated donor has been found for Vanya
Makhnev!
5.12.2006 Unfortunately, Nastya
Kuzmina's departure for Munster has been postponed. The doctors have
calculated the volume of the work and said that the preliminary sum would
be 10,000 euro rather than 5000. The girl will be admitted to the German
hospital only after this sum is paid completely. But so far only 5000
euro has been transferred to the account of the hospital. We resume the
fundraising for Nastya Kuzmina!
The inhaler for Anya Frolova has
been ordered, and its cost has been paid. Anya is waiting for its arrival
at her home in Yekaterinburg. The parents of a boy from the same department,
who also lives in Yekaterinburg, will bring it to Anya. Thank you very much
for your help!
4.12.2006 The total sum paid by the Regional Public Charity
Foundation for Seriously ill and Abandoned Children in November
2006 was 592,565.6 roubles ($22,361). We are whole-heartedly grateful to
everybody who helps the patients of our hospital!
Continued...
We thank the Boomerang foundation for regular cooperation with us.
In November, this foundation provided 250,463 roubles ($9451) for
helping patients of the Russian Children's Clinical Hospital.
The following kinds of treatment have been paid for:
- radiation therapy worth 160,295 roubles ($6049)
at the Institute of Roentgenology and Radiology for
Vitali Moiseev, Elena Amelina, Anastasia Martynova,
Olga Mikhailova, Vadim Kalinin, Alexander Korneev,
Vladislav Serov, and Artem
Romanov from the Departments of Oncohematology-16,
-27, and General Hematology.
- Natulan, Fungizone, Cardioxane, and Oliclinomel worth 90,168 roubles
($3403) for Islam Magomedov and Alan Bagaev from
the Department of Oncohematology-27.
We thank private sponsors whose financial support in November 2006
(a total of 400,298 roubles, or $15,106) made a significant contribution
to normal functioning of three hospital departments:
Roman paid for Leucovorin and Zyvox worth a total of 79,132 roubles
($2986) for the Departments of Oncohematology-16 and -27;
OOO V-r bought Dimedrol, Zyvox, Oliclinomel, Tavegyl worth a total
of 150,155 roubles ($5666) for the Department of Oncohematology-27;
Maxim paid for Oliclinomel worth 40,328 roubles ($1522) for the
Department of Marrow Transplantation;
Vladimir paid for Vancomycin Teva, Diflucan, and Oliclinomel
worth a total of 40,514 roubles ($1529) for the Department
of Marrow Transplantation.
2.12.2006 Four new orphans were admitted to the hospital in the
second half of November: Olesya T. and
Katya A., as well as little
Dima S. and
Lera V..
Nastya Zh-na has been admitted again and
had had another surgery. Sonya had also had
the second surgery, and now she has at last got rid of the problem that
was the source of constant trouble for her since birth.
Ira T-va has had the next surgery;
this time it was correction of new nose.
Kolya B. and
Sasha Ch. from Kolomna
have arrived for follow-up treatment.
30.11.2006 Yura and Katya Makukha have brought a lot
of diapers and games for the children to the hospital. Thank you
very much!

It is the greatest joy for us to see our former patients, who were
suffering from the most severe diseases, as normal happy kids.
When David Gubaidulin entered our church today, at first we recognized
only his father, not the boy. He is not only healthy and active now,
but the funny thing is that he is blond (before the unrelated marrow
transplantation, he was black-haired like his dad). He came for a
check-up. His condition is all right. His father thanks everybody
who helped David cope with his illness and wishes good health to
all the children!
We have completed the fundraising for the benefit of Andrei
Trofimov. Given the current state of his leg, it is impossible to make
and use a prosthesis. As soon as it becomes possible, the whole sum will
be paid: a total of 66,242 roubles (approximately $2500) has arrived
at the account of our foundation for Andrei, and Vyacheslav has promised to
donate the remaining sum.
29.11.2006 Head of the Department of Marrow Transplantation
Dr. Elena V. Skorobogatova tells about
Anya Klyakovkina:
"On November 21, we performed the second transplantation from Anya's
brother. Prior to it, she received radiation therapy at the Institute
of Roentgenology and Radiology. She is in normal condition and has no
fever. But it is too early to speak of any result. We can assess
the engraftment only in three or four weeks."
We remind you that Anya's family is extremely poor and needs all sorts
of help and support.
28.11.2006 Dr. Elena V. Skorobogatova, Head of the Department
of Marrow Transplantations, has asked for help in buying some urgently
needed drugs:
"Please consider supply of the following medicines for patients
of the Department of Marrow Transplantation:
Anna Klyakovkina,
Serezha Shapoval,
and Karolina Eksuzyan:
1. Zyvox 600 mg (20 vials)
2. Diflucan 150 mg/caps (50 caps)
3. Oliclinomel 1 l (50 bags)
4. Vancomycin 500 mg (50 vials) or 1000 mg (25 vials).
The total cost is 546,412 roubles, or $20,240.
Anya Klyakovkina also needs IV Cyclosporin A (Sandimmune) 50 mg/ml
N 10 (5 packs) and Oliclinomel 1 l (20 bags). The total cost of
these medications is 78787.25 roubles ($2920). In addition, Anya
needs IV Endoxan (Cytoxane) 8 mg. This drug costs 7040 roubles
($260)."
26.11.2006 The physicians tell about their patients'
condition. Dr. Elena V. Skorobogatova, Head of the
Department of Marrow Transplantation:
"Little Serezha Shapoval shows
engraftment of donor cells. He is restoring his blood counts, and
his condition is fairly stable."
Dr. Natalia V. Myakova, Head of the Department of
Oncohematology-27:
"Patient Artem Romanov, 2 years
old, had extremely early relapse of acute myeloid leukemia. Marrow
transplantation is recommended. A donor has been found, and the
transplantation is scheduled for December 12. Artem is currently
in remission after all the necessary chemotherapy and radiation therapy.
Eugene Yakovlev had extremely
early relapse of T-cell leukemia. Transplantation is also necessary.
A donor has been found. But the child is not yet in remission after
standard therapy. Now he is receiving nonstandard anti-relapse therapy.
If it proves successful, transplantation will take place."
Dr. Dmitri V. Litvinov, Head of the Department of Oncohematology-16:
"A donor for Vanya Makhnev
has not yet been found. Search is going on. The child's aplasia after a
chemotherapy cycle will soon end.
As to patient Vitalik Sotnikov,
we have started preliminary discussions with the surgeons about
the possibility of starting a series of reconstructive surgeries on
his face.
Matvei Korzh is still receiving
Proleukin therapy. So far there are no signs of relapse. Continuation
of this therapy is recommended. The child feels fine and currently
receives out-patient treatment."
18.11.2006 We thank
Alexander, who brought 5000 euro (the sum required for treatment in
Munster) to the mother of Nastya
Kuzmina. The German hospital has agreed to take the girl for
radiation treatment. Now only organizational problems (visa
and tickets) are to be resolved.
We are also grateful to Alexander and Larisa, who have brought
a lot of diapers, disposable sheets, and a wheelchair to the
hospital.
Finally, we thank Lev, who has brought a new DVD player for the
children.
Some news about Masha Tseberyaboi.
She and her mother left Munich and went home on November 15. The German doctors are
more than satisfied with the results of the surgery. In their opinion,
Masha had a congenital esophageal disorder, which was aggravated by
antileukemic treatment. Now Masha can eat by herself and feels
much better. She and her mother are optimistic. Other medical problems
must be resolved half a year later, when Masha and her mother
come to Munich again for a check-up.
16.11.2006 Some news about the orphan children at our
hospital.
Sasha K. has arrived for follow-up treatment;
the next reconstructive surgery is to be made.
Sasha B-v is a new patient
of the Department of Maxillofacial Surgery; his operation has already
taken place. Sonya from the
Department of Microvascular Surgery has also had her first surgery.
She will have to stay in Moscow somewhat longer than planned
before, and so she needs winter clothes: a jacket and boots.
Sasha B.,
Olya T., and
Ivan have left our hospital.
Milena is back; her condition
has become much better after rest and rehabilitation.
8.11.2006
On October 25, 2006, a charity concert for the benefit of children
from the Russian Children's Clinical Hospital took place at the
Russian Culture Fund within the Sixth International
Musical Festival ArsLonga.
Participants of this concert were musicians from Russia, United
States, and France: pianists Ivan Rudin, Mikhail Mordvinov,
Oleg Dusaev; legendary violinist Zvi Zeitlin, singer
Stefanie Jaquenot, violinist Alena Baeva, cellist Alexander Buzlov.
An exhibition of drawing by little patients of our hospital
was arranged at the lobby.
Continued...
7.11.2006 News about the orphan children at our hospital.
A skull model has been bought for Olya
B-na. The girl has been allowed to go home till the surgery.
This surgery will be possible after a
RED appliance
is bought.
Galina, the nurse who takes care of
Ira T-va from the same
department, tells about Olya and Ira:
"I saw Olya only for ten days, but my impression of her was
very good. This girl is sociable and affectionate, studies hard at
school and plays with all children and adults. She liked the
hospital and didn't want to leave it, but then she smiled
and joked about her future return for the surgery.
We have been studying with Ira T-va
for six weeks. We started from the very beginning, so to speak. Ira has
already learned 12 letters and tries to read, although it is still difficult
for her. She also started writing and knows some arithmetic and simple
geometry. Also, a speech therapist gives her two lessons each week,
and the result is already noticeable.
Actually, Ira is quite bright. She makes very interesting models with
toy construction sets and draws with pleasure.
On November 5, Ira turned 10 years old, and we went to the zoo together
with her. She was amazed. It was the first visit to a zoo in her life.
We will also go to the circus. The only problem is the cold weather:
Ira has no warm boots and no autumn cap.
She is a kind and sweet girl. But she doesn't want to speak about
her orphanage or return there. She dreams of becoming a doctor
and curing other children."
5.11.2006 The news from Munich about Masha
Tseberyaboi. The surgery on her esophagus took place on October 26.
It was very difficult; the physicians say that it is the second such case
in their experience. But now Prof. Schweinitz is satisfied with the
result. Masha was transferred back to her ward from the intensive
care department on November 3. So far she receives parenteral nutrition.
Masha has yet another serious problem: a thrombus. The German doctors
promise to pay attention to this problem and control this dangerous clot.
We thank the Boomerang charity foundation for regular help and support.
In October 2006, this foundation paid for
- radiation treatment of the following patients (Departments of Oncology,
Oncohematology-16 and -27, Neurosurgery) at the Institute of Roengenology
and Radiology: Alexei Tararychenkov, Dima Moiseev,
Marina Ukhanova, Aslan Balkoev, Vanya Prokofiev,
and Sasha Kozlov (a total of 70,941 roubles, or $2627).
- medicines for Vitalik
Sotnikov and Matvei Korzh
from the Department of Oncohematology-16 (a total of
140,750 roubles, or $5213).
We thank private sponsors, who provided funds for the purchase of vitally
important drugs for some hospital departments in October:
- Maxim paid for Metrogyl, Oliclinomel, Zavedos for the Departments
of Oncohematology-16 and -27 and Holoxan for the Department of Oncology
worth a total of 76,875 roubles ($2847).
- Vladimir paid for Vancomycin for the Departments of Oncohematology-16
and -27 and Holoxan and Amicacin for the Department of Oncology
worth a total of 76,683 roubles ($2840).
- Roman paid for Methotrexate, Vepesid, Puri-Netol for the Department
of Oncohematology-27 and Holoxan for the Department of Oncology
worth a total of 47,924 roubles ($1775).
1.11.2006 Head of the Department of Craniomaxillofacial Surgery
Andrei V. Lopatin asks for help in purchasing a
RED (Rigid External
Distractor) appliance for external distraction of facial bones.
Presently this apparatus is necessary for surgical treatment of
Olya B-na, and subsequently
it will be used to cure other patients with similar disorders.
The distractor costs about 10,500 euro.
31.10.2006 ATG Fresenius C has been bought for
Diana Omarova and
Ondar Kezhik. The fundraising
for these children is completed. We thank everybody who has helped.
26.10.2006 The total sum spent by the Regional Public
Charity Foundation for Seriously ill and Abandoned Children
for medications, consumables, and medical services for the RCCH
patients from October 1 to 25, 2006, was 559,992.44 roubles
($20,740). Continued...
26.10.2006 Some news about the orphan children at our
hospital.
We are happy to tell you that a family of Muscovites has adopted little
Yulia Yu., who has received
help and attention from lots of people, both doctors and volunteers.
Before the end of all the legal formalities, the girl returned to
the Department of Maxillofacial Surgery, where she had a successful
operation. She was discharged from hospital two days ago to go to
her new home and loving parents. Before this departure, her new mother
came to the hospital church and thanked everybody who helped
cure the kid during all these months. She was especially grateful
to Dr. Andrei V. Lopatin, Head of Department of Maxillofacial Surgery,
for his extraordinary professional skill and attentive attitude to
his little patients and their parents.
Vanya B. has been discharged from
hospital. The doctors decided that the surgery is not necessary so far,
but the boy will come back to the hospital in several months, and then
they will decide on further treatment tactics. This affectionate and
friendly boy was reluctant to leave the hospital and especially his
favorite nurse Tatiana.
Milena and her nurse are
currently living at a rehabilitation center near Moscow. Our
volunteer Nadezhda visited them
last Sunday and was glad to see that Milena will have many restorative
procedures at this center. Besides, there are good playrooms, and a
speech therapist and a psychologist work with Milena every day.
The girl is happy to stay there. Also, the staff of Milena's orphanage
in Yakutsk remember her and regularly phone us to learn about her condition.
21.10.2006
An orphan girl of fourteen has been admitted to the hospital.
Olya B-na has a grave
congenital cranial pathology. The girl needs long and very
expensive treatment. The required appliances cost 10,500
euro. Please help her!
20.10.2006 Since Serezha
Shapoval was in extremely grave condition and needed urgent intervention,
the doctors performed marrow transplantation from this mother.
For this purpose, her bone marrow was subjected to a purification
procedure. The kit for this procedure costs 187,000 roubles (almost $7000);
Alexander provided the remaining part of this sum.
An unrelated marrow donor has been found for Artem
Romanov in the Stefan Morsch registry. The transplantation will
take place in the beginning of November. We thank Alexander, who has
provided the remaining part of the sum for donor activation.
17.10.2006 News about the orphan children. Our new patients
are Sonya (5 years old) and
Ivan (17 years old).
Ira T. will have her
second surgery in two months. The girl will stay at hospital
till that moment; a speech therapist and a teacher are working with her.
Little Olya T. needs warm
clothes and boots for going out (age 12-18 months).
11.10.2006 Some news about the children who receive help
via our Web site.
Head of the Department of Oncohematology-16 Dr. Dmitri V. Litvinov tells
about the condition and treatment of Vitalik
Sotnikov:
"The staff of the Department of Oncohematology and Chemotherapy
thanks the kind people who provide financial help necessary for
continuation of Vitalik's treatment. His condition has improved
to such an extent that presently Vitalik is receiving out-patient
treatment. We hope that we will be able to continue
the therapy thanks to your help. After debridement of the infectious
lesion, we hope to conduct a reconstructive operation with plastic
surgery of facial soft tissues."
Continued...
Head of the Department of Oncohematology-27 Dr. Natalia V. Myakova
tells about the condition of patients from this department:
"Usman Metrishev has had a successful marrow transplantation.
He has been transferred back to our department from the Marrow
Transplantation Department. He still has problems with the graft vs. host
disease and has to receive intensive immunosuppresive therapy, which
causes some complications. Now one of his main problems consists
in protein loss and dropsy. He needs albumin to correct this condition.
And, since he is a big boy already, quite a lot of albumin is required.
Sergei Simonov has had marrow
autotransplantation. The hematopoiesis is already restored. But, unfortunately,
the tumor has not disappeared completely. Standard therapy cannot do any more.
Now the physician is thinking about the possibilities of alternative treatment.
Sergei is feeling more or less fine. He mostly stays at home.
Eugene Yakovlev is in
remission. The blood for HLA matching will be sent to Germany
in the nearest few days. And so far the boy still receives
maintenance therapy and waits for an unrelated transplantation."
A few words about other children:
Unfortunately, we have to stop the fundraising for Kolya
Semenov's treatment. Continued...
For Masha Tseberyaboi,
20,000 euro has been transferred to the account of the German hospital.
This is the preliminary sum required for treatment (the exact sum will be
known after the completion of the treatment). 15,000 euro was provided
by Alena and her friends.
Alexander, who also regularly helps us, has also given $15,000 for the
treatment, journey, and board and lodging. Masha and her mother Olya
are leaving for the Munich University Clinical on October 17 for a detailed
examination and subsequent surgery.
Funds required to find an unrelated donor for Artem
Romanov in the European registry have been raised during the Flag of
Kindness charity event. According to preliminary matching, a potential
donor has already been found.
Matvei Korzh responds to treatment
quite well. Therefore, Proleukin therapy should not be interrupted, and
we go on with the fundraising. We thank everybody who helps little Matvei!
Lena Babkina went back home. The
amount of the drug bought thanks to your help will be sufficient till the
New Year. The local administration promises to provide the girl with
this drug further. Thank you for helping Lena!

10.10.2006 Today we tell about the opening ceremony
of our House of Hope in detail.
As we have already told, it is a cottage for children receiving
out-patient treatment. Again and again, we want to thank everybody
who helped in this work at all stages. Your help made it possible
to implement a project that seemed completely impossible two years
ago. It will help in solving one of the most difficult problems
for families whose children receive treatment at hematological
and oncological departments of our hospital: the problem of their
stay in Moscow. We remind you that more than 90% patients come
to our hospital for treatment from regions very far from Moscow
and have no money to rent an apartment in Moscow. It would take
years to wait till the state solves this problem...
The cottage was bought and furnished solely using charity fundraising.
This example is so far absolutely unique for our country. But a lot of
people from Russia and Italy have managed to do this together.
Success of such a project doesn't mean only a solution to a difficult
problem encountered by families of gravely ill children. It is also
a sign of the development of civic society, of the people's responsibility
and independence.
We thank our Italian friends: Enio Bordato, President of the
Aiutateci a Salvare
i Bambini Onlus Association; Elena Demaria, representative of this
Association in Moscow; and many other Italian citizens. Some leading
Italian companies have also contributed a lot through the mediation
of the Association: Brennero Mobili, Magistri, Battistella, Falomo,
Chicco, Merloni.
The furnishing of the house was completed with the help of Russian
sponsors, both companies and private persons. We thank Mikhail
Arsentievich, Vyacheslav, the Sozidanie foundation and personally its
director Elena Smirnova, Euroservice Co., and many other people,
our old friends and regular benefactors.
Continued...
9.10.2006 An anonymous company placed alms-boxes on
its grounds to raise funds for our patients. In September, they
raised 20,121.15 roubles ($745) for Usman Metrishev,
28,154.5 roubles ($1043)
for Lena Babkina,
35,579.9 roubles ($1318) for Diana
Omarova, 25,410.7 roubles ($941) for Ilona Klimuk,
and 47,118.65 roubles ($1745) for Ondar
Kezhik (the first child is a patient of the Marrow Transplantation
Department; all the rest receive treatment at the Kidney Transplantation
Center). We thank this company for organizing this efficient method
of fundraising.
6.10.2006
The total sums spent by the Regional Public Charity Foundation for
Seriously ill and Abandoned Children for buying medications and
consumables and paying for certain kinds of treatment in September 2006 was
418,077.85 roubles ($15,484).
Continued...
4.10.2006 We thank the Boomerang foundation for its
regular help to patients of the Russian Chilren's Clinical Hospital.
In August and September 2006, this foundation paid for
- Radiation treatment of patients from the Departments of Oncology and
Oncohematology, worth a total of 203,890 roubles ($7551);
- Dissolvable materials for patients from the Department of Craniomaxillofacial
Surgery, worth a total of 104,705 roubles ($3878);
- medications for the Departments of Oncology and Oncohematology-27 and
-16, worth 284,290 roubles ($10,529).
We thank Dmitri Kryzhanovski and his friends from the Leader Class
educational center, who have regularly helped patients of our hospital
during the last two years. For example, in August and September 2006, they
raised a total of 68,000 roubles ($2519) - in particular, for
the treatment of Lena Babkina.
3.10.2006 We thank Alexander, who has brought several large
boxes of child clothes to the hospital. All the clothes are
beautiful and high-quality.
Some news about the orphan children:
A new child from an orphanage is Ivanovo has been admitted to the
hospital. Olya T. is one year old, a very nice and merry kid.
Maxim V. has been discharged from
hospital. After all the examinations, the doctors decided to try
conservative treatment and to postpone the surgery. Maxim has gained weight
at last, and the staff of the orphanage thanked his nurse Nadezhda for
her excellent care of children and the Help Group for financial
and organizational help to little orphans.
Vanya B. has again arrived at the hospital.
A nurse takes care of him.
Ira T. is recovering after
the surgery. She was lucky to have a nurse who is a former
school teacher,
and now she studies all the necessary school subjects: maths, reading, writing,
etc. Imagine that Ira hasn't had any lessons earlier owing to her disorder and
could neither read nor write! But she is quite smart, understands
everything very quickly and writes accurately and correctly.
Milena is more or less all right.
Soon she will go to a rehabilitation center for children. Svetlana,
who works at the representative office of Yakutia (Sakha Republic)
in Moscow, helps Milena and provides her with all the necessary things,
including seasonal clothes.
28.09.2006
The cottage for children receiving
out-patient treatment was opened today. On the initiative of our
Italian friends from the
Aiutateci a Salvare i Bambini Onlus
association, it was named The House of Hope.
Among those present at the opening ceremony, there were representatives
of the Italian Embassy in Moscow, leaders of the Aiutateci
a Salvare i Bambini Onlus association, and administration and doctors of the
Russian Children's Clinical Hospital.
We thank everybody who has helped in the implementation of this project, which
is still (alas!) unique for Russia.
We'll soon publish a detailed report about this event.
16.09.2006 We thank Masha, who has bought two packs of Keppra
for Kirill Smykov.
15.09.2006 News about the orphan children.
A new kid from the Ivanovo orphanage has appeared at the RCCH. He is
Sasha B., a boy of six.
We thank Tatiana and her colleagues, who have bought clothes, food, and
other necessities for orphan children receiving treatment at the RCCH.
The clothes included warm jackets, linen, T-shirts, slippers.
It is not the first time that Tatiana and her colleagues help our
children in this way.
Three friends (Irina, Olga, and Anya) have brought warm clothes
and a lot of fruit for the children. Irina has become a good
friend of Ira T..
Thank you very much, dear friends!
11.09.2006 We thank
- The Commission for Social
Church Activity working at the Moscow Diocesan Council,
which has raised 31,000 roubles for Vitalik
Sotnikov. This sum was used to buy Zyvox for the child.
- People who provided Colimycin for the Department of Medical Genetics:
Maria has brought 100 vials from France, and Albert has sent 10 vials from
Germany.
7.09.2006 Vanya V.
has been discharged from hospital. Now he is back at his orphanage. We thank
everybody who helped the boy and cared for his destiny. We hope that this
charming kid will have parents some time. Please pray for him.
* * *
Sums paid by the Regional Public Charity Foundation for
Seriously ill and Abandoned Children for the work of paid nurses
and babysitters taking care of orphan children at the Russian Children's
Clinical Hospital:
Yulia Yu. (Diagnostic Department):
at hospital from June 7 to July 12, 2006; sum paid
20,493 roubles ($759);
Ilya K. (Center of Microvascular
Surgery): at hospital from June 22 to July 31, 2006; sum paid
18,079 roubles ($670);
Vanya V. (Department
of Urology): at hospital from July 10 to August 9, 2006; sum paid 15,281.71
roubles ($566);
Gena B. (Department of Coloproctology):
at hospital from July 5 to July 24, 2006;
sum paid 3570 roubles ($132);
Denis K. (Department of Clinical
Immunology): at hospital from July 17 to July 31, 2006; sum paid 9918
roubles ($367);
Valera B. (Department of Clinical
Immunology): at hospital from July 17 to July 31, 2006; sum paid 7177
roubles ($266);
Serezha S-n (Department of Maxillofacial
Surgery): at hospital from June 30 to August 29, 2006; sum paid
21,706.22 roubles ($804);
Vanya V. (Diagnostic
Department): at hospital from August 12 to September 1, 2006; sum paid
9261.29 roubles ($343);
Ruslan Kh. and Katya K.
(Infectious Department): at hospital from August 8 to August 29, 2006;
sum paid 10,911.49 roubles ($404);
Artem T. (Department of Neurosurgery):
at hospital from August 4 to September 1, 2006; sum paid
12,965.81 roubles ($480);
Milena L. (Center of Microvascular Surgery):
at hospital from August 16 to September 1, 2006; sum paid
2711.03 roubles ($100);
Maxim V. and Anton B.
(Diagnostic Department): at hospital from August 26 to September 1,
2006; sum paid 3637.17 roubles ($135).
6.09.2006 The total sum paid from the account of the Regional Public Charity Foundation for Seriously ill and Abandoned Children in August 2006 was 757,764.67 roubles ($28,065).
Purchased medicines and consumables:
Valtrex (N 20), Zyvox (N 2) worth 63,679.36 roubles ($2358) for the Department of Oncohematology-27;
Baxter dialysis set with consumables worth 329,503.77 roubles ($12,204) for Dima Lopatkin from the Department of Oncohematology-16;
Prograf (N 6) worth 77,797.5 roubles ($2881) for Lena Babkina from the Center for Kidney Transplantation;
Puri-Netol (N 97) worth 83,869.11 roubles ($3106) for the Department of Oncohematology;
Vincristine (N 10) worth 14,700 roubles ($544) for the Department of Oncohematology-27;
Cymeven (N 15) worth 29,700 roubles ($1100) for the Center of Kidney Transplantation;
Zavedos (N 10) worth 35,000 roubles ($1296) for the Department of Oncology;
Zyvox (N 1), Leucovorin Lance (N 6) worth 25,098.22 roubles ($930) for the Department of Oncohematology-16;
Proleukin 1 mg (N 1) worth 13,000 roubles ($481) for Matvei Korzh;
Sandimmune Neoral (N 1) worth 11,338.41 roubles ($420) for Vitali Fedortsev from the Department of Clinical Immunology;
Neoton (N 3), Riboxinum amp. (N 1) worth 2022 roubles ($75) for Dima Pozdnyakov from the Center for Kidney Transplantation;
Dacarbazine Lance (N 20) worth 2505.6 roubles ($93) for the Department of Oncohematology-16;
Neoton (N 3) worth 2017.95 roubles ($75) for the Center of Kidney Transplantation;
Bepanten cream (N 1), Clotrimazole Acri (N 1), Betadin (N 9) Gentamycin cream (N 1), Maalox susp. (N 4) worth 2276.5 roubles ($84) for Zuleikhan Akhmetova from the Department of Marrow Transplantation;
Calcium D3 (1 pack) worth 237.6 roubles ($9) for Zuleikhan Akhmetova from the Department of Marrow Transplantation;
Aminosteril KE (N 10) worth 2831.5 roubles ($105) for Salmin Minnokaev from the Department of Clinical Immunology;
Latranum (N 3) worth 2106 roubles ($78) for Sergei Simonov from the Department of Oncohematology-27;
Freederm cream 15 g (N 1) worth 240 roubles ($9) for Nastya L. from the Department of Rehabilitation;
Novo-passit (1 pack), Phenibutum (2 packs), Milgamma sol. (2 packs), Pantogam (1 pack), Magne (1 pack), Stugeron (1 pack) worth 1098 roubles ($41) for orphan children in the Infectious Department;
Convulex (N 10) worth 1300 roubles ($48) for Dasha S. from the Department of Psychoneurology-2;
Mannitol (N 50) worth 2650 roubles ($98) for the Department of Oncology;
Cortexin lyoph. (2 packs), Glatilin (7 packs) worth 4402 roubles ($163) for Valeri and Nastya Maksimovs from the Department of Ophthalmology;
Certofix Mono (N 5) worth 3342.5 roubles ($124) for the Department of Clinical Immunology;
Surgical smocks (N 100), boot covers (100 pairs), caps (N 100) worth 4631.99 roubles ($172) for the Department of Oncohematology-27;
Three-layer masks (N 100) worth 176 roubles ($6.5) for the Department of Oncohematology-27;
Aspirator OM-1 (N 1) worth 9600 roubles ($356) for the Department of Oncohematology-16;
Disposable masks (1 set), Nera filter (1 set) worth 605.63 roubles ($22) for the Department of Oncohematology-16.
Paid tests and examinations:
Repeated determination of blood cells at the Center for Molecular Genetics:
for the Gagiev family, worth 1100 roubles ($41);
for the Gubaidullin family, worth 1100 roubles ($41).
Tests at the Sklifosovski Research Institute worth 5265 roubles ($195);
CT scanning worth 6600 roubles ($244) for Daniil Starikov from the Department of Oncohematology-16;
Medical services at the Blokhin Oncological Center in July 2006, worth 15,600 roubles ($578);
Diagnostic services at the Rospotrebnadzor Federal Center worth 1460 roubles ($54);
Diagnostic services at the Rospotrebnadzor Federal Center (orphan children) worth 910 roubles ($34).
2.09.2006 Some news about the orphan children at our hospital.
Many children need autumn clothes and shoes. Soon some of them will just have nothing to put on for walking out or for going home.
Among those who need warm clothes and boots, we can name Milena L. (5 y.o.), Serezha Ch. (9 y.o.), Vanya V-ov (3 y.o.), Ira T. (9 y.o.), Anton (9 m.o.), and Maxim V. (2 y.o.).
Orphan children regularly get to our hospital, and many of them have no seasonal clothes, not even a set of extra clean clothes. It often happens that orphans arrive at our hospital in pretty clothes but then persons accompanying these children take all these things back to the orphanage, because other children may also need them.
And some news about the children. Ira T-va has recently had her surgery. She is already feeling better and more optimistic. The mother of another girl from the same ward takes good care of Ira and treats the girl as if Ira were her own daughter.
Therefore, Ira's postsurgical period proceeds smoothly. Volunteers also often visit her. Next week, the girl from Ira's ward will be discharged, and we'll find a nurse for Ira.
Katya's surgery was also successful, and the girl has been discharged from hospital. A year later, she will come for an examination, and the next surgery will take place in two years.
We regret to inform you that little
Artem died. He received medical
aid too late.
29.08.2006 We thank Irina, who regularly helps us. This time,
she transferred $700 for re-equipment of the cottage
for children receiving out-patient treatment.
Some news about the orphan children at the RCCH.
Little Artem is in critical
condition. The main disease has caused an extensive infection. The boy has been
transferred to the intensive care unit. It was impossible to perform the
surgery.
Two new boys from an orphanage in Ivanovo have been admitted to the
Diagnostic Department. They are Anton
(9 months old) and Maxim (2 years old).
Nastya L. and Ruslan
have been discharged from hospital. The medical examinations showed
that Ruslan's health is virtually all right. Little
Vitya from the Department of
Neurosurgery has also been discharged. His prognosis is good:
the doctors have concluded that the congenital disorder will
not develop any further and no treatment is required. Vitya needs only
parental love and care, nothing else. However, he still has heart
problems: a congenital cardiac anomaly.
In November 2006, the kid will
be taken to the Bakulev Institute of Heart Surgery to decide on an
operation. The boy is very quiet, with such attentive eyes that you can
hardly believe he is only a small kid. When volunteers took him in
their arms, he looked at them with such intensity and concentration, as
if asking, "Where is my mom?" Mothers of other children from the
same department say that the boy has become simply unrecognizable after
three weeks at the hospital, where he was always together with a kind
and attentive nurse, who carried him in her arms and spoke to him. We hope
that this tiny kid will indeed have a mother some time.
24.08.2006 We thank
Alexander, who has paid for the purchase of ATG for
Dima Pozdnyakov;
Denis, who has provided us with Valcite (Valgancyclovir) worth
67,000 roubles ($2481) for the treatment of
Usman
Metrishev from the Department of Marrow Transplantation;
and Stasya, who has bought a microwave over for the cottage
that will host children receiving out-patient treatment. Stasya is our
old friend; she regularly brings various stationery for the kids
to the hospital.
22.08.2006 Ira R.
has recently come to Moscow. We are happy to tell you that this time
she did not live at the hospital: she will live in a family of Muscovites!
We thank Roman, who has brought nine packs of Cardioxane 500 mg worth
55,993 roubles ($2075) for Dima Moiseev and Fedya Bragin
from the Department of Oncohematology-27.
Anton and Georgi with their friends (44 people all in all) raised 30,000
roubles ($1100) for buying Prograf for Lena
Babkina within one day. Also, 30,000 more roubles were received
from the Sozidanie foundation. Thank you very much, dear friends!
Now Lena has a sufficient amount of this medicine up to the middle of
October. But we do not interrupt the fundraising, because nobody knows when
and if the budgetary supply of Prograf will be resumed.
We thank Irina Belentseva, who has again brought nice clothes for
the children to the hospital.
20.08.2006 Two more children have been admitted to the Department
of Maxillofacial Surgery. For Katya,
a girl of three, this is her third visit to our hospital.
And Ira, who is nine now, has
come here for the first time.
We thank the Mediaservice-VI company, which has supplied the hospital
with an impressive batch of disposable Pampers diapers. The total number
of all diapers is about 102,000.
We thank Alexander, who has transferred 11,000 roubles ($407) for
Fedya Vakhrushev. Fedya is currently receiving treatment at
the Children's Department of the Institute of Roentgenology and
Radiology. This money will be used to perform special mapping of the
tumor and to select individual treatment techniques.
We also thank Anna, who has presented 130 large and very pretty
photo albums for patients of our hospital. Many children become
interested in photography during their treatment at our hospital,
and they will be glad to take albums full of photographs to their
homes.
17.08.2006 Two new patients from orphanages have been admitted
to the hospital:
Serezha Ch., a boy of nine,
and Vitya D., who is only
six months old. Little Serezha
S-n has been discharged from hospital.
16.08.2006 Some news about orphans at the RCCH. We have
three new little patients:
Artem (1.5 years old) is from Tver,
and Katya and Ruslan
are from Ivanovo. Serezha
S-n and Alla T. had their
surgeries on August 9. They will be discharged soon.
Kolya B. and Sasha Ch.,
as well as Denis and Valera
from the Department of Immunology, have also left the hospital.
15.08.2006 Refurnishing of the cottage
for children receiving out-patient treatment will soon
be completed. We thank our dear Italian friends from the
Aiutateci a Salvare
i Bambini Onlus Association and personally its leader Enio Bordato
and its Moscow representative Elena Demaria, who have covered the
majority of financial expenses for refurnishing of this cottage.
Very good Italian furniture for the rooms and for the kitchen has
recently been delivered to the cottage. Representatives of the manufacturing
company have specially come from Italy to assemble it. And the
famous Merloni company provided fridges and laundromats free of
charge. Muscovites promised to help with buying the dishes and other
necessary things. But even now the house is comfortable, and some
patients already live there. For example,
Vadik Markunin with his mother,
who will soon go to Germany for a check-up. The cottage will be
officially opened in September 2006.
11.08.06 Unfortunately, Kolya
Semenov's condition has become worse.
Acting Head of the Department of Oncohematology-27 Dr. O.V. Makarova
is telling:
"Presently Kolya is in grave condition. After the completion of
radiation therapy, he had fever and pains in the abdomen and chest.
We noticed lesions in the liver and lungs, and biopsy showed that they
were specific; thus, we have to state further development of the main
disease. Presently we are planning a cycle of chemotherapy to
stabilize the boy's condition and to get rid of the pain syndrome."
4.08.2006 We whole-heartedly thank Igor, who has bought an oxygen
concentrator for Kristina
Gaidareva.
We thank the Boomerang charity foundation, which has paid for the
radiation treatment of the following children at the Institute of
Roengenology and Radiology in July 2006:
Issa Albogachiev (Department of Oncohematology-27): 40,786
roubles ($1511);
Erik Inashvili (Department of Oncohematology-27): 29,086.20
roubles ($1077);
Vlad Belyakov (Department of Oncohematology-27): 34,991.70
roubles ($1296);
German Dubrovin (Department of Oncology): 21,181.68 roubles
($785);
Roman Romanko (Department of Otolaryngology): 21,181.68 roubles
($785).
Total: 147,227.26 roubles ($5454).
We thank the following companies for their help in purchasing some
medications:
- the Boomerang company, which has bought 6 vials of Cardioxane worth
37,434.48 roubles ($1386) for Roman Poleshchuk and Artem
Romanov from the Department of Oncohematology-27.
- the Timex company, which has bought Certofix, Vepesid, Holoxan, and
Emeset worth a total of 99,783.46 roubles ($3696) for the Department of
Oncology.
We thank the Media Service-VI company, which has presented a large
batch of Pampers diapers for all patients of our hospital who need them.
This amount will be sufficient for six months. The same company is ready
to provide the hospital with Pampers diapers during the next two years.
3.08.2006 Here is some news about the orphan children:
Vanya V-ov
has fully recovered after the surgery. He goes out and plays with other
kids. In this condition, he may be discharged from the hospital. But
this means his return to the orphanage. Doctor Fuat Abdullaev and the
entire staff of the Department of Urology address the readers of our Web
site and everybody who can help the kid:
"It is vitally important for Vanya to live in a family. A state
institution, even a very good one (and, by the way, Vanya's pre-school
orphanage is good indeed) cannot provide the boy with the required care
and medical control. On the contrary, there is no doubt that this
charming kid will be quite healthy if he grows in a loving family. The
doctors of the Department of Urology promise that they will provide all
kinds of medical help to him whenever necessary and regularly control
his condition until he turns 18."
Ilya K., one of our best-loved
kids, went home yesterday. His future mother has not yet come after him.
But the boy is optimistic: he must be back to our hospital for follow-up
treatment six months later. He will be quite good-looking after that, as
he says, and he has firmly decided to find a mother. It is a real pity
that we had to part with Ilya, our little but faithful friend. We will
miss his sense of humor and his stories, which he constantly invents and
artistically tells. We will miss his warmth and love. We are looking
forward to his return, and we believe that there is a woman who is ready
to be his mother. Let us hope that she will find him in six months, just
as Ilya says.
2.08.2006 We thank Vneshtorgbank [a large Russian bank], which
has bought a universal endoscopic
surgical set as a present for our hospital within the World without
Tears program. This equipment is intended for performing complex
microsurgeries. The set costs 1,652,381 roubles ($61,200). Continued...
* * *
Purchased from July 3 to 31:
Holoxan Baxter (N 50) and Ondansetron Lance (N 50) worth 60,400 roubles
($2237) for the Department of Oncology.
A set of endoscopic surgical equipment (N 1) worth 1,652,381 roubles
($61,200) for the Departments of Otolaryngology, Ophthalmology, and
Microvascular Surgery.
Cymeven (N 21) worth 38,529.75 roubles ($1427) for the Center of
Kidney Transplantation.
Berodual (N 2), Mezym Forte (20 packs), Mydocalm (N 5), Movalis (N 10),
Monopril (N 10), No-Spa (N 5), Pariet (N 15), Preductal (5 packs), Enap
(20 packs), Aerius (10 packs) worth 33,883 roubles ($1255) for Raya
Avetisova from the Department of Clinical Immunology.
Ampholip (N 1) worth 5168 roubles ($191) for Vitalik Sotnikov from the
Department of Oncohematology-16.
Amoxyclav 375 mg N 15 (10 packs) worth 1920 roubles ($71) for Kolya Semenov from the Department of
Oncohematology-27.
Aminoven Infant (N 15), Diflucan (N 6), Panangin (2 packs) worth 8076.3
roubles ($300) for the Department of Abdominal Surgery.
Mercaptopurin (N 10) worth 2650 roubles ($98) for the Department of
Oncohematology-27.
Primadophilus (N 1), Metrogyl (N 5) worth 630 roubles ($23) for the
Department of Abdominal Surgery.
Specially ordered child wheelchair (N 1) worth 13,473 roubles ($500) for
Milena L. from the Department of
Microvascular Surgery.
Diapers (54 packs) worth 4278.96 roubles ($158) for orphan children.
Venofix (N 200), Discofix (N 200), and Vasofix (N 200) worth 13,478
roubles ($500) for the Department of Clinical Immunology.
Proleukin 1 mg (N 1) worth 13,000 roubles ($481) for Matvei Korzh
from the Department of Oncohematology-16.
Bepanten (N 1) worth 150 roubles ($5.5) for Ilya K. from the Department of
Microvascular Surgery.
Neoton worth 2690.6 roubles ($100) for Beslan Saaev from the
Department of Oncohematology-27.
Holoxan (N 16) worth 22,641.76 roubles ($839) for the department of
Oncology.
Cardioxane (N 1), Oliclinomel (N 10), Trental (N 10) worth 16,429.08
roubles ($608) for the Department of Oncohematology-27.
Sandimmune Neoral (N 1) worth 11,338.41 roubles ($420) for the
Department of Clinical Immunology.
Dacarbazine Lance (N 20) worth 2505.6 roubles ($93) for the Department
of Oncohematology-16.
DNA testing reagent kit worth 86,245 roubles ($3194) for patients of the
Institute of Child Hematology.
Prednisolon (N 50), Amoxycillin (50 packs), and Puri-Netol (N 20) worth
11,225 roubles ($416) for the Department of Oncohematology-27.
Paid for:
Repeated determination of blood cells
for the Aksenov family (Department of Marrow Transplantation)
worth 1100 roubles ($41).
for the Rogachev family (Department of Marrow Transplantation)
worth 1100 roubles ($41).
Refurnishing of the cottage for children receiving out-patient treatment
worth 400,000 roubles ($14,815).
Tests at the Sklifosovski Institute in May 2006, worth 5265 roubles
($195), and in June 2006, worth 1160 roubles ($43).
Medical examination and treatment of Andrei Ivanishin at the
Infectious Department for 10 days, worth 42,000 roubles ($1556).
1.08.2006 Alesha K.
has been discharged from hospital. He was reluctant to leave his new
friends in Moscow. We thank Masha, our young volunteer, who visited the
boy for several hours every day in spite of her entrance exams to the
Medical University, which also took place in July. But now they have
been successfully passed, and Masha is already a student. And Alesha is
the first patient she has cared for.
26.07.2006 We thank Vyacheslav, who has started repair and
refurnishing of the residential premises of our hospital (building No.
6) at his own expense, hiring workers from his construction company. Two
rooms that had been in the worst state have already been repaired.
Vyacheslav is planning to continue this work so that all rooms in that
part of the hospital would be improved one after another. In the nearest
future, he is going to work on the bathroom.
* * *
Three more orphan children have arrived at the RCCH: Anton M-o (1 year 10 months, from
the Sakhalin island); Nastya L-va
(3 y.o., from Kostroma), and Alla
T. (14 y.o., from Chukotka).
News about the small kids from the Department of Clinical Immunology: Denis and Valera.
The doctors say the neither boy has any serious immune disorder. It
seems that all these kids need is good care at home and a loving family,
which they haven't now.
The doctors and the entire staff of the Department of Immunology like
the children very much. The nurse who takes care of them told us that
the boys wanted to eat all the time during the first few days at our
hospital. When they saw any kind of food, they shouted and demanded it.
And when they at last had enough food, the nurse suddenly saw that
Valera, the elder boy, hides the tastiest bits in a secret place.
Everybody was just shocked. After all, the kids were not undernourished.
Both looked all right and were not fretful. But probably it was the
first time in their lives that they felt personal care, that they
learned of the existence of tasty food, not just food. And the toddler
somehow understood that this is not forever and it would be good to save
some tasty bits in order to eat them later. Of course, we all hope that
the kid is mistaken and he will yet have everything.
21.07.2006 A girl from the Department of Medical Genetics needs
your help. Kristina
Gaidareva has a grave form of cystic fibrosis, and an oxygen
concentrator is vitally necessary for her. We have already got about
one-half of the required sum: this is the money left after purchase of
such concentrators for Ira Bodyleva
and Denis Khokhlov.
* * *
We thank Veniamin, who has bought an exercise bike for Dima
Lopatkin from the Department of Oncohematology-16. This help is very
important for the boy now. Two years ago, Dima received treatment at the
RCCH and went through marrow transplantation. The doctors have conquered
the main oncohematological disease, but the transplantation resulted in
some complications, which still affect the boy's life. The strong
medicines that had to be used during his recovery after the
transplantation evoked serious aftereffects. Dima had to lie in bed for
a long time, then he learned to walk again... Now the doctors recommend
that the boy should exercise his muscles on an exercise bike, but Dima's
family has no money to buy it. Presently Dima also receives treatment
for a fungal infection, which is in the acute stage.
* * *
Recently Alexei Shorokhov came for a
check. He has become completely adapted to the prosthesis. He even runs
about with it, which is not surprising: the boy is so active and agile!
He is quite optimistic and wants to go to school again in autumn.
20.07.2006 News about little Vanya V-ov. The results of
the examination showed the reason for his troubles: there was a
congenital pathology that prevented normal functioning of the boy's
kidney. The surgery took place on July 18. Doctor Fuat Abdullaev, a
wonderful surgeon, who heads of the Department of Urology, performed it.
The operation was successful, and presently Vanya is feeling fine. The
doctor says that this intervention was performed in time and now Vanya
is not to expect any complications. The doctors and the entire staff of
the Department of Urology love Vanya and feel deeply concerned about his
destiny. But, of course, the kid needs good care at home and a loving
family.
18.07.2006 Two orphan children from the Kolomna town orphanage
have arrived at the RCCH. They are Kolya B. (3 years old) and Sasha Ch. (1.8 years old). Both
have Apert syndrome, which consists in a grave congenital defect of the
facial skeleton and extremities. The doctors can help these children.
But reconstruction of the facial skeleton requires special distractors,
and a set of such distractors costs 8 to 9 thousand USD. Their purchase
is not financed by the budget, and so treatment of these children is
impossible without private sponsorship.
Two new kids from the city of Ivanovo have been admitted to the
Department of Clinical Immunology. They are Denis K. (5 months old) and Valera B. (a year and a half
old). Both little boys are active and sociable, smile and move a lot.
Gena B. (8 y.o.) from the town of
Emmaus (Tver region) has been admitted for follow-up treatment at the
Department of Coloproctology.
Elvira has at last been allowed
to walk out of her department after the surgery. She immediately went to
the hospital library to take new books.
Serezha S-n is feeling better,
and the doctors are planning to transfer him back to the Department of
Maxillofacial Surgery.
17.07.2006 Roman has bought two packs of Vifend worth 60,000
roubles ($2222) for Dima Lopatkin from the Department of
Oncohematology-16.
Alena and Sasha have bought an oxygen concentrator for Denis Khokhlov.
We whole-heartedly thank them for this help.
13.07.2006 Some news about the orphan children. A charming new
kid named Vanya V-ov,
aged 2 years 3 months, has arrived. Come to visit him and become his
friends!
Ilya K. had his surgery
yesterday. He has already returned to his ward. Now he will have to wear
plaster for three weeks and to walk with his arm up. But he says that
it's OK, the main thing is that he will recover soon and mom (as he is
still sure) will take him home.
Little Serezha S-n has a
running nose again, and the surgery had to be postponed. The boy was
transferred to the Diagnostic Department to receive some treatment for
his cold.
Elvira has had her surgery. She
is feeling more or less all right.
We thank Olga, Alexander, and anonymous contributors who have helped in
buying a wheelchair for Milena
L.. This wheelchair has been ordered and paid for. We also thank
Natasha and her husband, who drove the girl and her nurse to the company
that produces the required wheelchairs in order to choose the exact
necessary size.
10.07.2006 Purchased from June 17 to July 3, 2006:
Diapers (37 packs) worth 11,599.87 roubles ($430) for orphan children.
Vepesid 100 mg (N 40), Uromitexane 400 mg (7 packs), Holoxan 2 g (12
vials), Holoxan 500 mg (40 vials) worth 87,849.37 roubles ($3254) for
the Department of Oncology.
Surgical instruments
worth 291,873 roubles ($10,810) for the Department of
Craniomaxillofacial Surgery: nozzles (N 5) and drills (N 55).
Test strips (2 packs) worth 1480 roubles ($55) for Ulyana
Vinogradova from the Department of Abdominal Surgery.
Epigen 60 ml (N 2), Cycloferon amp. (4 packs), and sulfur ointment (5
packs) worth 2166 roubles ($80) for Roma
P. from the Department of Dermatology and Allergology.
Ondansetron Lance 0.2% 2 ml (N 50) worth 2800 roubles ($104) for the
Department of Oncology.
Biseptol-480 (5 packs), Orungal 100 mg (2 packs) worth 5015 roubles
($186) for Denis Matyushkin from the Department of Medical
Genetics.
Neoton 1 g + solvent (N 10) worth 6726.5 roubles ($249) for Dima Pozdnyakov from the
Center of Kidney Transplantation.
Medical aspirator B-40 worth 12,300 roubles ($456) for the Department of
Oncohematology-27.
Cymeven (N 19) worth 34,860.25 roubles ($1291) for the Center of
Kidney Transplantation.
Ampholip 50 g (10 vials) worth 50,875 roubles ($1884) for Vitalik Sotnikov from the
Department of Oncohematology-16.
Embolization coil 400x5 (N 5), embolization coil 100x10 (N 3), and
embolization catheter (N 1) worth 72,576.64 roubles ($2688) for the
Department of Microsurgery.
Reusable sensor, buffer solution pH 1 250 ml (N 1), buffer solution pH 7
250 ml (N 1) worth 10,516.16 roubles ($389) for the Department of
Thoracic Surgery.
Treadmill (N 1) worth 13,500 roubles ($500) for children of the Ivanovo
orphanage.
Vepesid (N 50), Contrical N 10 (3 packs) worth 28,486.1 roubles ($1055)
for the Department of Oncology.
Paid for:
Refurnishing of the cottage for children
receiving out-patient treatment worth 400,000 roubles ($14,815).
6.07.2006 Here is some news about orphans at our hospital. Two
more children have been admitted: Alesha K., 13 y.o., is from
Komsomolsk (Ivanovo region), and Roza
K.., 16 y.o., is from Kazan.
Ilya K. will soon have his
surgery. He often looks out of the window and says that his mother lives
in "that tall building" (a large apartment block in front of
the hospital) and will take him home soon...
We cannot forget little Vika I.,
who, to our great regret, has recently returned to her orphanage. The
members of the orphanage staff who came to take Vika home told us that
the girl will soon be transferred to an asylum for disabled persons,
where, alas, she can hardly expect any good development of her life. It
was very painful for us to hear this. Vika's nurse Svetlana, who is
presently taking care of another small kid at our hospital, was
especially sad. She loves Vika and feels deeply concerned about her
destiny. Svetlana has brought us a touching short letter and asked us to
place it on our Web site in hope that it may help the girl find a
family:
"Vika I. is a little girl of three. So fragile and curious, waiting
for warmth and kindness. She has a great potential, which helps her cope
with her illnesses and other troubles. If she receives proper upbringing
and treatment, she will develop like any normal kid in a family. But she
will perish without love and care.
Please, if you have a kind heart, don't leave this child to die in the
ocean of indifference and neglect! You will receive so much love from
this small heart as a reward for your kindness!"
After all the necessary medical examinations, the doctors are now
preparing for Milena's surgery.
They have confirmed that her leg will be amputated. And then... lots of
problems arise.
Milena's illness requires constant control and regular qualified medical
interventions. However, everything that could be done in Yakutia for
Milena has already been done. (And note that the doctors at Milena's
orphanage in Yakutia are good and attentive; during all these years,
they kept close watch on her condition and sent her to hospitals
whenever necessary.)
Also, Milena may not stay at a pre-school orphanage for an indefinite
time. Officially, such institutions in Russia host only children under
three, and Milena is already 5.5 years old... The only thing that awaits
her afterwards is an asylum for disabled persons. The administration of
Milena's orphanage has tried to keep her at this orphanage as long as
possible, understanding that such an asylum can give Milena neither good
care (which is vitally necessary for her) nor education. But Milena is a
very smart and quick-witted girl. It is a pleasure to teach her. And, at
the same time, she has very sweet temper: sociable, kind, and
sympathetic.
The orphanage nurse who has come to Moscow with Milena must soon go back
to Yakutsk. But the girl needs long treatment, and so she just may not
go home now.
We remind you once more: Milena will need a wheelchair after the
surgery. Subsequently, she will need an expensive prosthesis. Your help
is necessary!
* * *
We thank Denis I., who has donated 30,000 roubles ($1111) to buy
immunoglobulin for Andrei Sedov from the Department of
Psychoneurology No. 1. The boy is suffering from encephalitis.
* * *
Larisa N.Shelikhova, a physician from the Department of
Oncohematology-16, tells about the condition of Vitalik Sotnikov and about the
problems of this department:
"Vitalik Sotnikov, who is receiving treatment for acute lymphocytic
leukemia and fungal lesion of soft facial tissues at our department, is
presently feeling more or less fine. He is active and has good appetite.
He receives therapy with Ampholip every day, and his fever is over now.
He also receives specific therapy for his main disease.
The boy should still receive antifungal therapy for a fairly long time,
and so Ampholip is constantly necessary. Also, the boy has problems with
the masticatory muscles and cannot normally take food through the mouth,
and so we mostly feed him through a gastrostoma, i.e., a special tube
leading right to the stomach. So, Vitalik receives part of his daily
ration in the form of a special solution, which contains all the
necessary amino acids, fats, proteins, hydrocarbons and other nutrients
required for normal life.
However, Vitalik is in good mood and goes out every day, even in rainy
weather. He is an active, lively, and merry boy. He doesn't like staying
in his ward, and, fortunately, his present condition enables him to go
out and play with other children.
On the whole, the Department of Oncohematology-16 faces problems with
the supply of some medications, just as usual. Now only expensive
antibiotics (Meronem, Maxipime) and antifungal drugs (Cancidas,
Ampholip) are in shortage but even the simplest and always necessary
drugs, like Lasix or Analgin, are sometimes lacking. Without help that
we receive from our sponsors, normal work of our department would be
impossible. We thank you for your constant support and hope for further
cooperation."
Dr. Natalia V. Myakova, Acting Head of the Department of
Oncohematology-27, tells about Kolya Semenov's treatment:
"Kolya Semenov, a boy of 13, is a patient of our department. His
diagnosis is Hodgkin's lymphoma, multiple recurrences. Presently, thanks
to your help, he receives radiation therapy on the affected areas and
feels quite all right. Further, after the completion of the radiation
therapy, we are planning marrow autotransplantation for him. The latter
procedure will require serious expenses, because many drugs required for
it are lacking at the hospital and should be purchased."
Now about the needs of our department as a whole. Presently we have
many gravely ill patients, and they need antiemetics to support them
during the intensive chemotherapy. Also, there is a shortage of
antibiotics."
30.06.2006 Two new orphan kids have recently been admitted to
our hospital: Ilya (5 years old,
Department of Microsurgery) and Elvira
(13 years old, Department of Urology). Alena has been discharged in fine
condition; she liked our hospital very much.
29.06.2006 Yesterday we
received the tragic news from the Hadassa hospital in Jerusalem: Eugene Chernyshov died of generalized
viral infection, which had developed very fast in his condition of
immune suppression. The doctors could not do anything in this situation.
28.06.2006 We thank Ilya, who has sent 40,000 roubles ($1480)
to buy antibiotics for the Department of Oncohematology-16.
26.06.2006 For Vitalik
Sotnikov, ten more vials of Ampholip worth 50,875 roubles ($1885)
have been bought. Vitalik's condition is comparatively fine. He is
active, has good appetite, watches animated films on TV, and even goes
out when it is not too hot. Vitalik's mother is also "coming to her
senses" and learning to smile again together with her son. She has
written a short letter of gratitude to readers of our Web site:
"I, the mother of Vitalik Sotnikov, just want to thank all of you
for helping us! We are so grateful to everybody who is concerned about
Vitalik's health and life. I can't say that he is healthy now, but still
some steps forward have been made. He can smile, play, and even, little
by little, walk on his own legs again. To put it short, now he wants to
live. We would not succeed without your help; this is clear.
Thank you very much again for your help!"
Little Anya Fedotova has received
full course of Cytotect treatment (3 vials). She has also been provided
with the necessary nutritive solutions for the entire postsurgical
period. Thank you for your response! Now we remove the girl's photograph
from the first page of our Web site.
23.06.2006 The cottage for
our patients receiving out-patient treatment has been repaired. The
money for this purpose was received from Russian sponsors. Dear friends,
thank you for this invaluable help!
On the top floor of the house, heating was installed and walls between
rooms were erected. Also, some small work was performed at other
storeys. Now the house has 15 bedrooms, a kitchen, a dining-room, and a
large living-room, which serves as a playroom.
Soon we will receive the furniture, which was ordered and bought by our
Italian friends from the Aiutateci a salvare i
bambini association. This furniture is not only cosy and comfortable
but also can be very easily washed and cleaned.
20.06.2006 Some news about the orphan children:
Milena needs a good wheelchair. Her
orphanage in Yakutsk cannot provide her with it! We hope that you will
help her!
Ira R. is away for summer
rest, but after it we expect her to come to Moscow again. Inna has been discharged, as well as little
Vika. After treatment, Vika was
discharged in fine condition. Unfortunately, she had to go back to her
orphanage. Roma P. is at the hospital for
the third time.
18.06.2006 After the completion of his treatment, Vadik
Markunin has returned from Germany. He is feeling and looking fine,
happy and friendly. He made funny faces at the photo camera. His mother
Veta is radiant with happiness: the doctors are satisfied with Vadik's
condition and allow him to go home at last. Five years have passed since
the beginning of his treatment...
17.06.2006 Purchased from June 1 to 16, 2006, for a total of
589,566.1 roubles ($21.835):
Aminosteril KU (N 20), Vepesid (N 15), Leucovorin Teva (N 74), Maxipime
(84 vials), Oliclinomel (N 20), Sulperazon (N 100), Fortazim (N 100),
Fortum (N 100), Cytosar (N 25) worth 211,299.43 roubles ($7825) for the
Departments of Oncohematology-27 and Oncohematology-16.
Losec (N 10), Puri-Netol (N 30), Fortum (N 30) worth 55,728.7 roubles
($2064) for Vitalik Sotnikov
and other patients from the Department of Oncohematology-16.
Ampholip (N 8) worth 40,700 roubles ($1507) for Vitalik Sotnikov from
the Department of Oncohematology-16.
Nimotop (N 5), Adalate (N 5) worth 9650 roubles ($357) for Sasha
Inshev from the Department of Oncohematology-16.
Adalate solution(N 5), Enap (2 packs) worth 6165 roubles ($228) for
Andrei Lyapin from the Department of Oncohematology-16.
Vincristine Teva (N 100) worth 14,212 roubles ($526) for the Department
of Oncohematology-16.
Ommaya reservoir and blood test at the Burdenko Institute of
Neurosurgery worth 10,600 roubles ($393) for V. Gerasimova.
Prograph in capsules (5 packs) worth 38,898.75 roubles ($1441) for Vanya Kal'noi from the Department of Marrow
Transplantation.
Prograph in capsules (6 packs) worth 46,678.5 roubles ($1729) for Sergei Shcherbatyi from the Department
of General Hematology.
Vepesid (40 vials), Uromitexan (7 packs N 15), Holoxan (44 g) worth
87,849.37 roubles ($3254) for the Department of Oncology.
The Discovery tool for implantation of shoulder joint endoprosthesis
worth 71,350 roubles ($2643) for Sveta
Koshkina from the Department of Oncology.
CellCept (2 packs) worth 19,077.3 roubles ($707) for Elita
Gabieva from the Department of Clinical Immunology.
Trichopol IV solution (N 30) worth 2912.4 roubles ($108) for Misha
Salmin and Niyaz Minakov from the Department of Clinical
Immunology.
Metal-reinforced polymer corset (produced at the Central Institute of
Traumatology and Orthopedics) worth 13,640 roubles ($505) for Raya
Avetisova from the Department of Clinical Immunology.
Bepanten cream (N 1), Locoid ointment (N 1), Baclophen tab. (1 pack),
Convulex drops (N 1) worth 588 roubles ($22) for Dasha S.
from the Department of Psychoneurology No. 2.
Bepanten cream (N 1), Advantan ointment 15 g (N 1) worth 391 roubles
($14.5) for Vika I. from the Department of Psychoneurology
No. 2.
Also paid for:
Determination of microbial composition of biological fluids worth 41,400
roubles ($1533) for patients from the Department of Medical Genetics
(Cystic Fibrosis).
Tests at the Sklifosovski Institute worth 4075 roubles ($151) for April
2006.
Repeated determination of blood cells at the Center of Molecular
Genetics for patients after marrow transplantation:
- the Khadiev family: for 1100 roubles ($41).
- the Aksenov family: for 1100 roubles ($41).
* * *
16.06.2006 Roman bought an oxygen concentrator, and the doctors
decided to hand it to Ira Bodyleva,
because she needs it most urgently. Yesterday this device was
transported to the Voronezh region, where the Bodylev family live. Ira
and her mother thank Roman very much. They had always hoped for your
help but had never expected it to be so quick!
* * *
Five packs of Prograph have been bought for Vanya Kal'noi. We thank everybody who has
helped the boy and so far remove his photograph from the first page of
our site because he does not need urgent financial aid now.
* * *
Vika Sotneva died on June 14. Her
mother Svetlana thanks everybody who supported her family. Vera, Tamara,
and other friends from the hospital church helped the Sotnevs with
renting an apartment in Moscow and providing the necessary things for
their life; so, the girl could receive help from the doctors of our
hospital up to her last days, and this help alleviated her suffering.
Svetlana's new friends helped her take care of Vika and now saw them
home, to the Tver region...
11.06.06 Within the You Are Not Alone program for providing
medical help to children from orphanages, doctors of the RCCH made their
first journey to provincial orphanages from June 7 to 9, 2006, with
support and paricipation of the Help Group of the RCCH and our
charitable foundation. This event was aimed at performing medical
examinations to children and revealing those who need in-hospital
treatment at the RCCH. Also, consultations were given to local doctors.
This time, the objects of our attention were orphanages of the Ivanovo
region. The medical team that paid a visit to Ivanovo was headed by Dr.
Nelli Ignatieva, Deputy Head Physician of the RCCH, and Lina Saltykova,
president of the Regional Public Charity Foundation for Seriously ill
and Abandoned Children. Leading doctors of our hospital also
participated in this journey: Dr. Alexander S. Kuzin, Head of the
Department of Traumatology and Orthopedics; Dr. Irina V. Kondratenko, Head
of the Department of Clinical
Immunology; Dr. Elena S. Ilyina, Head of the Department of Psychoneurology No. 2; doctors
from the Department of Urology, Craniomaxillofacial and Microvascular Surgery. Other
participants from our Help Group were Yuri Khalangot from our charity
foundation and Kostya Sedov, Doctor
Clown, who often helps the doctors in establishing contact with
gravely ill children and generally makes the kids happier and more
optimistic.
The administration of the Ivanovo region, as well as doctors and
directors of orphanages, met our initiative with understanding and
gratitude. The doctors have examined and consulted about 190 children,
made recommendations and prescribed treatment, gave advice and promised
to be always in contact with their local colleagues. 25 children with
the most serious disorders will be taken to the RCCH for in-hospital
treatment. Since this autumn, such visits to orphanages are to become
regular.
On June 13, the Vremechko TV program will show this visit.
9.06.2006 Three orphan children were admitted to our hospital
during the last week: Milena, Inna, and
Nastya. Milena's condition is
especially grave. This five-year-old girl is from Yakutia. She will have
to undergo a serious operation, most likely involving leg
amputation. Milena needs a child wheelchair, which is lacking at her
orphanage. Please help the girl.
8.06.2006 Ira Bodyleva from
the Department of Medical Genetics (Cystic Fibrosis), who was admitted
to the hospital with grave respiratory insufficiency,
is presently feeling better. Her condition has stabilized, and the
doctors have allowed her to go home. But this improvement will not last
long: the problem of respiratory insufficiency cannot be resolved while
Ira has no oxygen concentrator at home.
Dear friends, Ira needs your help and support very much! Remember the
doctor's words: Ira needs this
concentrator for constant use at home; the duration
and quality of the girl's life depend on it!
* * *
Dima Volkov was discharged from
hospital. He had no page of his own on our Web site: you could see his
photograph only among a large group of patients from the Department of
Oncohematology-27, when medications were lacking in the entire hospital
and we had to ask for your help in buying them. Nevertheless, we think
that we should tell about Dima himself and his story (let us hope that
the worst is already over!) on this site. Continued...
As a farewell present to us, Dima brought several drawings and a touching letter.
7.06.2006 Purchased from May 22 to 29, 2006:
Leucovorin Lance 50 mg+solvent (20 packs) worth 9630.8 roubles ($357)
for the Department of Oncohematology-16.
Vasofix Certo catheters (N 200) worth 8750 roubles ($324) for the
Department of Clinical Immunology.
Nonsterile gloves (12 packs) worth 1476 roubles ($55) for the Department
of Clinical Immunology.
Extenders 100 cm (N 100) worth 2450 roubles ($91) for the Department of
Clinical Immunology.
6.06.2006 On June 1, the International
Children's Day, little patients of our hospital received various
presents. Festivies lasted the whole day. Those children who could not
come to the conference hall later saw the actors and singers in the
wards.
But festive events are rare. Ordinary hospital life is sometimes very
sad and boring for the children. Our main aim is to make this life
useful and interesting, full of creative work. And now two new playrooms
have been opened for the children's art work, for their rest and games.
These rooms have been reconstructed and equipped at the Departments of
Oncology and Kidney Transplantation thanks to our sponsors. Both
playrooms were wonderful presents to the children for the International
Children's Day of 2006. Continued...
* * *
Ruslan Fidarov has returned from
Germany. We barely recognized this boy, formerly bald and thin, and now
black-haired and strong, with beautiful eyebrows. The German doctors are
completely satisfied with the results of the treatment. They have
allowed Ruslan to go home, to Vladikavkaz, right now. They have also
provided him with all the necessary drugs for the forthcoming months,
and there is no need for him to stay in Moscow any more. We are glad for
Ruslan and wish him to recover completely and to return to normal life,
school, and friends as soon as possible.
* * *
After the next stage of treatment, Sasha Karmanov went home in good
condition. He is to return to hospital for further treatment in autumn.
Unfortunately, his treatment at the child hospital will no longer be
performed free of charge, because Sasha has turned eighteen.
31.05.2006 Today, at 6 p.m., Nadya Popova died of the consequences
of a major stroke. She spent over two weeks at the resuscitation ward in
the state of coma. Please pray for Nadya's soul and for her father
Alexander. He has recently also lost his wife: she died when Alexander
was in the Moscow hospital with their daughter. The girl's condition was
so grave that he could not leave her and attend her mother's funeral.
And now Nadya is also dead. She has
not even learned of her mother's death...
29.05.2006 The sum transferred for Sergei Shcherbatyi by the
PrompodshipnikImport company is sufficient to buy Prograf for three
months. So we remove Sergei's photograph from the first page of our site
for the time being. Thank you, friends!
27.05.2006 The condition of Sergei Shcherbatyi has improved. The
donor marrow is functioning, and the blood counts are comparatively
high. Sergei has even been allowed to leave his isolated sterile ward.
The doctors asked us to help in buying Prograf for Sergei. This medicine
is fairly expensive: one pack costs 10,800 roubles ($400), and the
course of treatment should last a long time. Presently the boy needs
four packs. So we resume the fundraising for Sergei.
Also, Vanya Kal'noi will need Prograph
for a year. It is completely impossible for his parents to raise such
money by themselves.
We hope that you will help both of these wonderful boys!
* * *
Alexei Shorokhov came to the
hospital for a check. He has recently received his prosthesis and
learned to use it. And presently he can already walk all by himself.
This courageous boy is very pleased now. His mother asked us to thank
everybody who had helped Alexei!
26.05.2006 Doctor Vladimir I. Kovalev, Head of the Department of Oncology, asks for our
help in purchasing special instruments for endoprosthetic operations on
patients with bone tumors. Buying contemporary surgical instruments will
enable the doctors to use advanced types of endoprostheses in the
children's treatment and thus to achieve the best possible level in this
kind of child surgery. The operated patients will have much higher
quality of life. Continued...
The total cost of the instruments is 780,000 roubles (about $29,000).
22.05.2006 From May 10 to 19, 2006, a total of 731,559.92 roubles
($27.095)
was paid.
Purchased:
Albumin Baxter (N 30), Vinblastine Lance (N 10), Cardioxane (N 3),
Trichopol IV solution (N 100), Hartman's solution (N 3) worth 70,732.32
roubles ($2620) for the Department of Oncohematology-16.
Albumin Baxter (N 20) worth 36,000 roubles ($1330) for the Department of
Oncohematology-16.
Ampholip (N 10) worth 51,800 roubles ($1920) for Vitalik Sotnikov (Department of
Oncohematology-16).
Roaccutane (N 30) worth 75,000 roubles ($2780) for Korentsova,
Kuzmin, and Dronova (Department
of Oncohematology-16).
Insulin pump (N 1) and consumables worth 209,653.4 roubles ($7765) for
Alexander Mikurov (Department of Diabetology).
Insulin pump (N 1) and consumables worth 209,653.4 roubles ($7765) for
Olesya Kravtsova (Department of Diabetology).
Elma cream (N 3) worth 21,000 roubles ($780) for the Department of
Oncohematology-16.
Vincristine worth 13,900 roubles ($515) for the Department of
Oncohematology-27.
Ondansterone Lance (100 packs) worth 7696 roubles ($285) for the
Department of Oncology.
Bleomycin (1 pack) worth 5471.2 roubles ($203) for the Department of
Oncohematology-16.
Aminosteril KU (N 10) worth 3293.6 roubles ($122) for Olya
Karataeva (Department of Gynecology).
Paid for:
Tests at the Sklifosovski Institute of Traumatology and Orthopedics
(February 2006) worth 1160 roubles ($43).
Hospital care for 12 days and surgery of Zoya Petrova (Department of Microsurgery)
worth a total of 21,000 roubles ($780).
Medical services at the Blokhin Oncological Center (April 2006) worth
5200 roubles ($193).
22.05.2006 Prof. Andrei V. Lopatin, Head of the Department of Craniomaxillofacial
Surgery, informed us that this department needs urgent help in
purchasing some surgical instruments. A new set of nozzles and drills
for the Servotronic electric saw (which was bought earlier thanks to
your help, dear friends!) is necessary. It costs about 5600 euro.
Your help is very important for patients of this department! Continued...
21.05.2006 About some little miracles. Vika I., a three-year old girl from an
orphanage in the town of Pskov, was admitted to the Department of
Neurosurgery with serious symptoms: total muscular hypotonicity, apathy,
motionlessness. The doctors performed all the necessary examinations and
found no abnormalities. But, actually, all Vika's symptoms disappeared
during her stay at the hospital: the kid turned out to be charming and
smart, she walks and eats by herself, talks to adults and other children
at the department, plays and shows interest in everything. To put a long
story short, she is behaving as a normal and healthy child, and only her
nurse's care and kind attitude have made it possible.
We and the doctors congratulate Svetlana Alexeevna, who created this
miracle! When we jokingly said, "It would be right to give you a
government award!" she just responded, "Well, an extra pack of
disposable diapers for Vika would be better."
But, of course, nobody knows what awaits this child in future...
20.05.2006 An anonymous contributor paid the entire remaining
sum for activation of an unrelated donor for Sergei Shcherbatyi. The second
transplantation has already taken place.
17.05.2006 Vitalik
Sotnikov has gained 5 kg (over 10 lb) during the treatment. His
condition is presently stable; the infection is under control, and the
wounds are healing. The boy can even go out for a short walk. Today the
surgeons have discussed the prospects of plastic surgery. Dr. Dmitri
Litvinov, who heads the Department of Oncohematology-16, told us about
Vitalik's condition and treatment. Continued...
16.05.2006 We thank the teachers and pupils of the school
working at the German Embassy in Moscow: they bought Zovirax 150 mg (20
packs) and Maxipime (43 vials) for a total of 55,077 roubles (over
$2000) and delivered the drugs to the Department of Oncohematology-27.
We are more than grateful for this help!
* * *
There is a new patient at the Department of
Neurosurgery. Vika, a girl of three, is
from the Pskov orphanage. She was operated in Pskov for congenital
hydrocephaly, a bypass was installed, and afterwards her development was
normal. But suddenly, for no clear reason, her condition quickly
deteriorated: Vika just stopped moving and developed evident muscular
hypotonicity. The little girl was sent to the Russian Children's
Clinical Hospital for an examination.
A highly professional nurse is taking care of Vika at the hospital. And,
after only three days together with her, Vika began eating by herself
and then started walking again. She turned out to be very quiet and
affectionate, understanding and sociable. Her intellectual development
is just as should be at her age. Her eyes are squinting, but the
ophthalmologist says that this phenomenon is due only to muscular
reasons and can be easily surgically corrected after the girl turns
five. Part of cerebral examinations are already over, and others will be
performed in a few days. But even now it is clear that Vika's condition
is rapidly improving just because she is receiving good care. Let us
hope that the doctors' conclusion will be favorable and a loving
adoptive mother will find Vika. 11.05.2006 For Slava
Gvozdarkov, two pairs of orthopedic boots and a joint immobilizer
have been produced and purchased.
Thank you for your help!
11.05.2006 Purchased from April 24 to May 5, 2006, for a total of 469,164.26
roubles ($17,060):
Bought:
Albumin Baxter (N 20), Latranum 5 (N 25), Oliclinomel (N 20), Ondansterone Lance
1 (N 5), Trichopol (100 packs), Cernevit (N 5), Cerucal (100 packs), and Ciprinol
(N 40) worth 94,840.48 roubles ($3450) for Vitali
Sotnikov (Department of Oncohematology-16).
Sterifix cannula+filter (N 10) and Ampholip 5 (N 10) worth 52,725 roubles ($1917)
for Vitali Sotnikov (Department of Oncohematology-16).
Ondansterone Lance (N 57) worth 7125 roubles ($260) for Vitali Sotnikov (Department
of Oncohematology-16).
Vepesid (N 50), Daunorubicin Lance (N 100), and Puri-Netol (N 30) worth 64,210
roubles ($2335) for the Department of Oncohematology-16.
Leucovorin Lance (N 20) worth 9630 roubles ($350) for the Department of Oncohematology-16.
Ondansterone Lance (N 100) worth 7696 roubles ($280) for the Department of Oncology.
Aminosteril (N 10) and Glucosteril (N 20) worth 5535 roubles ($200) for the
Department of Oncohematology-16.
Granocyte 33,6 MU (N 2), Holoxan (N 8), and Holoxan (N 28) worth 92,499.5 roubles
($3364) for the Department of Oncology.
Vitalipid (N 1), Contrical (2 packs), Lipofundin (N 10), and Neoton (N 4) worth
8310,64 roubles ($302) for Legkikh, Pirozhkova, and Pyzhova
(Department of Clinical Immunology).
Methotrexate (N 2), Puri-Netol (N 3), and Vepesid in caps. (1 pack) worth 8860
roubles ($322) for Dima Volkov (Department of Oncohematology-27).
Aminosteril KU 1 (N 30) worth 10,020 roubles ($364) for Vanya Kal'noi (Department of Marrow Transplantation).
Gemsar lyoph. inj. 1 g (N 2) worth 17,900 roubles ($651) for Kolya Semenov (Department of Oncohematology-27).
Whole-leg joint immobilizers (N 2) worth 17,620 roubles ($641) for Diana Melekhina (Department of Traumatology and
Orthopedics).
Extender 140 cm (N 100) worth 2081 roubles ($76) for the Department of Oncohematology-27.
Collost membrane (N 2) worth 3828 roubles ($139) for K. Mayeva (Department
of Oncology).
Detralex (2 packs), Aescusan (N 2), Traumel C (N 2), tocopherol acetate (N 4),
and Ursosan (N 2) worth 2856 roubles ($104) for A. Balalayeva (Department
of Abdominal Surgery).
Elma cream (N 3) worth 2100 roubles ($77) for the Department of Oncohematology-16.
Puri-Netol 50 mg N 25 (3 packs) worth 2850 roubles ($104) for Dima Volkov (Department
of Oncohematology-27).
Aminosteril KU (N 15) worth 5070 roubles ($184) for Nikita Pyzhov (Department
of Clinical Immunology).
Diapers (42 packs) worth 11,453.82 roubles ($417) for orphan children.
Paid for:
MRI examination worth 10,000 roubles ($363) for Katya Gorbunova (Department
of General Hematology).
Seven days at hospital (+surgery) worth 10,500 roubles ($382) for Zoya Petrova (Department of Microsurgery).
Transportation services worth 10,000 roubles ($363) for M. Fedotov.
10.05.2006 New information in the Not Only illnesses part of our Web site: volunteers
and art therapists tell about their work
with patients of Kidney Transplantation Center,
RCCH.
9.05.2006
Dr. Dmitri V. Litvinov, who head the
Department of Oncohematology-16, commented on the treatment of Vitalik Sotnikov
"While the child was in Voronezh, he went through only the first stage
in the therapy of his main disease: induction of remission. Although remission
has been attained, the protocol has only been started. The treatment should
be continued to the end. Otherwise, a relapse is inevitable. But high-dose chemotherapy
in Vitalik's case is presently impossible because of extremely grave bacterial
and fungal complications. So, he is receiving reduced-dose chemotherapy accompanied
by powerful antifungal and antibacterial therapy. The most important problem
now is to suppress the infection and at the same time to prevent appearance
of leukemic cells in the blood. If we manage to do this, complete therapy of
the main disease will be possible, but it is still impossible to say when the
basic chemotherapy may be resumed.
During the entire treatment, which will last several months, the child will
need expensive medications: Cancidas (one 50-mg vial worth $600 for two days)
and Ampholip (instead of Ambisome, which is lacking in Russia now - 1.5 vials
worth $200 daily), as well as solutions for parenteral feeding (about $1000
per months) and consumables. Thus, the daily expenses for Vitalik's treatment
are about $650.
The date of reconstructive surgery is not yet being discussed: at first, the
infection should be fully suppressed.
We thank the charitable foundation of the Help Group of our hospital, which
immediately provided the necessary help to us and enabled us to start the child's
treatment without delay. We hope for your further support, because it will be
impossible to help the boy without due sponsorship."
8.05.2006 The "You Are Not Alone"
program for helping orphan children has been functioning at the RCCH for half
a year. Lina Saltykova, coordinator of the Help Group, is telling:
"I want to address our friends and collaborators with words of gratitude
for your help and understanding. Starting the campaign for helping orphan children,
we understood that it was necessary but were somehow afraid that we wouldn't
cope, because such actions are quite new for us. Indeed, there have been a lot
of problems and disappointments. But we are sure that this work is more than
important and brings a lot of moral satisfaction. And all participants of this
program, including the staff of the RCCH and our volunteers and sponsors, share
this opinion.
At first we had problems with providing local offices and authorities with information
about this program. But now information is spreading more and more, and we receive
applications from all Russian regions: Moscow, Yaroslavl, Kaluga, Belgorod,
Voronezh regions in the central part of Russia, Karelia and Khanty-Mansiisk
in the North, Krasnodar in the South, Tuva in the Siberia, Chukotka and Primorye
in the Far East.
During these six months, over 50 orphan children have received treatment or
consultations at the RCCH, and the number of applications is still increasing.
Five children have been adopted, and potential adoptive families are interested
in several more kids.
During the work of the program, we saw that the children depend not only on
timely medical help but also on our interest in their destinies, on our attention.
And it is terrible to think about the thousands of fully abandoned children
who do not receive this attention.
For many children, medical examinations showed that they were quite all right,
although some of them were regarded as mentally deficient by local doctors.
Some showed signs of serious neurological and somatic disorders although their
condition was actually due to psychological problems and lack of due attention.
And the worst thing was to see children who were brought for treatment too late,
while their grave congenital disorders might have been completely eliminated
during the first months of their lives. It is just that some doctors and the
staff of local orphanages are often poorly informed about the potential of contemporary
medicine and do not even try to cure one or another child by sending him or
her to a hospital with qualified specialists.
This situation requires active work. The administration and staff of the RCCH,
with support of the Help Group and our charitable foundation, decided to create
"visiting groups" of doctors for screening of babies from local orphanages
and selecting those who need immediate medical help. Each of such groups should
include a pediatrician, a psychoneurologist, a surgeon, and possibly other specialists
if necessary. The first journey is scheduled for May 2006. It will be a visit
to Ivanovo and Shuya [towns in a poor region in central Russia].
The doctors and the entire staff of hospital department show wonderful attitude
to orphan children. Sometimes the doctors and nurses even bring food and clothing
for the orphans themselves. Actually, it was the doctors' compassion and responsibility
that inspired the development of our special program for helping orphans and
abandoned children.
We again thank all our friends, visitors of this Web site, for support of the
children, for giving them friendship and help.
Thank you, dear friends!
And I again remind you that small orphan children need (a) disposable diapers
and (b) paid nurses (and sponsors who could help in paying for their work).
6.05.2006 New children
from orphanages have been admitted to the hospital. Alenka B. is a patient of the Department of Endocrinology;
Sasha Z., of the Abdominal Surgery. Little
Yulia Yu. has been transferred from the Department
of Maxillofacial Surgery to the Diagnostic Department. Lena S. has been discharged
from hospital after an examination.
Ira
R., everybody's favorite, has again been admitted to the Department of Maxillofacial
Surgery for a check and for the next stage of her treatment. We are very happy
to see this wonderful kid once more.
5.05.2006 A few words about the children who are
having their treatment abroad now. Ruslan Fidarov's radiation therapy has almost ended.
He is enduring his treatment quite well. Now he can already walk, because his
leg pains have ceased. The doctors are satisfied with the results of the treatment,
which, as we all hope, will soon be over.
Vadik Markunin's condition
has become much better, and now there are no signs of skin GVHD. Administration
of hormonal drugs is being gradually cancelled. The dose has become almost 50%
lower, and the boy is feeling fine. But the doctors are not yet sure about the
time when the treatment may be completed.
30.04.2006 One of our old acquaitances, orphan boy Igor V., has been discharged from hospital.
He will be back in Moscow in a month, although this time he will be at an eye
clinic rather than at our hospital.
Doctors of the Department of Craniomaxillofacial Surgery have achieved amazing
results in Igor's treatment. At the final stage, they set apparata for orthodontic
correction of the occlusion. Speech therapy has already brought its results,
and the doctors hope that Igor will be able to speak normally as soon as the
orthodontic treatment is over.
During the time spent in Moscow, Igor has not only improved his health but also
learned a lot. He studied hard according to the school curriculum, and now he
is planning to get enrolled in an institute and to receive higher education.
Thanks to volunteers, Igor visited many concerts and theater performances, including
those at the Bolshoi theater. He walked about Moscow, photographed a great deal,
and took lots of his photographs with him as souvenirs. Igor has found many
friends here, and they have promised to write to each other.
Igor's story is wonderful proof of the fact that miraculous things can happen
to children, even most gravely ill ones, if they receive adequate medical help
and, which is even more important, friendly support. Igor's diagnosis is Goldenhar's
syndrome. It is a grave genetic disorder, which affects not only the child's
face but also the vocal organs and the musculoskeletal system. Such children
look strange. They are clumsy and far from good-looking; they can speak only
with great effort. Usually they are automatically regarded as mentally retarded
and made patients of special asylums. Can it be that our Igor is just a rare
exception? Yes, unfortunately, it seems that he is. But the reason for his exceptional
destiny is not Nature's kindness, which somehow spared his intellect in spite
of the diagnosis. The real reason is that Igor has received optimum medical
help of various kinds, support from his teachers and friends. Alas, such things
are still rare indeed. And nobody knows how many such "ugly" children
with inarticulate speech are considered mentally deficient only because nobody
tries to understand them and to help them...
Just think that Igor received due treatment only when he was fifteen. And even
this was not too late!
28.04.2006 Pop singer Dmitri Malikov came to our patients before Easter. It is not his first visit to the hospital. This time he visited children who receive treatment at the Departments of Oncology, Oncohematology-27, and Kidney Transplantation. We hope that other popular singers and actors will soon also appear here, because such visits are always a great joy for the kids and their parents. SOS!!! 27.04.2006 The head and staff of the Department of Oncohematology-16 ask for help in the treatment of a five-year-old boy from Voronezh. The story of this boy is so tragic that it is unique even for our hospital. Little Vitali Sotnikov has responded to treatment of his oncohematological illness in Voronezh, but the terrible complications of this treatment have literally put him between life and death. Doctors of the Russian Children's Clinical Hospital will try to help the boy, although they have never encoutered anything of the sort. Please help them and pray for them. Continued... Purchased from April 10 to 21, 2006: CellCept (2 packs) worth 19,900 roubles ($725) for Sonya Zabolotskaya from the Department of Clinical Immunology. Primalan (N 20), Flixonase (N 5), and CellCept (2 packs) worth 23,500 roubles ($855) for Nastya Kochetkova and Ibragim Zannadiev from the Department of Clinical Immunology. Ribavirin Vero (6 packs), Intron A (syringe pen with needles and wipes, N 12), Naphtaderm ointment (N 6), and Zyrtex in tablets (5 packs) worth 105,860 roubles ($3850) for Sasha Ch. from the Department of Otolaryngology. Discofix three-way stopcock (N 600), extender 140 cm (N 200), infusion pump (N 30), perfusion syringe 20 ml (N 200) worth 21,355 roubles ($775) for the Department of Oncohematology-27. Discofix three-way stopcock (N 600), extender 140 cm (N 300), infusion pump (N 40), perfusion syringe 20 ml (N 200) worth 24,405 roubles ($887) for the Department of Oncohematology-16. Albumin Baxter (N 30) worth 41,467.5 roubles ($1508) for the Department of Oncohematology-16. Extender 140 cm+screw nozzles (N 100) worth 2081 roubles ($75) for the Department of Clinical Immunology. Cardioxane (N 2) and Hartman's solution (N 2) worth 12,742.16 roubles ($463) for Rakhman Dadaev from the Department of Oncohematology-27. Decarbayne Laxema (5 packs) worth 795 roubles ($29) for Ilya Prusakov from the Department of Oncology. Diflucan (N 5) worth 2534.05 roubles ($92) for Oleg Levchenko from the Department of Marrow Transplantation. Acyclovir (50 packs) and colostomy bags (N 10) worth 4430 roubles ($160) for the Department of Oncohematology-27. Mannite solution for injections (N 100) worth 4800 roubles ($175) for the Department of Oncohematology-27. Preductal (7 packs), Plaquenil (2 packs), Aerius (10 packs), Berodual (N 2), and Elcar (5 vials) worth a total of 8173.5 roubles ($297) for Semenov, Anokhin, Pochetkov, and Pirozhkov from the Department of Clinical Immunology. Cardioxane (N 2) and Hartman's solution (N 2) worth 12,742.16 roubles ($463) for Rakhman Dadaev from the Department of Oncohematology-27. Mycomax (N 20) worth 6100 roubles ($222) for Semenov, Anokhin, Pochetkov, and Pirozhkov from the Department of Clinical Immunology. Diflucan (N 10) worth 5068.1 roubles ($184) for Oleg Levchenko from the Department of Marrow Transplantation. Paid for medical services: 14 days of in-hospital treatment and surgery worth 21,000 roubles ($764) for Zoya Petrova from the Department of Microsurgery. 26.04.2006 We want to thank - the parish of the church at the Pyatnitskoe cemetery, who raised $1000 for Easter presents to our patients. This money was used to buy illustrated children's Bibles, books, jigsaw puzzles, Easter eggs, etc. - Alexei, who bought seven folding beds for the children's parents and brought them to the residential premises of the hospital. - Dmitri, who brought a notebook computer for the children's studies. - Irina and her friends, who donated $1000 to buy Taxoter for Maxim Evdokimov from the Department of Oncohematology-16. - Dmitri, Irina, and Vladimir, who brought wonderful books from the Narnia publishing house as presents for our children; we also thank this publishing house for the large discount in selling these books.
21.04.2004 We regret to inform you about the death of Sasha Emelkin. The boy died of pulmonary bleeding as a result of acute and rapidly developed graft vs. host disease. He spent his last days at the intensive care unit with his mother and hospital clown Kostya. While Sasha was still conscious, Kostya tried to support him in every way possible. We really hoped that Sasha would cope with all the difficulties, because it seemed that the main thing was over: the transplanted bone marrow started functioning. But the doctors failed to suppress the acute GVHD in spite of all their efforts. Unfortunately, we can only remind that marrow transplantation is a very dangerous procedure in itself and may be performed only if the patient's chances for survival without it are zero. Given the present state of medicine, it is still impossible to foresee and prevent all complications that may emerge after the transplantation...
19.04.2006 We received news about Eugene Chernyshov from Israel. The examinations are over, and the boy will be transferred to his ward at the Marrow Transplantation Department on Monday, April 24. The transplantation itself is planned for May 10. Please pray for the boy.
18.04.2006 We resume the fundraising for the benefit of Sergei Shcherbatyi. The boy has had unrelated
marrow transplantation, but, unfortunately, engraftment of donor cells has not taken place. Besides, the German donor felt unwell
after the donation and refused to give his hemopoetic stem cells once more. There is also another fully compatible donor for Sergei in the German
register, but this means that payment for activation of the new donor is required again. The repeated activation procedure costs 10,000 euro.
* * * We thank our friends: OOO Ampik for purchasing Diflucan, Maxipime, and Ondansteron Lance worth a total of 88,356 roubles ($3213) for the oncohematological departments. The managers of an anonymous company, which provided financial help to Sasha Inshev from the Department of Oncohematology-16 and, in particular, purchased three vials of Cancidas for him. The Boomerang charity foundation, which paid for radiation treatment of some patients and purchase of expensive drugs worth 287,000 roubles ($10,437) in January and February of 2006 and 223,944 roubles ($8143) in March 2006.
17.04.2006 Dr. N. Myakova, acting head of the Department of Oncohematology-27, tells about the treatment of patient Kolya Semenov: "The child is suffering from Hodgkin's disease. The clinical course of the disease is unusual, both owing to complications of the earlier therapy and owing to resistance of the tumor to standard treatment schemes. Two weeks ago, Kolya received the so-called second-line course of chemotherapy, which consisted of medications not previously used in his treatment: Gemzar and Vinorelbine. Today we can say that the treatment was efficient: the mass lesion has decreased. Considering the result and the entire earlier anamnesis, it would be highly desirable to repeat the same course of chemotherapy. For this purpose, Kolya needs two more 100-mg vials of Gemzar. Please help in buying this drug for Kolya."
---------
16.04.2006 Eric, our old friend from France, recently visited patients of the Kidney Transplantation Center. Eric comes to Moscow each year, always prepares for these voyages and brings something interesting and unusual for the kids. He is sure that boredom is that best friend of all illnesses and so the main thing in the treatment is to fight boredom. Preparing for this visit, Eric learned to make various souvenirs of colored feathers. He brought a lot of materials required for making such things and, for several hours, taught the children to make flowers, figures, and decorations of feathers. The children were pleased to work under Eric's guidance and learned a lot; so, now they will be able to do such things by themselves. 15.04.2006 An orphan girl named Lena S. has been admitted to our hospital. This charming, friendly, and very kind girl is under treatment at the Center of Microvascular Surgery. She is seven years old. The managers of the Kaluga orphanage have sent us a letter of gratitude for the help that Sasha A. had received at the RCCH. The staff of the orphanage say that the child's condition has improved after the surgery; he is gaining weight. Presently another little child from the same orphanage, Nastya S., is receiving treatment at the RCCH. This girl of 3.5 years is to have a surgery correcting a congenital disorder of the esophagus. She can ingest only fluid or mashed food. The girl is very weak and cannot walk and eat by herself.
12.04.2006 The whole cost of antiviral therapy for Dasha Mizgunova and plastic material for Denis Plyusnin's surgery has been raised. Dear friends, thank you for your response and help! The rest of the sum left after purchasing Cytotect for Dasha will be used to buy the same medication for Hava Ibragimova. So we stop the fundraising for Hava and again thank you for helping this girl. 11.04.2006 Purchased from April 1 to 7, 2006: Granocyte + solvent (N 10) worth 255,062 roubles ($9110) for the Department of Oncology. Holoxan-Baxter (75 vials) worth 86,250 roubles ($3080) for the Department of Oncohematology-27. Cancidas (4 vials) worth 59,568.56 roubles ($2130) for Sasha Emelkin from the Department of Marrow Transplantation. Collapan in granules (4 packs) worth 7000 roubles ($250) for Dima Avdyukhin from the Department of Traumatology. Fixing corset produced at the Central Institute of Traumatology and Orthopedics worth 4305 roubles ($154) for Alexei Elagin from the Department of Immunulogy. Paid for medical services: Freezing of biomaterial at the Blokhin Oncological Research Center (February 2006) worth 8300 roubles ($297) for patients of the Departments of Oncohematology-27 and -16. Determination of blood cells at the Center for Molecular Genetics: for the Gagiev family: 2200 roubles ($80); for the Gavrilov family: 2200 roubles ($80); for the Gavrilov family: 1100 roubles ($40); for the Yanaliev family: 1100 roubles ($40); for the Khadiev family: 1100 roubles ($40); for the Lopatkin family: 1100 roubles ($40). The total sum paid by the Foundation from April 1 to 7, 2006, is 429,289 roubles (approx. $15,335). 10.04.2006 Four girls from an orphanage near Moscow, in the Peredelkino settlement, were admitted to the RCCH: Kristina, Katya, Vera, and Nastya. Two of them are already 17 years old. Soon they will have to leave the orphanage and start their adult life, for which they are totally unprepared. They need support and friendship.
2.04.2006 Purchased from March 28 to 31, 2006: Alkeran 50 mg (5 vials), Fludara 50 mg (4 vials) worth 227,535.43 roubles ($8126) for the Department of Marrow Transplantation. Zovirax 250 mg (40 vials) worth 70,473.6 roubles ($2517) for the Department of Oncohematology-16. Maxipime (N 100) worth 46,142 roubles ($1648) for the Department of Oncohematology-16. Aminosteril KE (N 20), Glucosteril (N 30), Kytril (2 N), Ondansteron Lance (N 50), Cytosar (N 20) worth 28,458.1 roubles ($1016) for the Department of Oncohematology-16. Vincristine (10 vials) worth 14,535 roubles ($519) for the Department of Oncohematology-16. Vincarelbine (10 vials) worth 23,000 roubles ($821) for Kolya Semenov from the Department of Oncohematology-27. Puri-netol (N 30) worth 28,500 roubles ($1018) for the Department of Oncohematology-27. Actovegin Forte 200 mg (N 3) worth 4575 roubles ($163) for Erna Balabaeva from the Department of Oncohematology-27. Granocyte + solvent (2 vials) worth 45,600 roubles ($1629) for the Department of Oncohematology-27. Mycomax (N 100) worth 30,730 roubles ($1098) for Semenov, Balkoev, and Tripoltsev from the Department of Oncohematology-27. Aminosteril KE (N 20), Kytril (N 2), Ondansteron Lance (N 50) worth 20,744.1 roubles ($741) for the Department of Oncohematology-27. Maxipime (N 87) worth 40,143.54 roubles ($1434) for the Department of Oncohematology-27. Aminosteril KE (N 10), Lipofundin (N 10) worth 6793.1 roubles ($243) for the Department of Oncohematology-27. Holoxan (25 vials) worth 35,377.75 roubles ($1264) for the Department of Oncology. Medel Pro inhalers (N 4) worth 15,120 roubles ($540) for the Department of Medical Genetics. The total cost of the purchased drugs is 637,727.62 roubles ($22,776). Paid for medical services: Radiation treatment of RCCH patients at the Russian Research Center for Roengenology and Radiology worth 130,000 roubles ($4643). 1.04.2006 Two orphan kids came to the RCCH for treatment: Slava M-v and Vera L. As to Zhenishbek, he has been discharged from hospital and will probably reappear there in the beginning of this summer. Our volunteers have visited Sasha K. at his orphanage in the town of Syzran. It may seem strange but the boy misses... the hospital. He says that he has never been so happy as there. Imagine the terrible destiny of this child if the hospital life and surgical treatment are the best things he has ever seen... Sasha's friend Ilya, a volunteer from the Help Group, is telling: "Sasha is a very sensitive and kind boy. But he is sensitive to both good and evil, and he has got too little experience to choose the good and to reject the evil. But he is attentive and smart, and he listens to advice and explanations. He was very unlucky in life, and he needs help. He will be a fine person if somebody teaches him the right attitude to life and the right behavior. Sasha want to become a driver when he grows up. I told him that I had also wanted to become a driver as a child. When I said that I had wanted to drive cars for government members and other "big fish," Sasha asked me, "Where would you carry the fish: to the sea or from the sea?" He doesn't yet know what government is. Sasha is very sensitive and shy with other people. He has suffered much from human evil (his own mother splashed acid on his face!), but he understands kindness. When Sasha was ready for discharge from hospital, representatives of his orphanage could not take him there for some time. I spoke to him, and he said, "It's wonderful that they are not coming after me. It is better at the hospital." I only hope that some time Sasha will see a better life and be happy at last." Before our departure, Sasha allowed us to take his photograph and to place it on this Web site. This is a real victory for him. Now Sasha believes that people can love him as he is.
26.03.06 At last we can tell the good news: a country house has been bought for our patients who receive out-patient treatment at hospital! Now they have a suitable place to live during the treatment. It is extremely important, because there is very little room in the official residential premises of the hospital and it is increasingle difficult to rent apartments in Moscow for our patients from other regions. The house costs 9,110,747.63 (about $325,000). We hope that the children will be able to live there from the beginning of this summer. The house is located 30 km from Moscow, in a picturesque place with lots of fresh air. The journey from there to the hospital takes no more than 30 min. We thank everybody who has helped: Aiutateci a salvare i bambini, the Italian association that often helps our hospital; the MIEL real estate agency and its managers, the FORA bank, and also Alexander M. and Natalia V. We hope that several months of comfortable life in the fresh air will not only allow the children to complete the treatment successfully but also give them some joy and rest after all the pain and suffering. Continued... 25.03.06 We have received good news from Petrozavodsk: Lera, our tiny Thumbelina, has been adopted! * * * Purchased from March 17 to March 23, 2006: Uromitexan 400 mg 10 packs worth 8378.3 roubles ($300) for the Department of Oncology. Uromitexan 400 mg 15 packs worth 12,567.45 roubles ($450) for the Department of Oncohematology-16. Uromitexan 400 mg 5 packs worth 4189.15 roubles ($150) for the Department of Marrow Transplantation. Prednisolone 5 mg 8 packs worth 229.68 roubles ($8.5) for the Department of Oncohematology-27. Discofix three-way stopcock (500), perfusion pump stand. extender 150 cm worth 18,611 roubles ($665) for the Department of Marrow Transplantation. Roaccutane 7 packs worth 18,200 roubles ($650) for Lyuba Dronova and Polina Korentsova from the Department of Oncohematology-16. Gemsar 1 g 2 vials worth 19,618.96 roubles ($700) for Kolya Semenov from the Department of Oncohematology-27. Amikacin sulfate 0.5 g 30 vials, Glucosteril 50% 500 ml 40 vials worth 5196.2 roubles ($185) for the Department of Oncohematology-27. Granocyte 33.6 ME N 5 + solvent worth 51,012.4 roubles ($1820) for the Department of Oncohematology-27. Aminosteril 500 ml N 7, Vitalipid H 10 ml 10 vials worth 2882.17 roubles ($103) for Nikita Pyzhov from the Department of Immunology. Mycomax 50 vials worth 16,550 roubles ($590) for Vanya Prokofyev from the Department of Oncohematology-27. Carnitine chloride sol. inf. 100 vials worth 1560 roubles ($56) for the Department of Oncology. The total cost of the medications and consumables is 158,995.31 roubles ($5678). 22.03.2006 Denis bought Vifend in tablets worth 33,000 roubles ($1180) for the Department of Oncohematology-16. We thank him very much!
21.03.2006 Alya Fadeeva from Beslan arrived at hospital again.
After the tragedy at her school, she was taken to Moscow for treatment together with other hostages. She was admitted to the Department of Abdominal
Surgery, RCCH, in a critical condition. She had multiple shrapnel wounds of the lumbar area, arms and legs...
Continued...
Little David Gubaidullin arrived at the hospital for a routine check. The boy lives in Bashkiria (Volga region), town of Salavat. Two years ago, on April 1, 2004, the boy had unrelated marrow transplantation. A very serious graft vs. host disease (GVHD) subsequently developed. But the doctors managed to do the impossible: the child has recovered, and it is a real miracle. Now his condition is satisfactory. He lives at home and comes to hospital only for control examinations. Let us wish him good luck!
19.03.2006 Purchased from March 10 to March 17, 2006: Carnitine chloride solution (N 3) worth 468 roubles ($17) for Maria Ukhanova (Department of Oncology). Linex 6 packs, Bactisubtil 3 packs, Duspatalin Retard 200 mg (N 6) worth a total of 3276 roubles ($117) for Abashev (Abdominal Department). Ondansteron-Lance N 200 worth 8768 roubles ($313) for the Department of Oncology. Vepesid 100 mg N 30 worth 16,916 roubles ($604) for the Department of Oncology. Uromitexan 4 packs worth 2346 roubles ($84) for the Department of Oncology. Allopurinol-Egis 100 mg 20 packs, Biseptol tab. 480 mg 30 packs worth 2405 roubles ($86) for the Department of Oncohematology-27. Uromitexan 5 packs worth 2933 roubles ($105) for the Department of Oncohematology-16. Uromitexan 400 mg 2 packs, Navoban N 5 worth a total of 4680 roubles ($167) for the Department of Oncohematology-16. Diflucan N 20 worth 10,314 roubles ($368) for Dima Ventserov (Department of Oncohematology-27). Maxipime 500 mg N 60 worth 15,329 roubles ($547) for the Department of Oncohematology-16. Mycomax 50 vials worth 16,650 roubles ($595) for the Department of Oncohematology-16. Maxipime 500 mg N 110 worth 28,103 roubles ($1004) for the Department of Oncohematology-27. Aminosteril N 60, Glucosteril N 200 worth a total of 42,595 roubles ($1520) for Vanya Kal'noi (Department of Marrow Transplantation). Holoxan 500 mg N 80 worth 45,307 roubles ($1618) for the Department of Oncology. Diflucan 2 x 100, Leucovorin-Teva 10 mg N 25 worth a total of 64,402.5 roubles ($2300) for the Department of Oncohematology-16. Heptral 400 x 15, Kytril 10 packs, Neoton N 2, Prednisolone 7 packs worth a total of 73,579 roubles ($2628) for Moiseev (Department of Oncohematology-27). Set of instruments for the Center of Microvascular Surgery, a total of 18,200 roubles. 16.03.2006 About the situation with medications for the Department of Oncology and hematological departments: Presently the medications for the therapeutic protocols are available at the hospital. Part of the necessary sum for the medications and consumables has been paid (360,000 roubles, or $12,850), and part has been received on credit (227,500 roubles, or $8125). The patients receive the planned treatment. The situation is under control, and the lacking medications are to be purchased soon. We thank the managers of Euroservice Co., who immediately provided some drugs to the hospital in spite of delayed payment. Received and paid for the Department of Oncology: Holoxan 0.5 g 80 vials, Uromitexan 4 packs, Ondansterone N 100.
Received and paid for the Department of Oncohematology-27: Maxipime 0.5 g 110 vials, Neoton 8 vials, Diflucan 20 vials, Prednisolone 7 packs, Heptral 15 packs, Kytril 10 packs, Mycomax N 50, Allopurinol tab. 20 packs, Biseptol tab. 30 packs.
Received and paid for the Department of Oncohematology-16: Leucovorin 25 packs, Uromitexan 7 packs, Diflucan 100 mg 100 vials, Mycomax 200 mg 50 vials, Maxipime 1 g N 110, Navoban N 5, Vifend 200 mg N 50.
Received and paid for the Department of Marrow Transplantation: Zovirax 5 packs, Uromitexan 5 packs, Myleran 20 packs; received on credit: Fludara 20 vials, Alkeran 5 vials.
12.03.2006 After two years at hospital, Andrei Osipov has at last been allowed to go home. The boy and his mother are glad but somewhat worried: they will have to get used to normal life again. Let us hope that the worst is over. Andrei has received a wonderful present: a real computer. An honestly earned present, by the way. The fact is, the boy became so tired at the end of his treatment that he had no appetite at all. He began to lose weight so fast that the doctors were afraid to discharge him from hospital. And so the boy was told, "If you gain enough weight, you will be allowed to take your computer home." This promise stimulated the boy better than all arguments and vitamins, the required 4 kilograms were gained, and Andrei was allowed to go home. Good luck!
14.03.2006 News from Germany: the doctors say that Ruslan Fidarov is recovering even faster than might be expected after such a serious surgery. The last drainage tubes were removed yesterday. He can eat mashed food himself. The doctors do not yet allow hiim to walk, but he can already sit for a long time. In general, he is optimistic and active. He says that he is feeling completely all right.
13.03.2006 The money to buy consumables for Ira Markina's surgery has been raised. We thank all who have responded!
11.03.2006 Little Kirill Vinter died at the intensive care ward yesterday. He had marrow transplantation several days ago. But it was too late. The child's organs were destroyed because of constant infections, which he had to endure since birth. The kid died of cardiopulmonary insufficiency when pulmonary edema developed. God save this infant's soul. Let us hope that his parents will have enough strength and courage to bear this incomparable grief.
10.03.2006 Sergei Kornilov came to the Russian Children's Clinical Hospital for treatment many times. During his short life, he has had about a dozen surgeries. This boy was born in the city of Yaroslavl in 1998. He had a grave cardiac disorder and pathology of the extremities. His parents were very young at the time, both students of vocational school. They understood that they would be unable to cure such a boy. Sergei was left in an orphanage. In 2001, two women came to the Yaroslavl orphanage. Valentina and Tatiana, mother and daughter. Countinued...
8.03.2006 Lola Yakubova has again arrived at the RCCH. We got acquainted with her ten years ago. We have many children's destinies, but Lola's situation is unique. We need everybody's help. Now the most urgent problem is to help Lola with receiving all the necessary documents that will officially make her a Russian citizen and allow her to start adult life. Continued...
Purchased from February 22 to 28: Albumin Baxter 20% (50 vials), Uromitexan 400 mg (20 ampoules) worth a total of 51,608 roubles ($1845) for the Department of Oncohematology-27; Endobulin (N 14) worth 120,582 roubles ($4305) for Alexander Chichich from the Department of Psychoneurology-1; Reagent kit worth 79,995 roubles ($2850) for detection of viruses for the laboratory of the Research Institute of Child Hematology; Keppra 500 mg N 30 (10 packs) worth 15,950 roubles ($570) for Roma Eirich (Department of Psychoneurology-1); Three Medel Pro inhalers worth 11,340 roubles ($405) for Stepanova, Dulenko, and Pavlikov (Department of Medical Genetics); Diapers (40 packs) worth a total of 10,640 roubles ($380); Venofer amp. 100 mh (1 pack) worth 3500 roubles ($125) for Pavel Luzyanin (Abdominal Department); Discofix three-way (N 30) worth 1174.5 roubles ($42) for the Department of Oncology. Paid for: Medical services provided by the Blokhin Oncological Scientific Center from December 2005 to January 2006, worth 23,400 roubles ($835). Total expenses from February 22 to 28: 318,189 roubles ($11,365).
7.03.06 Euroservice Co. supplied 20 vials of Vifend for hematological departments of our hospital free of charge. Alexander donated $1500 to buy medications for the Department of Marrow Transplantation. Sergei Ts. donated 1000 euro to buy medications for the Department of Marrow Transplantation. Some medications for the Department of Marrow Transplantation were received on credit: Alkeran (5 vials), Fludara (20 vials) for a total of 227,535.43 roubles ($8125); Uromitexan (5 packs) for 2933.35 roubles ($105); Zovirax (5 packs) for 8395.80 roubles ($300). 6.03.2006 URGENT! Owing to problems with budgetary supply of key medications to the RCCH, patients of the Department of Marrow Transplantation are presently in a very difficult situation. The most important medications and consumables are presently lacking at the hospital. Dr. Skorobogatova, who heads this department, and Prof. A. Maschan, Deputy Head of the Research Institute of Child Hematology, ask you for urgent help in purchasing Alkeran, Fludara, Uromitexan, Zovirax, Myleran, and consumables for a total of about 300,000 roubles ($10,700). Patients of this department are in especially grave condition, and this help is now vitally important for them!
* * * News from Germany: The doctors are pleased with Ruslan Fidarov's recovery after the surgery. On Friday, he was transferred from the intensive care unit to his ward. On Sunday, the doctors removed the catheters, and it is planned that Ruslan will soon be able to eat by himself. * * * Another "traveller" little Pavlik Slavkov, has returned from Germany after a course of radiation therapy at the Muenster city hospital. He is feeling all right. The main course of therapy has been completed, and the doctors say that it is possible now to let Pavlik go home. Now he will arrive for supporive therapy courses.
1.03.2006 Ruslan Fidarov had his surgery two days ago. The German doctors were delighted with the result: they managed to remove a huge tumor virtually without affecting the adjacent organs. They believe that the pancreas will also function normally. Ruslan's mother is happy and simply afraid to believe in this success. The boy will spent several more days at the intensive care unit. We hope that there will be no complications. Please pray for Ruslan!
* * * Purchased from February 18 to 20, 2006: Gliatilin 3 packs worth 2145 roubles ($75) for Radmila Abasheva (Abdominal Department). Albumin-Baxter 4 packs worth 3190 roubles ($113) for Kolya Semenov (Department of Oncohematology-27). Neupogen 2 packs worth 12,647 roubles ($450) for Olya Samokovskaya (Department of Oncology). Cardioxane 2 packs and Hartman's solution 2 packs worth 12,854.54 roubles ($460) for Dima Volkov (Department of Oncohematology-27). Cardioxane 2 packs and Hartman's solution 2 packs worth 12,854.54 roubles ($460) for Khetag Temirov (Department of Oncohematology-27).
28.02.2006 Doctors of the Department of Oncohematology-27 are pleased with the progress in the treatment in Rakhman Dadaev. After a month of antifungal therapy, the child does not need Cancidas any more. His condition is stable, the fungal infection of the gastrointestinal tract is under control, and now chemotherapy according to the required protocol may be continued.
Alas, we stop the fundraising for little Vika Sotneva. The girl has not responded to the course of anti-relapse chemotherapy, and no remission was attained. The doctors say: "Vika Sotneva, a girl of 4, was admitted to the Department of Oncohematology-27 with very early isolated relapse of acute lymphocytic leukemia. Received specific therapy according to the protocol. Upon reaching a remission, marrow transplantation from an unrelated donor was planned. Unfortunately, the therapy had no effect. This implies that the tumor is resistant to treatment and transplantation is impossible. The child will receive palliative therapy." Physician-in-charge Yu. Dyakonova; Head of Department Dr. N. Tyukalova
* * * Unfortunately, the situation with providing the necessary medications to oncohematology departments is still far from normal. Dr. Natalia Tyukalova, who heads the Department of Oncohematology-27, has to ask for your help again. The department needs Valtrex, Cardioxane, Hartman's solution, Miacalcic, Heptral, Leucovorin, Albumin, and Uromitexan. 27.02.06 We have sad news again. Masha Karelina died at the Kidney Transplantation Department yesterday. She had donor kidney transplantation in December 2005, but her organism did not cope...
25.02.06 Igor Obolenski came to the hospital for a routine check on February 2006. Igor was one of the first patients of the RCCH who had an unrelated marrow transplantation at our hospital. Igor's transplantation took place in April 2004. He was discharged from hospital almost 18 months later. His newborn brother Sasha was waiting for him at their home in Sevastopol... Continued...
23.02.06 Alexander Chichich has received a complete course of immunoglobulin therapy. Unfortunately, his condition has not improved. The boy has been discharged from hospital.
* * *
Irina and Alexander transferred the money to buy Keppra for Roma Eirich. The medication has already been bought.
22.02.06 Little Mantas died this night in his sleep. His heart just stopped beating. You were so grown-up and strong for your age. You managed to do so much in the four years of your life. You meant a lot for everybody who knew you. Thank you, and forgive us!
21.02.06 Last night, Ruslan Fidarov left for Germany to have his surgery there. Please pray for the boy. Although the boy has already left for Germany, the fundraising for his treatment is not yet over.
* * * If you transferred any money to our account via the online credit card system after February 13.02.2006, please inform us about your donations by e-mail: deti@blago.ru 18.02.06 Two new orphan kids have been admitted to the hospital. Zhenishbek from the far-away region of Tuva (South Siberia) is 2 years 9 months old; he has chronic laryngitis and cicatricial stenosis of the larynx. Katya from Smolensk is almost the same age; she has a cleft upper lip and cleft hard and soft palate. Both kids are very smart and sociable; both are to undergo serious surgeries. Valya and Milana have been discharged. Roma has been admitted to hospital again.
17.02.06 Some good news about Ruslan Fidarov. The boy's treatment in Germany will cost less than expected: 20,000 euro. Presently 13,000 euro has already been transferred to the account of the German hospital. And its managers agreed to take Ruslan right now. They agreed to receive the rest of the required sum a little bit later. We thank the staff of the German Embassy in Moscow, who made a visa for Ruslan and his mother in one day. The tickets to Germany have been bought for Monday, February 20.
* * * Purchased from February 9 to February 17, 2006: Ursofalk 250 mg N 50 2 packs worth 1533 roubles ($54) for Agunda Gagieva (Department of Oncohematology-27). Valtrex worth 27,318 roubles ($975) for Gagieva, Osipov, Ventserov, and other patients (Department of Oncohematology-27). Vepesid 100 mg/5 ml (N 50) and Holoxan 2 g N 1 (25 vials) worth a total of 70,204 roubles ($2505) for the Department of Oncology. Albumin Baxter 20% 50 ml N 1 (30 packs) and Contrical 10000 U 2 ml N 10 (10 packs) worth 30,365 roubles ($1080) for the Department of Oncohematology-16. Nimotope 30 mg N 30 (2 packs) worth 1590 roubles ($56) for Rakhman Dadaev from the Department of Oncohematolog-27. Timentin 3000 mg/200 mg N 4 (4 packs) worth 6828 roubles ($240) for Shushbanov from the Abdominal Department. Biseptol 480 amp. 5 ml N 10 (10 packs) worth 3900 roubles ($140) for the Department of Oncohematology-27. Certofix Mono (N 20), perfusion pumps stand. (N 300), perfusion syringes 5 ml with needle (N 300) worth a total of 25,651 roubles ($915) for the Department of Oncology. Oligonucleotides (N 390), probes for PCR-RW (N 3) worth 15,495 roubles ($550) for the Laboratory of Molecular Biology.
3.02.2006 And again some words about the results achieved in 2005. Head of the Department of Oncohematology-27 Dr. Natalia R. Tyukalova is speaking: "All doctors of our department, including myself, are deeply grateful to everybody who helped us during the 2005. Your physical and moral support enabled us to provide due and timely help to children in serious, life-threatening situations. For example, Dima Volkov had a cerebral stroke during the specific therapy. He was in a critical condition for a long time. And only your help made it possible to purchase the required medications in time. The boy's life was saved, specific therapy of his main disease was continued, and now you are still helping in his recovery and rehabilitation. You have also helped Dima Zemlyanski: only your help enabled Dima to complete anti-relapse therapy and then to have the required radiation therapy in Germany. And there are many examples of this kind. Thank you for being with us! We rely on your help and often need it very much."
3.02.2006 For the Department of Oncohematology-16, Albumin, Zovirax, and Sulperasone for a total of 86,942 roubles (over $3000) were bought. The doctors thank Vyacheslav, whose help made it possible to continue the treatment, because these medications were needed urgently. However, the problem with Maxipime still remains open. 1.02.2006 Unfortunately, the situation with the supply of medications to the RCCH is not yet improving. Doctors from the Research Institute of Child Hematology and RCCH ask for your help in buying several vitally necessary medications for the Departments of Oncohematology-16 (Sulperasone, Albumin, Zovirax, and Maxipime for a total of $7100) and Oncohematology-27 (Albumin, Heptral, Maxipime, and Ursofalk, for a total of about $3300). The situation is critical indeed: the patients cannot receive the next course of chemotherapy in time. * * * Some news about the orphan kids. Sasha K. had a plastic surgery of the nasal bridge right after the New Year holidays. The bandages were removed yesterday. The doctors are satisfied with the result. A year layer, the boy will have the second surgery: restoration of the cartilageous tissue of the nose tip and wings. He is feeling fine, and soon he is to return to his orphanage. Valya Ch. received all the treatment scheduled for this stay at hospital even before the New Year celebrations. However, the girl is still in Moscow, because representatives of her boarding school are still unable to take her home, to the far-away Siberian town of Dudinka. Igor V. had plaster removed from his arm, and now he can move it normally. A speech therapist has been giving lessons to Igor for several months, and now the boy speaks much better. He also has classes in math. It is difficult for him, but he is trying hard. He has firmly decided to become a doctor.
31.01.2006 About the results achieved in 2005. Let us hear Prof. Andrei V. Lopatin, Head of the Department of Maxillofacial Surgery of the RCCH: "The last year was the best for our department over the last half-decade. New surgical instruments were purchased owing to the financial help from the charity foundation affiliated with the Help Group of the RCCH. These instruments include the Obwegeser set (a set of special surgical devices for correction of facial skeletal deformations) and the Servotronic saw. The saw costs about $7850; the Obwegeser set, above $9000. These instrument enabled us to perform corrective facial surgeries in accordance with the most recent world standards; accordingly, the total number of reconstructive operations on the skull also increased from 43 in 2004 to 63 in 2005. The sponsors' support made it possible to operate 14 children with the most grave disorders using kits of bidegradable fixing materials, thus avoiding repeated operations (removal of fixations). One kit costs $2000. The department was reconstructed to some extent: now we have 30 beds instead of 25, and more children can receive help. Now we hope to repair the wards of our department during this year, because this problem is pressing indeed. For further improvement of state-of-the-art medical help provided to children with congenital and acquired craniomaxillofacial defects, we would like to have a Harvest SmartPreP system (Osteomed, US, $3500). This system enables one to produce platelet concentrates for bone plastics of various regions of the facial and cerebral cranium. We also need a Piezosurgery apparatus (Mectron, $7800) for piezosurgical manipulations on skull bones. This apparatus makes it possible to perform bone plastic surgeries without much injury and almost without bleeding."
28.01.2006 A treadmill has been installed at the hall of the Department of Oncology. Teenager patients and even their parents use it with pleasure. We thank Sergei for this present! 27.01.2006 Only a week ago, we said with relief that the Department of Oncohematology-27 had survived the difficult end of the financial year without serious problems thanks to your help. But, unfortunately, problems with supply of some medications have not disappeared, and Dr. Natalia R. Tyukalova, who heads this department, has to ask for your help again: "Dear friends, our department needs Holoxan, which is lacking at the hospital now. Six patients of our department need this medication for therapy, which may not be interrupted! One vial (1 mg) of Holoxan costs about 900 roubles ($32), and the department needs a total of 25 vials."
26.01.2006 Readers of the Sunday issue of the Rovereto (Italy) town newspaper raised the entire sum required for Pavlik Slavkow's treatment in Germany in three days! The boy's mother is grateful beyond all words. She hoped that compassionate people would help her, but nobody expected this help to come so soon. Many thanks from the kid's mother and from all of us!
25.01.2006 Within our program for helping orphan children, a new kid was admitted to the Department of Maxillofacial Surgery. Milana M. is aged three; she is from an orphanage in Kostroma. She has a large hemangioma on her face, and an operation is required to remove it. In addition to Milana, volunteers are presently taking care of four children: Dasha S., Sasha K., Igor V., and Valya Ch. * * *
Orthopedic aids AN 8-41 worth 46,848 roubles ($1670) were bought for Dima Chushaev. Dima's mother thanks everybody who helped the boy. Now Dima is learning to walk. Since the total sum donated for Dima was greater than the cost of the orthesis, the remaining 13,000 roubles ($465) will be added to the sum raised for Alexei Shorokhov's leg prosthesis.
24.01.2006 We thank the editors of the Vremechko TV show, which promptly responded to our plea for help concerning fundraising for unrelated marrow transplantation to Sasha Emelkin. In spite of the terrible frost, hundreds of Muscovites who had seen this TV program came and brought various sums of money in cash. The total sum thus raised is even larger than Sasha needs, and so the remaining money will be used to pay for further in-hospital treatment of Mantas Lavrenovas from the Department of Oncology.
* * *
On Sunday, January 22, our Italian friends from the Aiutateci a Salvare i Bambini Association published the story of little Pavlik Slavkov in the Rovereto (Trento rovince) town newspaper. During the very first day after the publication, the inhabitants of Rovereto transferred 2000 euro for Pavlik to the account of this association, and many other people phoned and said that they were also willing to donate money.
* * *
We asked several leading doctors of the RCCH about the results achieved in 2005. Deputy Director of the Institute of Child Hematology, Prof. Alexei A. Maschan, M.D.: - Dear friends, this year, just as any other year, was not easy for the Departments of General Hematology and Oncohematology. But still, a great deal was achieved in improving the quality of the children's treatment [...]. All my young and not-so-young colleages, including myself, are whole-heartedly grateful to you for your help. At first this help was necessary just for our and our patients' survival, and now we can think of real progress and of a decisive technological breakthrough. Continued... Head of Department of Clinical Immunology, RCCH, Prof. Irina V. Kondratenko: - The Department of Clinical Immunology has been existing at our hospital for 13 years. It is the only specialized department in our country where children with primary immunodeficiencies and with grave autoimmune or allergic conditions can receive help. All these groups of patients need intense therapy, including not only expensive medications but also means for their administration: intravenous catheters, inhalers, etc. Although the financing of the hospital has become better during recent years and patients are provided with most of the medications by the hospital, but still it regularly happens that certain drugs, instruments, or consumables are lacking. In all such cases, we always get help from the charity foundation working with the Help Group of the hospital. Sponsors have been supporting our department for many years. And this help enables us to work in the normal regime. [...] Thank you very much for your help and support! Continued... Head of Department of Oncohematology and Chemotherapy (Oncohematology-16) Dr. Dmitri V. Litvinov: - I want to thank everybody who was together with us during the last year, everybody whose financial and moral support was always with us. [...] Since the general situation with budgetary financing has become better and the most important medications are mostly available now, we can use the help of off-budget sources to purchase exclusive and expensive medications for those rare children who do not properly respond to treatment according to standard protocols. Earlier, it was just impossible [...]. Thank you for being with us! We hope that you will help us in the coming year, because our work would be very difficult without your support. Continued... Head of Center of Microvascular Surgery Dr. Alexander V. Bystrov: - I believe that our cooperation with the charity foundation and the Help Group takes place in the optimum form. The foundation provides personal help to any patient who needs it for one or another special treatment purpose [...]. There is also a very promising direction that we started to develop during the last year with support of the charity foundation: bioengineering cell technologies in combination with Collost. This universal medication creates a matrix for cultivation of stem cells introduced into the patient's tissues for skin healing, reconstruction of nerve stems, etc. Collost is a new Russian preparation, expensive for us but fairly cheap in comparison with foreign analogs. Owing to the sponsors' help, we have always get it in necessary amounts [...] I want to thank the charity foundation and the Help Group again for their constant and trustworthy support of our clinical and scientific work. Continued... 23.01.2006 Zhenya Privalov arrived at hospital again. After a medical examination and assessment of the results of previous surgery, the doctors will try to enable Zhenya to stand and then walk, just as in the case of Sasha Karmanov. And again, they are going to use the orthopedic system designed by Alexei Nalogin. Zhenya has already seen Sasha. He is enraptured and full of hopes.
21.01.2006 Ten days after Sasha Karmanov tried his new ortheses, he tells: "At first I felt dizzy when standing up after so many years in a wheelchair. But now it is all right. At first I learned to stand, and now I can even walk for a fairly long time. But I must train my arms, which bear much of the load. Now I can hope again. I believe that I'll walk all by myself some time and even play football." A comment by Dr. Alexander Bystrov, Head of the Center of Microvascular Surgery: "Among our patients, there are children with spinal injuries. We try to cure their neurotrophic ulcers and at the same time search for the ways that would enable them to stand up and walk. This is very important both for adaptation/rehabilitation and for purely medical purposes, because verticalization and constant movements improve the blood circulation and promote the healing of neurotrophic ulcers. Of course, the children must learn to stand and walk very slowly and gradually. But the example of Sasha Karmanov, who is now able to walk after 3.5 years in a wheelchair, is very stimulating. It is also important to mention the role of the orthopedic system designed by Alexei Nalogin. It includes mechanisms for fixation of the lower extremities and a corset. This system is very simple, reliable, and much cheaper than foreign analogs. It allows the patients not only to stand and walk but also to sit in the right position."
20.01.2006 Denis Karkhalava died today at the intensive care ward. The doctors struggled for his life for two months and planned liver transplantation, but it was already too late. The boy died of acute polyorgan insufficiency: his liver, lungs, and pancreas just ceased to function...
18.01.2006 Purchased from December 28, 2005, to January 16, 2006: Nephroureteroscope with frontal and side view optics worth 337,600 roubles ($11,850) for the Department of Urology. Cosmegen (70 packs), Neupogen (10 packs), Tavegyl (50 packs) worth a total of 338,970 roubles ($11,895) for the Department of Oncology. Hycamtin (Topotecan) worth 72,187.98 roubles ($2530) for Mantas Lavrenovas (Department of Oncology). A set of orthopedic devices worth 85,450 roubles ($3000) for Sasha Karmanov (Department of Microsurgery). Bleocin worth 12,242 roubles ($430) for Katya Sharonova (Department of Oncology). Albumin Baxter worth 8112.5 roubles ($280) for Raya Avetisova (Department of Immunology). Neoton worth 2886.28 roubles ($102) for Zhenya Varakina (Department of Medical Genetics). Repeated determination of blood cells for the following families: the Yanaliev family: 3300 roubles ($ 116), the Kalnoi family: 2200 roubles ($75), the Golubkov family: 1100 roubles ($38), the Khadiev family: 2200 roubles ($75), the Rogachev family: 1100 roubles ($38), the Lopatkin family: 1100 roubles ($38), the Magomedov family: 1100 roubles ($38).
16.01.2006 Sasha A., an orphan boy from Kaluga, was discharged from hospital after recovering from the surgery. The good care and nutrition have improved his condition greatly. The surgery has restored the functioning of his gastrointestinal tract, and now the child has a chance for at least partial rehabilitation. Now he will be able to eat normally. His digestion and the state of his skin have also become better. Unfortunately, our neurosurgeons say that now it is too late to make an operation on his brain and so it is impossible to improve the child's neurological status. It is always painful to learn such things. If the kid had normal parents or at least good doctors at the orphanage, they would have asked for medical help in tiime, and full rehabilitation would have been possible... One of the main aims of our program "You Are Not Alone" is to assist in timely revelation of babies with congenital cerebral pathologies and maxillofacial disorders who need urgent surgical treatment. After early and adequate help, these kids have good chance to become healthy and to lead a normal life. Alas, local doctors sometimes haven't the necessary information about the treatment methods available at present. Our aim is to provide this information to directors of all regional child orphanages. And a few words for those who want to adopt a child. You participate in a great cause. Please don't ignore weak and ill children! Believe us: a loving mother can do a miracle! We know several families who adopted children with serious genetic disorders or with deep mental retardation (in the opinion of doctors from their orphanages). And, then, several years later, even doctors from our hospital sometimes could not recognize their former patients who now lived in good families. Some of these kids became smart and lively pupils of advanced schools, and some were even college students. It is unlikely that somebody will risk helping Sasha A. It is too late indeed. But there are still many kids under one year of age who have curable birth traumas or other congenital cerebral damages. Many of them can actually recover and lead a normal life, but so far they are just lying in identical beds and looking at the white ceilings of their wards with unseeing eyes, day after day. 14.01.2006 Right after the New Year and Christmas celebrations, Sasha Karmanov visited the Central Institute of Traumatology and Orthopedics (we must thank Maya, who regularly helps with Sasha's transportation) to try his ortheses on. They were perfect, just his size. Two days later, Sasha received the walkers and started learning to walk all by himself. As you can see, he succeeded. We congratulate Sasha and hope that this event must significantly improve his life. And we also thank Alexei Nalogin (the designer and administrator of this Web site), who actually invented this original system of ortheses and thus gave hope and future to Sasha and many other children with spinal injuries. We hope to write about this in more detail some time. 12.01.2006 Dr. Natalia R. Tyukalova, who heads the Department of Oncohematology-27, tells about the treatment of Rakhman Dadaev: "Patient Rakhman Dadaev, three years old. His diagnosis is acute lymphocytic leukemia complicated by bacterial and fungal sepsis. Upon admission to our department on December 6, 2005, his condition was extremely grave owing to the fungal infection, which affected his intestines and the mucous membrane of the mouth. The boy had serious intestinal bleedings and necrosis of mouth tissues. Urgent treatment with Cancidas, a very expensive and efficient drug, was performed. After it, the child's condition improved greatly. The bleeding has stopped, and we can now go on with treatment of leukemia. Presently the boy's condition is stable with positive dynamics. He is still receiving Cancidas along with the specific therapy. So, further antifungal treatment is still necessary." 7.01.2006 See an article about the exhibition of drawings and paintings by patients of the RCCH in today's issue of New York Times.
Happy New Year! Dear friends! New Year provides good reason to recall all the good things that happened during the last year. We have got something to recall thanks to your compassion and generosity! Many good deeds became possible owing to your support and participation. There were dozens of extremely urgent situations when we had to ask for your assistance, and not a single child was left without timely help. You were always near, and lots of children received the required treatment in time. Dozens and hundreds of people will remember you with warmth and immense gratitude, although most of them have never seen you. Our pleasant duty in these festive days is to bring some of this warmth to you. Thank you for being together with us! Good luck, and God bless you!
5.01.2006 Dr. Yulia Averyanova, who is doctor-in-charge of Denis Karchalava, informed us of the progress in the boy's treatment and told us that there are sponsors who are ready to pay full cost of this treatment: "My patient's prospects in his current condition are not good. This concerns not only his health but even his survival. The boy needs liver transplantation, and Prof. Gotier is ready to take him. But, since the boy is not a Russian citizen, his stay at the Russian Scientific Surgery Center and the transplantation itself will cost a lot of money, about the sum required for treatment in the West. Luckily, the boy receives help from the Pomogi.org organization, which has found sponsors ready to pay for the child's treatment. Yours respectfully, Yulia Averyanova." Since the circumstances have thus changed, we stop the fundraising for Denis' treatment. We also thank everybody who responded and helped in the boy in a critical situation, when it was urgently necessary to start treatment at the Moscow hospital. We are grateful to our colleagues from the Pomogi.org charity foundation, who helped the boy greatly (including payment for 17 days of Denis' in-hospital treatment and part of the necessary medications) and found sponsors for his further treatment, including liver transplantation.
1.01.2006 Dima Zemlyanskii recently visited the hospital for a routine check. The resutls of his tests are all right, and he is in good spirits. He has resumed his studies at the institute and will soon pass his winter exams. He celebrated New Year at home, in Saratov. Yesterday we received a letter from him [published with minor abridgments]: "Now, on the eve of New Year, I am writing this letter to share my deepest feelings with you. Last year was difficult, and many situations presented a real danger for me and my relatives. But we survived, together with you and thanks to your help! I am infinitely grateful to all people who supported us in the most difficult situations. And now a miracle has happened: we, my mother and I, can meet this New Year together with you! It could be much worse, and we must thank the Help Group of the RCCH and personally its leader Lina Saltykova for their energy and love, for their help to ill children. This New Year is indeed the beginning of a new life for us. All the familiar joys now seem new and fresh. I wish all of you good health, happiness, and hope in this New Year. Because, as Stefan Zweig wrote, no doctors knows a better remedy than hope for a tired body and an exhausted soul".
31.12.2005 There will be no detailed photographic report today. But today we just thank everybody whose efforts allowed the New Year festivities to enter each ward of our hospital. We thank all the Santa Clauses, who left the hospital after 8 p.m. We thank the trainers of cats, dogs, and monkey Cheeta, and their charming and patient animals. There were enough presents for everybody. Wonderful presents! And we also personally thank our friend Maxim, who brought fireworks for the kids. Patients of all hospital departments could see the fireworks spectacle. Even the doctors looked at it through the windows. And one of the fireworks was launched right under the windows of the Marrow Transplantation Department, to the patients' joy. Such a thing was done for the first time! Dear friends, we thank all of you! We hope to see you in this new year. Let us wish all our children a lot of happiness in it! 29.12.2005 During the last few days, many children were discharged from hospital and went home. Among others, four orphan kids left the hospital: Dilya will receive treatment at a local hospital but have an operation in summer; Slava G. had a successful one-stage surgery and will not need to appear at the RCCH for treatment any more; Eva left on December 27 in good condition; and Roma was discharged on December 28 and will return for further treatment in several months. 28.12.2005 From December 13 to 27, 2005, a total of 1,570,398.65 roubles ($54,715) was paid Purchased: For the Department of Oncohematology-16: Medications: Albumin Baxter 20% (N 20), Analgin 50% 2 ml (N 50), Dopamin Solvay 200 mg/10 ml (N 10), Lasix 20 mg/2 ml (N 50), Neupogen 0.3 mg 1 ml (N 23), Vepesid 100 ml/5 ml (N 20), Methotrexate Laxema 50 mg/5 ml (N 10), Puri-Nethol 50 mg (N 20), Tavegyl 0.1% 2 ml (N 100). Consumables: infusion pump extender 250 cm (N 500), perfusion syringe 50 ml (N 400), perfusion syringe 20 ml (N 1000) for a total of 885,768.61 roubles ($30,863). For the Department of Oncology: Analgin 50% 2 ml (N 30), Ascorbic acid 5% (N 30), Vepesid 100 mg/5 ml (N 50), Ondansetron Lance 4 mg 2 ml (N 200), Ryboxinum 2% 5 ml (N 50), Holoxan 1 g (N 80) for a total of 131,359.6 roubles ($4577). Pulsoxometry sensor for the Department of Anesthesiology and Resuscitation worth 82,341.88 roubles ($2870). Cancidas: for the Departent of Clinical Immunology: 10 vials, 50 mg each; for Lyuba Dronova (Department of Oncohematology-16): 5 more vials, 50 mg each; for Rakhman Dadaev (Department of Oncohematology-27): 3 vials, 50 mg each; Total: 18 vials for a total of 349,200 roubles ($12,170). Consumables for the Department of Psychoneurology and Epilepsy (Department of Psychoneurology-2) for a total of 79,558.56 roubles ($2770). Introcan 19 mm (N 50) worth 1350 roubles ($47) for the Department of Oncology. Certofix Mono 220 (N 6), Certofix Mono 320 (N 10) worth a total of 6873.6 roubles ($240) for the Department of Clinical Immunology. Valtrex 500 mg (N 10) worth 9263 roubles ($323) for Agunda Gagieva (Department of Oncohematology-27). Gliatilin amp. 1 g N 3 (5 packs) worth 2325 roubles ($81) for Dima Volkov (Department of Oncohematology-27). Depakine in vials 150 ml (N 1) worth 249 roubles ($9) for Sasha A. (Thoracic Department). Paid for: Medical services provided to Zoya Petrova (Department of Microvascular Surgery) for 5010 roubles ($175); Medical services provided to Denis Karkhalava (Department of Abdominal Surgery) for 17,100 roubles ($596). Dancers from the well-known Beriozka dancing ensemble arranged a beautiful concert for the patients and doctors of the hospital. After its end, the members of the ensemble handed us many toys as New Year presents for the little patients of the hospital. Dr. Vaganov, the Head Physician of the hospital, thanked the dancers. In turn, they promised to arrive at hospital regularly with new concerts. 23.12.2005 The staff of the Vremechko TV show made a wonderful present for patients of the Kidney Transplantation Department: all patients who were allowed to go out were invited to the Fantasy Park recreation center. This is the largest family recreation center in Russia, and its first floor is all intended for kids: playgrounds, trampoline, bowling, 3D cinema, shooting gallery, game machines, cafe for children. For our hospital children, who don't have fun too often, it was an outstanding day. We thank the staff of the Vremechko TV show and personally Maria Drovnenkova for their continual attention to the children's problems and for the real help that the kids receive from them. Thank you, dear friends! We wish you good luch and success in your kind deeds!
23.12.2005 Cancidas was bought for the Department of Clinical Immunology: 10 vials x 50 mg; for Lyuba Dronova (Department of Oncohematology-16): 5 more vials x 50 mg; for Rakhman Dadaev (Department of Oncohematology-27): 3 vials x 50 mg. Thank you for your help! 22.12.2005 The annual exhibition of the children's drawings was opened at the Russkoe Zarubezhye Foundation Library. The gravely ill patients of the RCCH, who have to spend months and sometimes even years between four walls, sometimes certainly feel depressed. But their drawings and paintings are distinguished not only by deepness and originality but also by wonderful optimism. The chance to participate in an exhibition is very stimulating for the young painters. The children are grateful for your attention to their creative work, to their personalities. This is why the exhibition was entitled My Reflection. This year we are showing not only the drawings created during the last year but also earlier works. Let the photographs speak for themselves. Two orphan kids were admitted to the hospital yesterday. For Roma P., it is his first visit to the hospital, and charming little Eva has arrived for a control examination after the operation. And Maxim M. left the hospital today.
17.12.2005 On Saturday, December 17, the Cinderella Ball took place at the State Kremlin Palace. The festivities were organized, of course, by Walt Disney Co. It was a real ball. In a special dancing room. With a real orchestra and musicians in wigs. Adolescent girls look so beautiful in long ball-dresses! It is hard to believe that the same girls usually wear jeans, colored synthetic jackets, and knapsacks. Young boys in tuxedoes also looked fine. Of course, some of the invited guests had problems with dancing, but then the music entrapped them, and, intuitively feeling the necessary movements, they all joined the magic stream of dance. Cinderella, the hostess of the ball, was played by Tina Kandelaki, a popular TV star. Favorite characters from Disney's films greeted the children, and the films themselves were shown at the lobby. In the United States, Walt Disney Co. pays much attention to social programs for children. Now Russian children are also included into their program. Representatives of Walt Disney Co. learned about our hospital and the Help Group from this Web site. When these guests arrived at the hospital and saw everything themselves, they understood that a lot of work is needed indeed. They rightly think that a child whose life is interesting and happy recovers faster. Apathy and melancholy hinder the recovery. We suggested that the company may start from repairing the playroom of the Oncology Department. The experts were shocked to see the "object": a large room with huge windows, lopsided window-frames, which are stuffed with several layers of paper to cope with the draughts... But they were even more shocked to see tiny wards without ventilation, never repaired since the hospital was built, each ward hosting two or even three gravely ill children together with their parents. Within a short time, Lina Saltykova, who heads the Help Group, received an invitation to the Cinderela ball. And, of course, Lina wanted to take a little Cinderella with her. Masha Karelina from the Kidney Transplantation Department was chosen. The girl started preparing for the ball; her mother bought her a dress and golden shoes... but suddenly a donor kidney arrived for Masha. After more than a year of waiting. In this situation, Masha tried to object, of course. She told the doctors that there would be no operation, that she was going to the ball. But the merciless anesthesiologist made an injection... The operation was successful, and Masha is already back at her department. She has already calmed down a little. Well, she is sure that this ball is not the last one in her life! And so the girl to go to the ball was Ilona Klimuk from the Kaliningrad region. This beautiful girl with golden locks was interested in ballroom dancing since early childhood. She was preparing to become a dancer and a model. But her kidney ceased to function when she was nine. The wonderful childhood was over. Since then, the girl has stayed at hospital, waiting for a donor kidney. She is twelve now. Children with chronic renal insufficiency don't grow tall. Ilona is still looking as if she were nine. The same wonderful little fairy. But living on dialysis. Everybody admitted that Ilona was a real princess of this ball. And then Lina Saltykova told the guests about little Masha, who did not get to the wonderful ball, and about all our children, who need more joy and happiness. And, at this moment, a huge check (the size of a billboard!) was carried out and installed on the stage. The sum written on this check was 10,000 euro. This iks just the sum that was donated by Walt Disney Co. for repair and equipment of the playroom at the RCCH Department of Oncology. The same company will also be responsible for the design of the new playroom: all the rearrangements will be supervised by American specialists. Unfortunately, the check was too large to take it as a souvenir, but the equivalent sum of money has already been transferred to the account of the Regional Public Charity Foundation affiliated with the Help Group of the RCCH. On behalf of all the little patients of the Oncology Department, we thank Walt Disney Co. for this unexpected and wonderful New Year gift! 17.12.2005 Dr. Fuat Kimalovich Abdullaev, who heads the Department of Urology at the RCCH, asked for your help in purchasing medical equipment: "Specialists of our department perform many endoscopic operations on the upper and lower urinary tracts. A novel, recently developed technique now makes it possible to remove kidney stones according to an advanced method. Our department possesses an endoscopic nephroscope, which allows us to reveal the presence of stones and other disorders in the pelvis and ureter. However, many children need removal of these stones by low-invasive endoscopic methods as well. For this purpose, we must buy a special small (child-size) nephroureteroscope. Also, we need a special lamp as the source of light for visualization of all objects in the kidney and bladder. All this equipment will enable the children to receive due treatment without large cuts, lengthy operations, to extract the stones without much injury and with little invasion, sometimes to remove capillary tumors and other neoplasms of the pelvis and ureter. The estimated cost of the nephroureteroscope is 10,000 euro." Dear friends, your donations during the last few days and Natalya's contribution of 60,000 roubles (about $2100) received yesterday are now more than sufficient to buy the remaining 2 vials of Cancidas for Lyuba Dronova. We finish the fundraising for Lyuba's benefit and thank everybody who was not indifferent to her destiny. After all accounts are settled, the remaining money will be used to buy Cancidas for little Rakhman Dadaev. The Russian office of Procter & Gamble (town of Novomoskovsk) again provided help to our hospital. In departments where sterility is required, the detergents and cleansers produced by this company are not only helpful for everyday life but also really necessary for successful treatment. We thank E. Marakhovsky, who provided delivery of 200 kg of detergent to the hospital. 16.12.2005 Dima Zemlyanskii and his mother are at last back home from Muenster. Dima left for Germany in June 2005, and the treatment was to end at the end of August. But, after a number of unexpected situations, they were able to go home only now. The radiation treatment on a unique apparatus (the reason why Dima was directed to Muenster) was successful. Then, the doctors decided that Dima must also remain for rehabilitation. But Dima felt progressively worse, and a PET scan showed some strange lesion in his lungs. The doctors suspected a relapse, although Prof. Schellong, the leading specialist in Hodgkin's disease, said that a relapse in this situation was almost impossible. And suddenly another trouble struck: it turned out that Dima's mother Lena had a tumor. And, although it was benign, the doctors decided to remove it immediately, because its size and localization appeared dangerous. The money remaining on Dima's account, by agreement with us, was used to pay for Lena's surgery. But the trouble did not end. The tumor was removed, but the surgeons managed to injure the nearby organs. Lena became a seriously disabled woman in one day. At first the doctors did not want to recognize their error. They performed part of the reconstructive treatment (now Lena will have another part of the long treatment at her home, in Saratov) but demanded that she must pay an enormous sum for it (although not immediately). Now the medical arbitration court in Germany is analyzing her complaint. If it admits that the surgeons who operated Lena made a real mistake (and this outcome seems quite likely), Lena will not have to pay. You can imagine Dima's state of mind. At that moment, he completely forgot about himself and only repeated in his letters, "I'll die all the same, but I must save my mother." Since Dima speaks German fluently and has gained good knowledge of medicine during his disease, he fought for his mother's rights. And achieved much. At the same time, Dima's doctors fought for his life. The University Clinic of Muenster agreed to provide further treatment to him free of charge. Just as Prof. Schellong had predicted, there was no relapse. The frightening symptoms were due to toxic lesion of the lungs, which is a rare side effect of chemotherapy and radiation therapy. Now Dima's condition is satisfactory. While taking care of his mother, he did not think of his own health too much and somehow coped with the serious complication. The German doctors allowed Dima to go home only when they became sure that the worst was over. After his return to Saratov, Dima instantly ran to his institute...and caught the flu. Now he has fever. Of course, it is not too good in his condition, because the organism is still weak. Another "traveller", Vadik Markunin, yesterday left for the Freiburg clinic in Germany. We want to thank the staff of the German Embassy in Moscow, who efficiently prepare the documents of our children leaving for Germany. The Markunins' visa was ready in one day! Now Vadim will be able to begin his treatment before the long Christmas holidays, and it is very important, because the more time is lost, the worse for the boy. 15.12.2005 Two more orphan kids appeared at the hospital: Zhanna S., aged 3 (Department of Endocrinology), and Sasha A., aged 3.5 years (Department of Thoracic Surgery). 14.12.2005 Svetlana and Leonid Krasavins wrote a message in the guestbook of our Web site. Some time ago, their children Dasha and Stas were saved from mucopolysaccharidosis, a lethal congenital disease, owing to timely marrow transplantation from unrelated donors. We are glad to reproduce the good news from Yekaterinburg on this page: "Dasha and Stas, our little kids, were patients of the Marrow Transplantation Department of the Russian Children's Clinical Hospital. Their lives were saved by unrelated marrow transplantations. Our family lived at the RCCH from July 2004 to March 2005. If you know what unrelated marrow transplantation means, you can understand how hard this time was for us. God helped our children go through this ordeal, and here, in this world, our guardian angels were our doctors and members of the Help Group and Foundation. When it seemed to us that the world was going to collapse, they supported us spiritually. When we needed money, they supported us financially. Now Dasha's and Stas' lives are safe. The last chimerism tests showed 100% donor origin of blood cells. We are happy. But we'll never forget who gave us this happiness. Our warmest words of gratitude to the doctors, the Foundation and the whole Help Group. Svetlana and Leonid Krasavins" For Milana Gaisanova, 73,400 roubles ($2560) was paid. Earlier, Temodal was bought for this girl for borrowed money, but now the whole sum has been raised. The girl has had a complete course of chemotherapy using this medication, and also radiation therapy. The effect was very good. Presently Milana is receiving standard chemotherapy as out-patient treatment; a total of 6 courses will be needed. Milana's mother asked us to thank everybody who responded and helped the girl. Andrei Osipov is satisfactorily recovering after the transplantation. The bone marrow is functioning. The boy goes out to the passage of his department and visits his neighbors in other wards. He is still seriously interested in chess. To confirm the efficiency of the treatment, the boy must have a control diagnostic examination by the method of positron emission tomography (PET). Nadezhda Petrovna, who often helps our children, donated the required sum: 14,500 roubles, or $505. Since the most expensive stage of Andrei's treatment is over, we finish the fundraising for his benefit. Let us wish fast and full recovery to Andrei and also wish patience and optimism to his mother. 13.12.2005 More than two weeks are left before the New Year. But people with New Year presents for the children constantly come to our hospital church. Thank you for giving this joy to the children! Total sum paid from December 1 to December 12, 2005: 364,414.87 roubles ($12,700). Purchased: Hearing aid SUMO XP (Otofon center) worth 33,000 roubles ($1150) for Angelina Ladyko (Department of Otolaryngology). ATG Fresenius C 100 mg (10 vials) for patients of the Kidney Transplantation Department worth 144,200.8 roubles ($5025). We are whole-heartedly grateful to Victoria, whose donation (130,000 roubles, or $4530) made it possible to buy this medication. Miacalcic 200 ME/dose 2 ml 14 doses (10 packs) worth 22,219.4 roubles ($775) for Yulia Kurakina and Kristina Kvon (Department of Oncology). Vepesid 100 mg/5 ml N 1 100 mg (N 50) worth 27,405 roubles ($955) for the Department of Oncology. This medication was bought for the money donated by Sergei for patients of this department. Thank you, Sergei! Vinblastine 5 mg N 10 vials + solvent (4 packs), Holoxan 2 g N 1 vial (N 10), Holoxan 500 mg 1 vial (N 40) worth a total of 47,997.74 roubles ($1670) for the Department of Oncology. Consumables for the Department of Immunology: Venofix A 0.8x20 mm G21 (N 200), Venofix A 0.8x20 mm G21 (N 200), Venofix A 0.65x20 mm G23 (N 200), Discofix three-way stopcock (N 200), Introcan W-G L 19 mm (N 200), Spinocan (spinal needle) G 19-40 (N 100) worth a total of 15,588 roubles ($540). Zeffix 100 mg N 28 tablets (2 packs) worth 5115.9 roubles ($178) for Egor Kindeev (Department of Oncohematology-27). Ursofalk 250 mg N 50 (1 pack) worth 816.51 roubles ($28.5) for Egor Kindeev (Department of Oncohematology-27). Gliatilin caps. 400 mg N 14 (2 packs) and Trental 2% 5 ml N 5 amp. (20 packs) worth 3297.52 roubles ($115) for Sasha Perevozchikov and Dima Kartsev (Department of Immunology). Plaquenil tablets 200 mg N 60 (1 pack) worth 700 roubles ($25) for Vadim Markunin (Department of General Hematology). Plaquenil tablets 200 mg N 60 (1 pack) worth 700 roubles ($25) for David Gubaidulin (Department of General Hematology). Biseptol tablets 480 mg N 20 (20 packs) worth 800 roubles ($28) for Misha Yakush (Department of Oncohematology-27). Contractubex 50 g (N 2), Lidase 64 units N 10 (1 pack), Elocom 0.1% cream (N 1), Naphtaderm linim. 10% 35 g (N 1) worth 1392 roubles ($48.5) for Yaroslav Kozlov (Department of Dermatology). Motilium tablets 10 mg N 30, Linex caps. N 16 (2 packs), Elcar IV sol. 20% vial 50 ml (2 packs), Ursofalk 250 mg N 50 caps. (2 packs) worth a total of 2936 roubles ($102) for Denis Karkhalava (Department of Abdominal Surgery). Carniten 1 g 5 ml N 5 (1 pack), Magnerot tab. 500 mg N 50 (1 pack), Contrical 10000 units with solvent N 10 (4 packs), Wobenzym tab. N 200 (1 pack), Cocarbixylase amp. 0.05 g 2 ml with solvent N 5 (4 packs), ascorbic acid amp. 5% 1 ml N 10 (2 packs), Vitamin E 30 caps. (1 pack) worth a total of 4410 roubles ($150) for Denis Karkhalava (Department of Abdominal Surgery).
Money is paid for: In-hospital treatment (14 days) worth 21,000 roubles ($730) for Zoya Petrova (Department of Plastic Microsurgery). Positron emission tomography worth 14,500 roubles ($505) for Olya Karpacheva (Department of Oncohematology-16). This money was donated by Dmitri, our regular sponsor. Determination of activity of lysosomal enzymes worth 5428 roubles ($190) for the Krasavin family (condition after marrow transplantation). Repeated determination of blood cells for the Yanaliev family: 2200 roubles ($75). Repeated determination of blood cells for the Aksenov family: 2200 roubles ($75). Repeated determination of blood cells for the Gudimov family: 1100 roubles ($38). Repeated determination of blood cells for the Kalnoi family: 2200 roubles ($75). Repeated determination of blood cells for the Magomedov family: 2200 roubles ($75). Repeated determination of blood cells for the Shcherbakov family: 1100 roubles ($38). Repeated determination of blood cells for the Gagiev family: 1100 roubles ($38). Repeated determination of blood cells for the Lopatkin family: 1100 roubles ($38). Repeated determination of blood cells for the Rogachev family: 1100 roubles ($38). Transportation services (the orphan children's visit to the Durov trained animals center): 2065 roubles ($72).
9.12.2005 Dear sponsors who transfer money to our accounts in European currency: our bank AKB FORA-bank informs its clients of changes in the corresponding accounts in euros, British pounds, and Swiss francs. See section Banking details for the new account numbers.
For Ksyusha Zhukova, Leucovorin Teva 10 mg/ml (N 100) for a total of 52,215 roubles ($1820) was bought. We thank Artem, who donated 60,000 roubles ($2100) for all the children. Part of this sum was used to buy the medication for Ksyusha, in addition to the money transferred for her by visitors of our Web site. We thank everybody who has responded! Let us wish Ksyusha successful completion of her therapy and a happy return to her home.
8.12.2005 For any of us, meeting a famous person is always an important and memorable event. This is even more true for a gravely ill child, who sees only hospital walls and the same faces for a long, long time... A famous person arriving at a hospital ward is a miracle for a child, a dream come true. This visit can help this child to summon courage and strength, can make his or her even more resolute to conquer the disease and to return to the wonderful world outside... We announce our new program: VIPs are going to the hospital. See the Not Only illnesses part of our Web site.
30.11.2005 Yesterday Lyuba Dronova was transferred to a sterile ward to have marrow autotransplantation. On the eve of that day, Lyuba and her mother came to our hospital church and selected a lot of books: Lyuba is a great fan of reading. Even when she was in a very poor condition, she did not part with her favorite characters, and now she hopes that the books will help her during her long isolation in a ward. The books were sterilized at high temperature in a special furnace. Now all things that Lyuba will receive "from outside" will undergo such treatment. However, no sterilization can save her from a fungal infection, which can threaten her in the state of aplasia: the girl is already infected with these dangerous cells. The only thing that can help her is Cancidas. We remind you that Lyuba needs 7 vials of this medication. But the money raised by now is sufficient to buy only two vials.
29.11.2005 We resume the fundraising for the treatment of Sasha Karmanov and Zoya Petrova. They have returned to the hospital, and now they need your help to go through the next stage of their treatment. Please respond if you are concerned about Sasha's or Zoya's destiny.
28.11.2005 Purchased from November 21 to November 25: Venofer 100 mg 5 ml (N 5 amp, 4 packs) worth 12,000 roubles ($420) for Sergei Kulichkov (Abdominal Department) Cyclosporin mono-reagent (N 2), Cyclosporin mono-calibrator (N 1), and Cyclosporin mono-control (N 1) worth 57,420 roubles ($2000) for the Department of Kidney Transplantation Purinethol 50 mg N 25 (2 packs) worth 1758 roubles ($60) for Alexei Yamshchikov (Department of Oncohematology-16) Cardioxane 500 mg (N 4) and Hartman's solution 500 ml (N 4) worth 26,152.36 roubles ($910) for Anastasia Meleshko (Department of Oncohematology-27) Valtrex 500 mg (N 6) worth 5557 roubles ($195) for Andrei Osipov (Department of Oncohematology-27) Purinethol 50 mg N 20 (20 packs) and Sterican needles 0.8 x 40 mm N 100 (2 packs) worth 17,800 roubles ($620) for the Department of Oncology Vero-Vancomycin 0.5 N 1 (70 vials) worth 12,112 roubles ($420) for the Department of Oncology Valtrex 500 mg N 10 (10 packs) worth 9263 roubles ($320) for Agunda Gagieva (Department of Oncohematology-27) Mykomax 100 mg N 7 (15 packs) worth 6655 roubles ($230) for Mikhail Yakush (Department of Oncohematology-27) Contrical 10000 units 2 ml N 10 (2 amp.), Neoton 1 g N 1 vial with solvent (N 10) worth 8526 roubles ($300) for Denis Karkhalava (Abdominal Department) Ursofalk susp. 250 ml N 1 (1 packs), Contrical amp. 10000 units with solvent N 10 (1 pack) worth 1665 roubles ($58) for the Abdominal Department Miacalcic 200 units/dose 2 ml N 14 worth 22,219 roubles ($775) for Yulia Kurakina and Kristina Kvon (Department of Oncology) Paid for: Treatment of Denis Karkhalava (Abdominal Department), 16 days, including surgery and intensive care, for a total of 51,500 roubles ($1795). 27.11.2005 A group of painters from Moscow held a charity exhibition for the benefit of Nastya Zhigalik. 25.11.2005 Today is the 20th anniversary of the foundation of the Russian Children's Clinical Hospital. Presently it is the largest medical center for children in Russia. Over 16,000 children receive treatment here each year. The hospital includes 32 specialized departments (a total of 1025 beds) in all fields of pediatry except for cardiology, cardiosurgery, and neonatology. Over these 20 years, 192,5 thousand children have received treatment at the RCCH. The celebration of the anniversary included a conference, a festive meeting, and a concert. Almost all employees were present at the conference hall. Representatives of power bodies also visited the jubilee. Among those who congratulated the doctors, there were ministers, musicians, and even one cosmonaut. But the most touching congratulation was received from children, who sang funny and lovely songs. A special medal was made for this jubilee. Among those awarded, there were Prof. Yu. Isakov (Member of the Russian Academy of Medical Sciences) and Mikhail Gorbachev, whose help was of immeasurable importance in the beginning of the development of contemporary child hematology and oncohematology in Russia. President of the Regional Public Charity Foundation for Seriously ill and Abandoned Children Lina Saltykova also received an award in recognition of the participation of our Help Group in providing care and attention to young patients. This award concerns all of you, our dear friends and sponsors. The life of the hospital would be just unthinkable without you. We wish best luck and success to all doctors and patients of the hospital! 23.11.2005 The Moscow representative office of the Ebewe pharmaceutical company (Austria) provided to us two medications needed by patients of the Department of Oncohematology-16: Methotrexate (100 vials) and Vepesid (100 vials). These medications were lacking at the hospital. In general, the situation with medications at the end of the year is often difficult. Today Sasha Karmanov had an operation on his hip joint. This surgery was successful. When he recovers, it will be possible for him to try standing up. Sasha's friend Andrei Timoshenko, who is just as keen on computers as Sasha, was also admitted to our hospital today again. If the doctors manage to perform all the planned operations, they will try to make Andrei stand on his own legs, too, for the first time in his 16 years. Let's wish good luck to these talented and optimistic boys. 21.11.2005 Purchased from November 14 to November 18, 2005: Klabax in tablets 500 mg (N 10) worth 2635 roubles ($92) for Vasili Prik from the Department of Clinical Immunology Rovamycin 3 ml N 10 (5 packs) and Trental 2% 5 ml (20 amp) worth 3407 roubles ($120) for patients Shramko and Anokhin (Department of Clinical Immunology) Heptral in tablets 400 mg (3 packs) and Betadine 10% solution (N 1) worth 3695 roubles ($130) for Alexei Yamshchikov (Department of Oncohematology-16) Collost membrane 20 x 30 (N 1), Collost membrane 60 x 50 (N 1), Collost gel 7% (N 2), and Collost gel 15% (N 1) worth a total of 17,688 roubles ($615) for Sasha Karmanov from the Department of Reconstructive and Plastic Microsurgery Collost membrane 20 x 30 (N 1), Collost membrane 60 x 50 (N 1), Collost gel 7% (N 12), Collost gel 15% (N 1), and Collost membrane 100 x 60 (N 1) worth a total of 34,500 roubles ($1200) for Natasha Ustinova from the Department of Reconstructive and Plastic Microsurgery Medications worth a total of 62,317.50 roubles ($2170) for the Department of Clinical Immunology Contrical 10000 units 2 ml (N 10) worth 6552 roubles ($230) for Ruslan Fidarov (Department of Oncology) Cardioxane 500 mg (N 2), Hartman's solution 500 ml (N 2) worth 13,076.80 roubles ($455) for Ira Beloglazova (Department of Oncology). Vepesid 100 mg/5 ml (N 15) and Holoxan 1 g (N 40) worth 53,061.65 roubles ($1850) for the Department of Oncology. Paid for: Treatment of Zoya Petrova, Department of Reconstructive and Plastic Microsurgery, in October 2005 (30 days): a total of 45,000 roubles ($1565).
18.11.2005 Chief Physician of the Center of Microvascular Surgery Prof. Alexander V. Bystrov tells about his patients: "Grisha Rodionov will soon be admitted to hospital. He has already had neuroplastic surgery of the shoulder plexus according to contemporary technologies using autotransplantation of cultivated neuroblast cells. Presently, after this combined surgery, he needs rehabilitation and an additional examination, electromyography, which will enable us to evaluate the results of the surgery with respect to restoration of the arm innervation. At the end of November, he will have serious reconstructive microsurgery to restore mobility in the shoulder and elbow joints. Sasha Karmanov was admitted to hospital again in October. This patient has post-traumatic spinal injury and, consequently, large trophic ulcers. Now he is to have a corrective surgery: removal of hip joint contracture. Then ortheses will be installed to set the correct position of the joint. Afterwards, we will go on with the treatment of trophic ulcers and try to enable him to stand and walk (instead of sitting in a wheelchair) using an original construction. Slava Miftakhov is also at hospital now, undergoing the next stage of his treatment. The trophic ulcer has almost healed. The problem is that more than one-half of his calcaneum is absent, and now the position of his foot is totally incorrect. At this stage, we should order ortheses so that he could stand on full foot. Now he steps only on his heel, and therefore he has sores and a trophic ulcer on this heel. At the next stage, he will need plastic surgery of his Achilles' tendon to remove the foot bending. But Slava is already 17. We don't know what will happen to him when our "adult" medicine becomes responsible for his destiny. It would be wonderful if we could help Slava and the other boys as much as possible while they are still at the RCCH. Andrei Timoshenko has not yet arrived at hospital.
17.11.2005 Little Masha Gudimova died after unrelated marrow transplantation nine days ago. It is so impossible, so painful and terrible, that no one of us was able to write about this for several days. Everything happened all of a sudden. The kid was recovering after the transplantation more or less well. The donor marrow was functioning. There was some fever and signs of graft vs. host disease, but all within normal limits. The girl was receiving all due treatment... And suddenly her kidney refused to function. Acute renal insufficiency developed so quickly that it was impossible to save the girl. Masha was a carrier of the Epstein-Barr virus. It is harmless for most healthy people but proved to be fatal for a child without immunity. Masha lived at our hospital all her life. The Gudimov family spent three years at the RCCH. For three years, they fought for their girl's survival together with the doctors. For three years, the essence of their life was only hope. They were raising their little beauty and supporting all mothers at the department. Masha was a fair angel for all of us. Now there is one more angel in heaven.
14.11.2005 Bought from November 8 to 12, 2005: A pH Day-2 set for intragastric round-the-clock acidity monitoring for the Department of Thoracic Surgery, worth 192,525 roubles ($6750). Movalis 15 mg (N 10), Trental 5 ml (N 20) for patients Shramko and Prik (Department of Clinical Immunology), worth 6949.4 roubles ($245). Cosmegen 0.5 mg (N 2) for Sasha Serikovak (Department of Oncohematology-27), worth 664.94 roubles ($23). Venofer (inh.) 56 ml (N 2) for Sergei Kulichkov (Department of Abdominal Surgery), worth 5860 roubles ($205). Syringe with neurostimulating gel (3 packs) for the Center of Microvascular Surgery, worth 44,565 roubles ($1560). Anti-bedsore mattress for Martin Kodzakov (Department of Allergology and Dermatology), worth 3790 roubles ($130). Tests for repeated determination of blood cells at the Center for Molecular Genetics: for the Rogachev family (Department of General Hematology): 1100 roubles ($38). for the Aksenov family (Department of General Hematology): 1100 roubles ($38). for the Gudimov family (Department of Oncohematology): 1100 roubles ($38). for the Melnikov family (Department of Oncohematology): 1100 roubles ($38). for the Gagiev family (Department of Oncohematology): 1100 roubles ($38). for the Pigenko family (Department of General Hematology): 1100 roubles ($38). for the Lopatkin family (Department of General Hematology): 1100 roubles ($38).
12.11.2005 Doctors of the Department of Oncohematology-27 say that the department needs urgent help in purchasing chemotherapy drugs that are currently lacking at the hospital.
11.11.2005 Four patients of the Kidney Transplantation Department urgently need ATG (a special medication). They will soon have the transplantation operation, and ATG is vitally necessary after it to prevent rejection of the donor organ. 10.11.2005 Olya and Anya provided 11,000 roubles ($385) to buy inhalers for three more patients of the Department of Medical Genetics. Thank you!
9.11.2005 Dear friends! We are glad to inform you that the entire sum for the treatment of Vadim Markunin at the Freiburg University Clinic (Germany) has been raised thanks to Alexander, the Vremechko TV show, and visitors of our Web site. Now the family has enough money for the entire treatment, journey, board and lodging. They are preparing the documents for going abroad.
8.11.2005 In the "Not only illnesses" part of our Web site, you can see photographs made by our "Dr. Clown" Kostya Sedov." Bought from November 1 to November 7, 2005: Cardioxane 500 mg (2 vials), Hartman's solution 500 ml (1 vial) worth 13,038.42 roubles ($455) for Dima Volkov (Department of Oncohematology-27); Cardioxane 500 mg (2 vials), Hartman's solution 500 ml (1 vials) worth 13,038.42 roubles ($455) for Ira Beloglazova (Department of Oncology); Cosmegen 0.5 mg (30 vials), Holoxan 1 g (30 vials) for a total of 43,604 roubles ($1530) for the Department of Oncology; Cardioxane 500 mg (1 vial), Farmorubicin 10 mg (12 packs), Hartman's solution (1 vial) for a total of 12,899 roubles ($450) for Ira Beloglazova (Department of Oncology); Puri-Netol 50 mg (40 packs) worth 35,164 roubles ($1235) for the Department of Oncohematology; Two endoexpanders worth 2400 roubles ($85) for Sasha Karakhonchev (Department of Maxillofacial Surgery). 7.11.2005 The hospital needs help in purchasing a finger pulsoxymetry sensor for the Department of Anesthesiology and Resuscitation. The previous sensor is out of order, and so the hospital cannot perform long MRI examinations for anesthesized patients, like MRI according to the epileptological program. The latter examination can be performed in Russia only at our clinic. 3.11.2005 Bought since October 18, 2005, to November 1, 2005:
Cardioxane (5 vials) and Hartman's solution (4 vials) worth a total of 32,652 roubles ($1145) for Denis Yanaliev (Department of General Hematology; now the boy has been transferred to the Marrow Transplantation Department); Cardioxane (2 vials) and Hartman's solution (1 vial) for a total of 13,038 roubles ($455) for Vasya Zinkovski (Department of Oncology); Leucovorin Lance 50 mg (20 vials) worth a total of 9077 roubles ($320) for the Department of Oncohematology; Tutors for both legs worth 17,620 roubles ($620) for Diana Melekhina (Department of Traumatology). 2.11.2005 Since October 7 to October 28, 2005, 18 ampoules of Cytotect were bought for Dasha Mizgunova, Sabina Gadjimirzaeva, Ivan Kholkin-Baranik (Abdominal Department) and for Hava Ibragimova (Infectious Department) for a total of 117,000 roubles ($4105). (Out of this amount, 6 ampoules were bought for our patients by the Boomerang charity foundation). We want to thank everybody who has helped the babies. The three girls have already had their antivirus therapy, and Ivan Kholkin-Baranik is receiving it now.
28.10.2005 Good news about Anton Safonov: the enterprise where his mother works will pay 1/3 of the sum required for Anton's treatment abroad. The state must pay 2/3.
27.10.2005 Sasha Melnikov died. He spent his last weeks at the resuscitation unit. He went through unrelated marrow transplantation on August 23. His condition as to the basic disease was life-threatening. The transplantation was also a great risk, but it was the last hope. Unfortunately, the disease won. Sasha was our very dear friend. He was full of optimism, always busy with something interesting, radiant and energetic. Sasha turned 11 this spring.
26.10.2005 The Department of Thoracic Surgery needs a diagnostic instrument pH Day-2 for 24-hour intragastric acidity monitoring. This instrument is used for diagnosis of reflux disease, which is presently quite widespread among children and requires timely surgical treatment.
Two little girls suffering from congenital CMV infection, Dasha Mizgunova and Sabina Gadjimirzaeva, have received the required amount of Cytotect. Thank you for your help!
25.10.2005 The donations for Mantas Lavrenovas are now sufficient to pay for his treatment at the RCCH till the end of 2005. Therefore, we remove his story from the first page of our site for the time being. Thank you for your response!
24.10.2005 Diana Melekhina was admitted to the hospital again. We were more than surprised when she entered the hospital church on her own legs and began mounting the stairs. The girl's mother told us the following: "My daughter couldn't walk at all. She just sat on the floor and moved on her buttocks. Her arms do not function either, and she could not help herself in any way. Diana needed orthopedic tutors and ortheses to stand up and to learn walking. We could not pay for them, because their cost seemed just enormous to us. We asked the Help Group at the hospital church, and we are so grateful to people who helped us after that! Diana received the tutors and ortheses, and her new life started. Of course, it was very difficult for her, her legs felt so uncomfortable. Then, little by little, she made her first steps: sometimes three, sometimes five... And once, quite unexpectedly, when the family was in the kitchen and Diana played in another room, we suddenly saw her coming to us all by herself! We couldn't believe our eyes! She walked with such fervor. Of course, at first she often fell down and got bruises and bumps. But still she did not give up, she was so eager to walk! And now she walks all right. Life has become so much better! Diana likes dancing, especially when she hears music somewhere in the street or in the park. She can write and draw with her mouth. It is very difficult for a child of six. She can count to one hundred. Now she must go through arm massage. She can raise her arms a bit and even tries to take something between them. But her elbows do not yet bend and her fingers do not move. However, the doctors hope that her hands will be also come to life."
23.10.2005 The following medications and consumables were bought from October 7 to 18, 2005:
Seven ampoules of Cytotect for Dasha Mizgunova and Sabina Gadjimirzaeva (Abdominal Department) bought for a total of 46,262 roubles ($1625). Percutaneous drainage set for the Department of Oncology worth 7085 roubles ($250). Zovirax 250 mg (8 packs) for Andrei Osipov (Department of Oncohematology-27) for 14,018 roubles ($490). In-stopler (100 pieces), Introcan WG 24 (150 pieces), Introcan WG 22 (150 pieces), Introcan WG 20 (100 pieces) for the Department of Oncology for a total of 11,268 roubles ($395). Medel Pro inhaler for Salahan Eyubov (Department of Immunology) for 3780 roubles ($135). Sandimmune Neoral 25 mg (10 packs) for Nastya Kochetkova (Department of Immunology) for 24,408 roubles ($855). Zovirax 250 mg (13 packs) for the Departments of Oncohematology for a total of 22,779 roubles ($800). 22.10.2005 The first five orphan children have been admitted to the hospital after the launching of the You Are Not Alone program. We are planning to publish information about these kids on our Web site as soon as possible. 19.10.2005 Money donated by Pavel was used to buy Omron Medel Pro inhalers for six patients from the Department of Medical Genetics. The inhalers cost 3700 roubles ($133) each; the total cost is 22,680 roubles
($800). Unfortunately, Natalina Vorobyeva is the only patient among these six kids who is presently at hospital. The rest of these girls and boys have already left the hospital and gone back home. So now it is necessary to send these inhalers to Bashkortostan, to the Chelyabinsk region, and to the Tambov region. Sending such equipment in parcels by mail is not allowed. So we need help in transportation of these inhalers.
18.10.2005 Nastya Kryzhanova is leaving the RCCH to continue her treatment in St. Petersburg. So we are no longer raising funds for her endoprosthesis. The money already transferred to Nastya's account will be used for the treatment of other patients of the Department of Oncology. Nastya's mother Anna Kryzhanova wrote us a letter of gratitude, explained the change in their circumstances, and allowed us to use the money from Nastya's account for treatment of other gravely ill children.
13.10.2005 The money transferred in October is sufficient to pay for the entire treatment of Natasha Ustinova. Therefore, we remove Natasha's story from the first page of our Web site. We wish her good luck and hope that doctors from the Center of Microvascular Surgery will be able to help her. Natasha is a wonderful person. She studies with interest, reads a lot. There are always people around her, because Natasha is very nice to talk to: attentive, sincere, compassionate. We believe that she will succeed.
A sufficient sum of money has been received for the planned treatment of Zoya Petrova. So, by agreement with the doctors, we remove Zoya's story from the first page of our site. If the girl needs additional time at hospital or encounters any complications and new expenditures, we will resume the fundraising. We thank everybody who has responded! 12.10.2005 Vadim Markunin is one of the "pioneers" of unrelated marrow transplantations at the RCCH. He celebrated his fourth birthday on October 7. Actually, he had all his four birthdays at hospital. Although the Markunin family has been living at an apartment since last year, but, unfortunately, they had to return to hospital right now, because the boy has developed a catheter infection. However, the day was festive even here: with guests, presents, and funny jokes of the kind hospital clown. The following medications were bought from September 17 to October 6, 2005: Nimotop (5 packs) worth 5082 roubles ($180) for Dima Volkov, Department of Oncohematology-27. Nimotop (5 packs) worth 5082 roubles ($180) for Dima Kartsev, Department of Immunology. Carboplatin-Ebewe (5 vials) and Holoxan (5 vials) for a total of 13,741 roubles ($480) for Maxim Neskoromnyi from the Department of Oncology. Vinblastine (20 packs), Vincristine (5 packs), Carboplatin-Teva (11 vials), Carboplatin-Ebewe (8 packs), Cosmegen (10 packs), and Holoxan (20 packs) for the Department of Oncology. Cancidas (10 packs) worth 184,783 roubles ($6480) for Zhenya Efremova from the Department of Oncohematology-27. Carboplatin-Ebewe (6 packs) worth 7172 roubles ($250) for the Department of Oncology. Valtrex (2 packs) for Izrailov from the Department of Oncohematology-27. Zovirax (8 packs) worth 14,018 roubles ($490) for Andrei Osipov from the Department of Oncohematology-27. Adalat (solution+set, 20 vials) worth 10,500 roubles ($370) for Egor Malyshev from the Department of Oncohematology. Zovirax (5 packs) worth 8761 roubles ($307) for Lena Britkina from the Department of Oncohematology. Plaquenil (6 packs) worth 4260 roubles ($150) for Vadim Markunin and Igot Obolenskii from the Department of General Hematology. Diflucan (2 vials) and Clotrimazole (2 packs) worth 1924 roubles ($68) for Sor-Ali Batalov from the Abdominal Department. Actovegin (4 packs) worth 1600 roubles ($55) for Sasha Makarov from the Department of Oncohematology. Money for the following tests and examinations have been paid: Medical services at the Blokhin Oncological Scientific Center for March to May, 2005, for a total of 15,600 roubles ($550). Tests at the Sklifosovski Research Institute for 2320 roubles ($80).
Laboratory tests at the MS SERVICE company for the Department of Medical Genetics in May to July, 2005, for a total of 28,200 roubles ($1000). Repeated determination of blood cells for patients from the Marrow Transplantation Department at the Center for Molecular Genetics: for the Krasavin family: 2200 roubles ($77); for the Aksenov family: 2200 roubles ($77); for the Golubkov family: 2200 roubles ($77); for the Gudimov family: 2200 roubles ($77); for the Gagiev family: 1100 roubles ($38); for the Vazhenin family: 1100 roubles ($38); for the Lopatkin family: 1100 roubles ($38). We thank our friends: Lyubov V. has paid 196,000 roubles ($6900) for a leg prosthesis needed by Anya Ovsyannikova (Department of Oncology). Now it will be manufactured at the Priorov Central Institute of Traumatology and Orthopedics. The charity foundation "Union of Russian Charity Organizations" has helped in paying the whole sum for a leg endoprosthesis to be manufactured for Olesya Lutsenko (Department of Oncology): 460,000 roubles ($16,150).
11.10.2005 Zoya Petrova came to hospital for the first stage of her current treatment. She had an operation several days ago. Medical services for a total of 30,000 roubles ($1050) have been paid for, including 10 days of her stay at the hospital. We don't yet know how long her post-operation recovery will take. As soon as it becomes possible, Zoya will return to her home and then come back to go on with her treatment.
Money for bone grafts and osteoblast cultivation has been paid for patients of the Department of Traumatology and Orthopedics Yana Mikheenko and Igor Mikhailov ($1000 each). The money transferred to our account for Yana and Igor will be reserved for later treatment of other patients with similar disorders, which, unfortunately, are not too rare in children.
10.10.2005 Zhenya Efremova died at the intensive care unit. She developed a severe graft vs. host disease (GVHD) after marrow transplantation, and the doctors failed to cope with it. Her kidney and lungs refused to function. She developed multiorgan insufficiency and died of cerebral oedema. Zhenya was 18. The hospital was her home for four years. Zhenya was very courageous. In spite of her terrible physical suffering, she managed to support and console other children and mothers. She studied with interest and fervour, and her best dream was to become a doctor...
9.10.2005 The father and younger brother of Marifat Khamdamova came to the hospital. Marifat died in January 2005, in spite of the long struggle with her terrible disease. Now her brother Gosha came for a medical examination. We thank our regular sponsor Georgi, who paid for the Khamdamovs' flight from Samarkand to Moscow and back (15,500 roubles, or $545).
8.10.2005 The necessary medications for chemotherapy have been bought for patients of the Oncology Department for a total of 140,000 roubles (about $5000). We whole-heartedly thank S., whose donation made it possible to perform the necessary course of chemotherapy for ten children in due time. However, unfortunately, the problem is still here. Each child has received the necessary drugs for only one course, and the number of courses required for treatment is usually from three to ten. Since there are still problems with the supply of this medications to the hospital, it is quite likely that the Department of Oncology will soon need your help again.
7.10.2005 We again ask for your help in purchasing Cytotect. This time it the doctors need it to save to life of Hava Ibragimova (city of Grozny), who is just two months old and has got a life-threatening CMV infection.
4.10.2005 Two little girls with congenital CMV infection need Cytotect, an expensive antiviral drug, for their survival. They are Dasha Mizgunova (aged 3 months) and Sabina Gadjimirzaeva (aged 2 months). 3.10.2005 Doctors of the Oncology Department ask for your help in purchasing certain key chemotherapeutic drugs for patients of this department, because these medications are temporarily lacking at the hospital.
1.10.2005 Dr. Sergei N. Moiseev, Deputy Head of Department of Traumatology and Orthopedics, RCCH, tells about a new promising technique for treatment of patients with a congenital bone pathology: "One of the most serious problems in orthopedics is treatment of patients with grave congenital bone defects, including congenital false joints. This is a pressing problem all over the world. Children with this disorder go through numerous operations, including those using metal osteosynthesis, but often no positive results are attained. A very promising contemporary technique is bone plastic surgery of such defects using specially cultivaled autologic osteoblast cells, which are produced from stem cells extracted from the child's blood. This method shows good results in healing large defects of long tubular bones, including shinbones. Unfortunately, a congenital false joint of shinbone is a very frequent pathology. Such children have to go through dozens of operations, which do not produce due effect: the false joint is
preserved, the extremity is unsupportive, and the child and parents suffer. Another advantage of autoplastic bone grafting is that it is performed in one stage, without metal osteosynthesis. In six to eight months, the child will feel that the extremity supports him or her. The use of the new method notably shortens the difficult time of leg immobilization in plaster. However, to perform this operation, significant financial expenses are required for extraction and cultivation of stem cells and for preparation of a bone graft from a dead body. The final cost is over $1000 per child. Presently two children at our department need this operation. They are Igor Mikhailov and Yana Mikheenko, and they have similar defects: congenital false joint of shinbone. Both children have already had numerous operations without due effect. We will be grateful to everybody who will help us and these children in performing autoplastic bone grafting, which will give a good chance to both children."
18.09.2005 We have launched a new program for providing medical help to children from orphanages: The number of Russian children left without parental care is still increasing. More and more disabled children in orphanages need medical help, but the state is often unable to provide it in time. The Russian Children's Clinical Hospital, together with the Regional Public Charity Foundation for Seriously ill and Abandoned Children, starts a campaign for providing specialized medical help to children from state-financed orphanages. The name of the program is "You Are Not Alone!" We are going to cooperate with the directors of regional orphanages and to create a database of orphan children who need in-patient treatment at the RCCH. Our charity foundation is willing to provide social help to these children, including, if necessary, payment for their transportation to and from the hospital and for their care and treatment at the hospital. 17.09.2005 Two of our little orphan kids, Slava and Dima, have been officially adopted! We congratulate them and wish them all the best. 16.09.2005 Dr. Alexander V. Bystrov is telling about the treatment of his patients at the Center of Microvascular Surgery: "Grisha Rodionov has gone through the first stage of treatment, aimed at restoring innervation of his arm. He has had a microsurgical operation: revision of the roots of nerves that form the neck and shoulder plexi. During the revision, we found that the roots of the nerves were torn away (during childbirth) and reconstructed them using cell technologies: autological transplantation of the neurogrowth factor complex. During the operation, which was performed under a microscope, three 1.2-ml portions of the cell solution were introduced and plastic surgery of the nerves was made. The cell cultivation and consumables for this operation cost $1500. It is still too early to speak of actual results. Now the boy is at home for rehabilitation. One of its necessary components is electrical stimulation with a Galathea neurostimulator, which costs about $600.
Further, Grisha will have at least two reconstructive surgeries in order to restore movements in the shoulder and elbow joints through microsurgical transplantations. After that, the main problem will be to restore movements of the hand; this is a separate stage. All in all, Grisha's treatment will last at least 5 years. The boy will be taken to hospital again in the beginning of October. Natasha Ustinova has had Collost therapy: injections in the region of deforming scars on the face and breasts, as well as microdermabrasion of face scars. Natasha liked the results of the treatment very much. Presently she is at home, studying at a medical school. She will return to the hospital in November to have plastic surgery of the face using a collagen graft and expensive cell technologies. Sor-Ali Batalov has had combined plastic surgery of the bone using a bone implant from a dead body and cell technologies (specially cultivated autologic osteoblast cells). There were no serious complications during the initial rehabilitation time. Now this patient is to have plastic surgery of the skin: Collost-assisted recovery of skin above the place where the bone was reconstructed. After that, Sor-Ali Batalov will be discharged from hospital for rehabilitation in his native republic. We will control the state of the implant and plan further treatment on this basis. After the skin is healed, the boy will be able to stand in ortheses. It is still too early to speak about his walking by himself." Dear friends, you have already donated a sum that is sufficient for the treatment of Sor-Ali Batalov. So we remove the boy's story from the first page of our Web site. We are whole-heartedly grateful to everybody who has responded to the trouble of little Grisha Rodionov. The money raised by now is sufficient not only for the first but also for the second stage of treatment, which is planned to take place in the autumn of 2005. So we remove Grisha's story from our first page as well. Thank you for your help and compassion! The following sums were paid from August 18 to September 16: Cytotect (10%) 10 packs for Lena Kostyleva from the Abdominal Department for 70,431 roubles ($2500). Sterile Curapor (2 packs, 100 pieces) for 2134 roubles ($75). Repeated determination of blood cells for families of patients from the Marrow Transplantation Department: the Lopatkin family for 1100 roubles ($40), the Mirza-Zade family for 1100 roubles ($40), the Vazhenin family for 1100 roubles ($40), the Gudimov family for 1100 roubles ($40), the Gagiev family for 1100 roubles ($40), the Scherbakov family for 2200 roubles ($80), and the Rogachev family for 3300 roubles ($120). Servotronic electric drill for the Department of Maxillofacial Surgery for 220,032 roubles ($7720). We are grateful to S.P. Korneev, whose donation was crucial for buying this instrument, so important for the department. Dmitri bought Contrical for Sasha Makarov from the Department of Oncohematology-16 for 10,000 roubles ($350). Igor bought consumables for the Departments of Oncohematology-16 and -27 for a total of 110,000 roubles ($3860). Thanks to the financial support provided by the Boomerang foundation from June 15 to September 15, 2005, the following patients of our hospital have received or are presently receiving radiation treatment at the Russian Scientific Center for Roentgenology and Radiology: Mantas Lavrenovas from the Department of Oncology for 29,409 roubles in June ($1030) and 22,779 roubles in August ($800). Sveta Bezgubova from the Department of Neurosurgery for 19,955 roubles ($700). Sasha Matyash from the Department of Oncohematology-27 for 19,955 roubles ($700). Zaira Chanieva from the Department of Oncohematology-27 for 7800 roubles ($275). Beslan Saaev from the Department of Oncohematology-27 for 7800 roubles ($275). Sasha Rogachev from the Department of Oncohematology-27 for 10,374 roubles ($365). Masha Logunova from the Department of Oncohematology-16 for 7800 roubles ($275). Andrei Samodelkin from the Department of Oncology for 14,121 roubles ($495). Nastya Kuznetsova from the Department of Oncohematology-27 for 16,695 roubles ($585). Katya Mikhailova from the Department of Oncology for 21,921 roubles ($770). Nastya Kuznetsova from the Department of Oncohematology-27 for 16,695 roubles ($585). Yulia Sych from the Department of Oncology for 19,900 roubles ($700). Petr Ryakovsky from the Department of Oncohematology-16 for 34,076 roubles ($1200). Maxim Evdokimov from the Department of Oncohematology-16 for 14,235 roubles ($500). Medicines for the following children were also bought with support of the Boomerang foundation: Kirill Vozhegov, Department of Oncology, for 3180 roubles ($112); German Bazaev, Department of Oncology, for 17,481 roubles ($610); Anya Galtseva, Department of Oncology, for 20,633 roubles ($725); Anya Ovsyannikova, Department of Oncology, for 22,249 roubles ($780). Agunda Gagieva, Department of Marrow Transplantation, received Cancidas for a total of 73,913 roubles ($2595). Vova Moskvin, Department of Oncohematology-16, received Cancidas for a total of 72,300 roubles ($2540). 15.09.2005 These are the first days when little Masha Gudimova was allowed to go out after her return from a sterile ward in the Marrow Transplantation Department. She is very glad to see the still-blue sky and the warm sun, because she has been in an isolated ward since the middle of May. She is still too weak to walk by herself, and she complains of leg pains. A stroller would be very helpful for her. 14.09.2005 Ira R., who has become everybody's favorite at the hospital, has to go back to her orphanage in Belgorod. She spent a year in Moscow. The doctors have created their "ordinary miracle", and the girl's charming face has become symmetrical. Ira herself also worked: studied various school subjects and music, and her drawings have even evoked the interest of specialists. Will this bright girl be able to develop her talent further? It is very hard for any child, but especially hard in an orphanage. But, unfortunately, none of us, Ira's friends, could take full responsibility, parental responsibility for this child. 5.09.2005 In the "Not only illnesses" part of our site, you can see new materials (with comments in Russian): an animated film White Angel created by patients of our hospital and also two small personal exhibitions of drawings by our two young artists: Ira R. and Zaira Chanieva.
29.08.2005 The family of Sasha Karmanov has moved to Samara. They are all right. Right after unpacking the luggage, mother Olga and three children hurried to Moscow to take Sasha: there is a short break in his treatment, and now, since the family has moved from the Magadan region in the far North-East to a city on the Volga, the boy can go home and have some rest. We were glad to see this large and happy family to be together at last. Sasha will spend about one month at home. After his return to hospital, he will probably have an operation. The doctors haven't yet come to the final decision about the plans for Sasha's further treatment. So, until the boy returns to Moscow, we remove his photograph from the first page of our site for the time being. Now we will wait till the doctors tell us the news. 24.08.2005 At the end of July 2005, Anton Kalinichev came to for a routine check.  He is the first kid who has had unrelated marrow transplantation at the RCCH. Anton's mother is telling: "Anton had histiocytosis. This hereditary disease is very grave, and its treatment using any methods except for marrow transplantation is not too efficient. We had this transplantation in the December of 1997. Anton was one year old at the time. Almost eight years have passed. Anton has control examinations at this hospital each year. The results of the tests are good. Ultrasonic examinations and blood tests show that the boy's condition is normal. Anton finished his first school year in 2005. He visits an ordinary secondary school. He studies with great success and pleasure. He is especially keen about reading and Russian language. And drawing is his favorite hobby, although he likes to draw only cars. I just want to say that I am very happy to have such a child. He is so smart, so wonderful! We thank everybody who has helped us!" 23.08.2005 Serezha Tropin, one of the kids after successful unrelated marrow transplantation, left the hospital and returned home almost two months ago. After the transplantation, Serezha had to stay in Moscow with his parents for over a year, so that the doctors could control his condition. Now they are completely satisfied with it. Serezha will have to go through long adaptation to normal life, and contacts with the outside world will still be limited for him for many months. But the most difficult time is already over.
Bought since August 1 to 17: Consumables for the Department of Immunology worth 11,014.90 roubles ($385). Medical services for treatment of Badal Rafiev (Department of Oncohematology-16) for 172,407.83 roubles ($6050). We thank Herr Mathias Meier, who transferred the equivalent of this sum in euro for Badal's treatment. Cyclosporin mono-reagent for 53,592 roubles ($1880) and consumables for 7969.50 roubles ($280) for the Department of Kidney Transplantation. Diapers for orphan babies for a total of 9842 roubles ($350). 10.08.2005 Yesterday little Masha Gudimova returned from the Marrow Transplantation Department to the Department of Oncohematology-16 after successful unrelated transplantation of bone marrow. Engraftment of the donor marrow has already taken place. The girl is gradually getting used to life outside the glass walls of her sterile ward. She wants to go out, while the weather is so sunny. She also wants to visit her neighbors. But, of course, this is all still forbidden. Masha is feeling fine enough, although her legs are weak and ache a little. But the doctors say that this will soon be all right. Sasha Melnikov is the next candidate for unrelated marrow transplantation. He will soon be transferred to the Marrow Transplantation Department, because his operation is scheduled for August 22 or 23. His chances for recovery are not so fine as we would like them to be but, as the doctors say, they are still quite real. Please pray for the boy. Two girls from Beslan, Lena Vazagova and Alya Fadeeva, came to the hospital for a check. In the autumn of 2004, both girls were patients of the Abdominal Department, where they were admitted with serious bullet and shrapnel wounds. Now the doctors say that both girls are in good condition. Lena Vazagova will spend some time at a health center near Moscow, and her friend Alya will receive planned treatment at the Department of Microvascular and Plastic Surgery.
29.07.2005 The following items have been bought: Consumables for the Department of Oncology for a total of 40,107.74 roubles ($1400). Desferal (12 packs) for Polina Stepanyuk from the Department of General Hematology for a total of 29,380 roubles ($1030). Cardioxane (3 packs) and Hartman's solution (4 packs) for Zaira Chanieva (Department of Oncohematology-27) for a total of 9652.03 roubles ($340). Cardioxane (2 packs) and Hartman's solution (2 packs) for Egor Kindeev (Department of Oncohematology-27) for a total of 13,076.18 roubles ($460). Farmorubicin (6 packs) for Kirill Vozhegov (Department of Oncology) for a total of 3180.72 roubles ($110). Consumables for the Department of Immunology for a total of 11,239.30 roubles ($400). Consumables for the Department of Oncohematology for a total of 3408 roubles ($120). Vero-Ifosfamide (9 packs) for Anya Ovsyannikova (Department of Oncology) for a total of 6199.47 roubles ($220). Alkeran (5 packs), Vero-Ifosfamide (2 packs), Farmorubicin (2 packs), and Zavedos (18 packs) were bought for Yulia Sych (Department of Oncology); Zaira Chanieva, Andrei Osipov, Egor Kindeev (Department of Oncohematology-27) for a total of 74,981,67 roubles ($2630). Coaxyl (2 packs) for 531 roubles ($20) and Ursofalk (1 pack) for 1680 roubles ($60) were bought for Agunda Gagieva (Department of Marrow Transplantation). Preparation of allografts for Sor-Ali Batalov (Department of Abdominal Surgery) for 17,000 roubles ($600). Farmorubicin (24 packs) for Anna Ilyushina and Oxana Lutsenko (Department of Oncology) for a total of 12,722.88 roubles ($450). Cardioxane (3 packs) for Andrei Osipov and Zaira Chanieva (Department of Oncohematology-27) for a total of 16,500 roubles ($580). 28.07.2005 Katya Sorokina died. When Katya and her mother left the hospital a month ago, after it had become clear that her condition was hopeless, Dr. Litvinov from the Department of Oncohematology-16 said that it was a courageous action. When Katya returned home, she took off her mask for the first time in many months and went dancing. The little time left to her she spent with her friends and relatives, whom she missed in Mocsow so much. She felt more or less fine till the very end. She went out with her friends, visited them, danced, smiled at the summer. She was lucky enough to have no physical suffering during her last days. She was a wonderful girl with a courageous and kind soul. From August 1 to 17, the following items have been paid for: 01.08.2005 Nimotop (7 packs) for >b>Kozaryan from the Department of Kidney Transplantation (7115.99 roubles/$250) 01.08.2005 Zyvox (10 packs) for Pavel Kuzin from the Department of Oncohematology-16 (26,000 roubles/$910) 16.08.2005 Consumables for the Department of Oncology (11,330.40 roubles/$400) 16.08.2005 Viferon (3 packs) and Zeffix (1 pack) for Egor Kindeev (3826.17 roubles/$135) 16.08.2005 Consumables for Faizullina, Logunova from the Department of Oncohematology-16 and Shcherbakova from the Marrow Transplantation Department (117,313.74 roubles/$4115) 16.08.2005 Repeated determination of blood cells for the family of Ismail Mirza-Zade from the Marrow Transplantation Department (2200 roubles/$75) 16.08.2005 Repeated determination of blood cells for the Efremov family from the Marrow Transplantation Department (2200 roubles/$75) 16.08.2005 Repeated determination of blood cells for the Lopatkin family from the Marrow Transplantation Department (2200 roubles/$75) 16.08.2005 Repeated determination of blood cells for the Konchev family from the Marrow Transplantation Department (1100 roubles/$38) 16.08.2005 Repeated determination of blood cells for the Golubkov family from the Marrow Transplantation Department (1100 roubles/$38) 16.08.2005 Repeated determination of blood cells for the Vazhenin family from the Marrow Transplantation Department (2200 roubles/$75) 16.08.2005 Repeated determination of blood cells for the Gudimov family from the Marrow Transplantation Department (2200 roubles/$75) 17.08.2005 Intocan-A syringe pen (12) Sasha Ch. from the Department of Otolaryngology (78,297.72 roubles/$2750) 22.07.2005 Today, early in the morning, Kolya Dvoryaninov died. Unfortunately, he had a relapse of leukemia in the beginning of 2005. It was a very grave biphenotypic form, which is very hard to cure. Kolya returned to the Department of Oncohematology-16, where he spent the last several months under intense chemotherapy. The treatment was very severe, and the chances were slight. But the doctors and the parents decided to fight for Kolya's life till the very end. The boy behaved very courageously. Kolya was a kind boy and a pure soul. He managed to give much joy to his relatives and friends, and they will always remember him. 21.07.2005 Dr. Mikhail A. Maschan, who heads the Department of General Hematology, told us that an anonymous sponsor is ready to pay the whole sum for the radiation treatment of Dima Rogachev. 20.07.2005 Baby patient Dima Ch. was transferred from the resuscitation ward to the Department of Abdominal Surgery. Unfortunately, this tiny kid, aged only 1.5 months, has no parents. He was admitted to our hospital from an orphanage in the Tver region several days ago and immediately had an operation. The surgeons successfully removed a congenital defect that impaired his digestion and development. Now the boy must be all right. 19.07.2005 Dr. Dmitri V. Litvinov, who heads the Department of Oncohematology-16, tells us about two of his patients: "Alina Faizullina has presently completed the intense part of the protocol. Now she is in deep aplasia and receives platelet and RBC transfusions. However, there are no serious infectious problems as yet. She will have her last check in a week. After it, she will either finish with the chemotherapy or receive another cycle, and then supporting therapy will begin. The fact is, she still had a certain residual formation; part of the specialists said that it was just a scar, but others suspected that it was a residual tumor. We will try to determine it now once more using MRI and possibly also using positron emission tomography (PET) in order to understand whether we should continue with her chemotherapy, consider some other options, or finish the therapy at all. The previous check showed that this scar, which had previously been very small, became even smaller. Since it is located in virtually inaccessible cranial structures, surgery is impossible, all other options can be only exclusive, and we won't discuss them before we receive the results of the examination. I must say that the visitors of our site have helped us very much in Alina's treatment and are still helping us. Some people transferred money to the account of our charity foundation, and others just personally came to the hospital and offered their help. Egor bought many medicines for Alina when they were lacking at the hospital: before the New Year holidays and then several times more, up to April. Tatiana and her husband also came to our department some time ago and said that they were ready to help Alina. They paid for her last cycle of Topotecan therapy (this expensive drug is used for intense chemotherapy) and offered that they would pay for the control examination. It seems that we will have to perform a PET scan for Alina. This procedure is fairly expensive, about $800. Masha Logunova must presently recover from her deep aplasia after the final cycle of intense chemotherapy. The girl had infectious complications and fever, and such severe stomatitis that she is still unable to eat. But the fever is over now, and the girl is feeling better. After the end of Masha's aplasia, in several days, she will start supporting therapy. Possibly she will receive it at home, because life in Moscow is expensive for Masha and her mother, and the chemotherapy that she is to receive further is not intense or difficult, and so the local hospital can well provide it. If the family decides to receive the therapy at home, Masha will come to us once in six weeks for reinductions. 16.07.2005 Alexei bought Cancidas for a total of 129,000 roubles ($4500) for Masha Gudimova from the Marrow Transplantation Department. 15.07.2005 A new electric laundry drier was bought was the Marrow Transplantation Department. It costs 20,000 roubles ($700). For patients of this department, this is a vitally necessary thing: according to strict sterility requirements, the clothes and bed linen are to be changed and washed every day. Washing and drying machines here quickly wear out and must be regularly replaced by new ones. 14.07.2005 A wheelchair was bought for Nastya Meleshenko. It costs 29,041 roubles ($1020). Nastya and her mother whole-heatedly thank everybody who has responded! 13.07.2005 The following items were bought from June 27 to July 13: Sonosite, an apparatus for ultrasonic examinations, for the Department of Neurosurgery for 430,081.50 roubles ($15000). Oxygen concentrator for Valeria Zubritskaya for 65,800 roubles ($2300). Ten packs of Orungal for Zhenya Shcherbakova from the Department of General Hematology for 13,242.60 roubles ($465). Three packs of CellCept for Maria Mulyalkina, from the Department of Immunology for 30,697.11 roubles ($1080). Three packs of Valtrex for Sasha Rogachev from the Department of Oncohematology-16 for 2950.59 roubles ($105). Nine packs of Holoxan for Anya Ovsyannikova from the Department of Oncology for 10,089 roubles ($350). Five packs of Alkeran and ten packs of Endoxan for Pavel Kuzin from the Department of Oncohematology-27 for a total of 18,695.65 roubles ($650). Two vials of Zovirax for Dana Plieva from the Department of Oncohematology-27 for 3000 roubles ($105). The following sums were also paid: Test for the Department of General Hematology made from February to May 2005: a total of 7780 roubles ($270). Test for Dima Rogachev from the Department of General Hematology: 1100 roubles ($40). Medical services provided to Nastya Zhigalik from the Department of Kidney Transplantation: 46,000 roubles ($1615). Nurse for Slava R. from the Abdominal Department: 17,400 roubles ($610). Tests for the Department of Kidney Transplantation performed in April 2005: 4075 roubles ($140). Tests for the Department of Kidney Transplantation performed in May 2005: 1755 roubles ($62). 12.07.2005 We regret to inform you that the family from Moscow who wanted to adopt Vitalik M. had to give up this idea due to serious and objective reasons. The kid will return to his orphanage in Syktyvkar. 01.07.2005 An oxygen concentrator was bought for Lera Zubritskaya. We whole-heartedly thank Alexander, who has paid the entire remaining sum: over $2000. 29.06.2005 The following drugs have been bought since June 20, 2005: For the Departments of Oncohematology-16, -27, and Marrow Transplantation: 30 vials of Zovirax for a total of 51,678 roubles (about $1850). For Masha Logunova from the Department of Oncohematology-16, 12 vials of Zovirax for a total of 20,671.20 roubles (about $740). For Kirill Vozhegov from the Department of Oncology, 3 vials of Farmorubicin for a total of 15,636.39 roubles (about $600). For Sasha Ch. from the Department of Otolaryngology, 8 units of Intron A for a total of 51,313.76 roubles (about $1830).
27.06.2005 The June issue of the ComputerPress journal (in Russian) has published the result of the competition of Flash reels and programs for PC. The winner in the Flash reel nomination was White Angel, an animated film created by children from the RCCH. Dozens of children from various departments, aged from 4 to 16, participated in its creation. The project was headed by artist Boris Korshunov and programmer Alexander Rybchenkov, who has created a computer class at the RCCH Help Group. 26.06.2005 We regret to tell you that Katya Sorokina has not responded to anti-relapse treatment: there was no remission after the first early relapse. When her mother saw negative results of the test, she decided to stop struggling and to take Katya home. They left the hospital on Friday. Katya understands everything. She is very homesick. Of course, she will be in better spirits when at home. 21.06.2005 Alesha Nevstruev, the boy for whom you bought Cancidas, died. The doctors fought for his life till the last moment. His mother's grief is immeasurable. But she is still grateful to everybody who helped Alesha: it is very important for her to know that all things possible have been done for her son. The rest is beyond our capacity... 20.06.2005 Donor marrow for Masha Gudimova, a three-year-old girl, was received from Germany on Saturday, June 18, at 1 a.m. She had this transplantation at 6 a.m. The doctor didn't even wake her up. This little girl cannot yet tell us her night dreams, and so we don't know if she saw anything unusual that night. In any case, she woke up in the morning in fine condition and without any fever. She feels more or less good, but it is very depressing for her to stay in an isolated ward, where her friends may not visit her. The following drugs and consumables have been bought since June 6, 2005: Medical consumables for a total of 331,053.32 roubles (about $11,800) were bought for the Departments of Oncohematology-16, -27, and Marrow Transplantation. For Maria Tserebyarova from the Thoracic Department, two packs of Nexium and one pack of Duspatalin Retard for a total of 1720 roubles ($61) were bought. For Alexei Nevstruev, Agunda Gagieva, and Katya Klimovskaya from the Department of Oncohematology-27, 10 packs of Contrical worth 5974 roubles ($210) were bought. For Sasha Karmanov, Slava Miftakhov, and Andrei Timoshenko from the Department of Microsurgery, Collost for a total of 37,961 roubles ($1355) was bought. For Masha Gudimova from the Marrow Transplantation Department, 2 packs of Endoxan for a total of 1635.02 roubles ($58) were bought. For Agunda Gagieva from the Marrow Transplantation Department, 5 packs of Endoxan and 4 packs of Thiophosphamide for a total of 5159.39 roubles ($185) were bought. For the Department of Oncohematology-16, 100 packs of Vincristine, 100 packs of Cyclophosphan Lance, and 1 pack of Ceenu for a total of 19,444.72 roubles ($695) were bought. Huggies disposable diapers for a total of 8500 roubles ($305) were bought. A total of 4200 roubles ($150) was paid for tests to be done for the Shcherbakov, Rogachev, and Irisbiev families from the Marrow Transplantation Department. 19.06.2005 On June 19, young chess-players from hematological departments of the RCCH and volunteers of the Donors for Kids groups received a wonderful visit. Anatoly Karpov, ex-world champion, came to the hospital. Continued... 17.06.2005 Dmitri has paid the whole sum needed by Sasha Karmanov's family to fly from Magadan to Moscow and to transport their belongings to Samara by railway. 16.06.2005 Thanks to the financial support provided by the Boomerang foundation since January 2005, radiation treatment of the following children at the Russian Scientific Center for Roengenology and Radiology has been paid for: Yana Krendeleva (19,955.52 roubles = $700), Olga Kukushkina (18,174 roubles = $640), Vika Semenova (7800 roubles = $275), Anzor Magomedov (7800 roubles = $275), Katya Panasenko (10,374 roubles = $415), Anya Zaitseva (19,955.52 roubles = $700), Sasha Makarov (10,374 roubles = $415), Dima Troyanov (10,374 roubles = $415), Anya Loshnikova (10,374 roubles = $415), Kirill Vozhegov (14,121.12 roubles = $500), Artem Chumakov (10,374 roubles = $415), Alexander Rube (10,374 roubles = $415), Ilmira Gainullina (7800 roubles = $275), and Sasha Melnikov (7800 roubles= $275). 15.06.2005 Unfortunately, the condition of Alexei Nevstruev (the boy who received Cancidas thanks to your donations) has quickly deteriorated after a temporary improvement, when the boy's aspergillosis receded and he could breathe by himself. Now the doctors cannot cope with this exacerbation. Alexei will not need Cancidas, because this drug does not help him any more. We thank everybody who has responded. You gave a chance to this boy. This chance was quite real. But his organism, exhausted by the main disease, did not cope with the aftereffects of the fungal attack.
Very good news about little Slavik R. We are happy to inform you that his original diagnosis (biliary atresia) was wrong! In general, the kid hasn't any serious health problems. He will only go through therapeutic treatment in order to improve the functioning of his liver and gallbladder, which is somewhat impaired. Besides, he was incredibly lucky to find a wonderful nurse at our hospital. Nanny Klava, who is looking forward to having grandchildren of her own, gives a lot of love and attention to the little boy. We are immeasurably grateful to her. The baby has become calm and well-fed during these days, and he has also learned to smile. We hope that the boy will not be disappointed and will find a loving family. A new orphan patient of the Department of Maxillofacial Surgery is from Eastern Siberia. Svyatoslav G. is 2 years 9 months old. This charming boy has a cleft upper lip. An operation will remove this defect completely, and the kid will be able to eat and speak like any normal child. And his smile is already very pretty. Slava is alone at hospital. Mothers of other children take care of him, but, of course, he also needs help from his new friends. A new little girl has arrived at the Abdominal Department. Eva Myakshina is 2 years 8 months old; she is from an orphanage in Kotlas (a town in Arkhangelsk region). Fortunately, a nurse from the same orphanage is accompanying her at the hospital. The girl has a congenital hepatic pathology: cyst of the choledoch. So, an operation is required. The girl smiles at everybody and pays much attention to her looks. She goes out only in a beautiful dress, and she allowed us to take her photograph only after she had her clothes changed and her hair brushed. So far Eva can eat only mashed food, and she has very good appetite! She needs canned baby food: mashed fruit, vegetables, and meat. She also likes juices, and pineapple juice is her favorite! An important note: If you want to help these or other orphan children receiving treatment at the RCCH, please remember that money transferred to our account may be used only to buy drugs and medical consumables for the kids. But the hospital usually has everything necessary for treatment of these orphans. So, if you want to send them a present or to help them in any other way, please first get in contact with us via e-mail (deti@blago.ru in Russian, mary@lexa.ru in English). 14.06.2005 A three-month-old orphan baby from Vladimir has at last appeared at the Abdominal Department of our hospital. The boy's name is Slava. He feels more or less good, eats well and doesn't cry too much. We hope that his diagnosis (biliary atresia) will prove to be wrong. A detailed examination has begun. And another patient from an orphanage, Vitalik M. (who is occupying the adjacent ward), will probably soon have new parents! A wonderful family from Moscow, with two kids of their own, are ready to adopt Vitalik. Presently they are preparing all the necessary documents. Let us wish them good luck!
8.06.2005 Dr. Dmitri V. Litvinov, who heads the Department of Oncohematology-16, tells about the condition of three patients: "Unfortunately, Katya Sorokina has got a relapse, in spite of our treatment. This situation is a priori very grave, because it means that the girl's chances for recovery will be much lower. However, it is not necessarily fatal, and we'll fight for the child's life. We decided (and the girl's parents agreed) to try to reach another remission by intense chemotherapy -- the girl has the first cycle right now. If this remission is reached, we'll consider the possibility of marrow transplantation from an unrelated donor as the final definitive manipulation, capable of destroying the residual pool of tumor cells in the bone marrow to the most complete extent. It is still too difficult to announce any prognosis. The possibility of the above outcome is from 20 to 40 percent, but there are many details that can affect the disease and treatment. So far Katya feels satisfactory, not only as far as medical details are concerned but also in her own opinion. She hasn't got any complaints. She is having her first cycle of chemotherapy. Naturally, all the complications are yet to come; after this cycle, she will need much care. If she manages to reach a remission, then, of course, this cycle will not be the final one and search for an unrelated donor will be launched at the same time. But this is possible only if Katya shows at least some signs of remission after the first cycle. In the worst case, there can be complete refractoriness during chemotherapy, which is seen fairly fast: that is, there is a chance the tumor will grow in spite of the chemotherapy. But, in the opposite case, the girl will have three to five weeks of aplasia after the first cycle, and we'll be able to evaluate the adequacy of her remission about a month later. The situation with Alina Faizulina is fairly good. Her chemotherapy is going on, and two more cycles are planned. Masha Logunova has already gone through four cycles of chemotherapy, and we see a marked positive effect. Cancer cells have disappeared fairly fast. The disorders of her central nervous system have been eliminated almost completely, and Masha's condition has become much better in this respect: there is no more squint, and the facial nerve paresis is almost over. Masha is presently staying at day patient facilities, and she has virtually no complications. The girl has gone through about one-third of the required treatment. Many cycles are yet to come, but so far she is more or less all right." Acknowledgments: An antenna of the NTV+ channel was installed at the Kidney Transplantation Center two years ago. Recently the same TV company installed two more satellite antennas at the hospital: at the Departments of Oncohematology-16 and Oncology. Moreover, the users need not pay any fee for all three antennas. We are sincerely grateful to this TV company for helping our patients, because TV channels often become the only source of news for them, the only window for seeing the big world. Now NTV+ programs will make this window wider and the view from this window will become more diverse and interesting.
07.06.2005 Dear friends, Your help has made it possible to pay not only for Dima Zemlyanski's treatment in Germany but also for his stay in that country during the treatment. We remove Dima's photograph from the first page of our site. Now we'll wait for the news from Germany. Thank you very much for responding! Money to buy hearing aids for Angelina Ladyko was been raised. Two hearing aids for her have been ordered at the Otophon center. They cost 33,000 roubles ($1170). The girl will soon arrive at hospital. We thank everybody who helps this girl hear again! 06.06.2005 The following medications, equipment and materials have been bought since May 14, 2005: A SmartSpec Plus spectrophotometer worth 210,746.82 roubles (about $7500) was bought for the Laboratory of Tissue Typing, Institute of Child Hematology. For the Department of General Hematology, ten packs of Certofix worth 5920.00 roubles ($210) were bought. For Zhenya Shcherbakova from the Marrow Transplantation Department, 25 vials of Zovirax worth 40,192.25 roubles ($1435) were bought. For Ilya Skorikov from the Department of Abdominal Surgery, drugs for a total of 2128.70 roubles ($75) were bought. For Vadim Markunin from the Department of General Hematology, 16 packs of Elidel cream worth 12480.00 roubles ($450) were bought. For Maxim Apalkov from the Marrow Transplantation Department, 17 packs of Cytotect worth 47,630.66 roubles ($1700) were bought. We are sorry to say that the boy died on May 26. For Katya Sorokina from the Department of Oncohematology-16, two packs of Proleukin worth 31,352.36 roubles ($1120) were bought. For Vlad Ponomarev from the Department of Oncohematology-16, four packs of Alkeran worth 6723.32 roubles ($240) were bought. For Agunda Gagieva from the Department of Oncohematology-27, ten packs of Contrical worth 5871 roubles ($210) were bought. For Masha Logunova from the Department of Oncohematology-16, twenty packs of Zovirax worth 32,152 roubles ($1150) were bought. For Alexei Nevstruev from the Department of Oncohematology-27, two packs of Cancidas worth 36,956.60 roubles ($1320) were bought. Consumables for oncohematology departments for a total of 18,042.12 roubles ($645) were bought. Consumables for the Departments of Oncohematology and Marrow Transplantation for a total of 38,147 roubles ($1360) were bought. Tests for the Krasavin family from the Marrow Transplantation Department for a total of 2714 roubles ($95) were made.
02.06.2005 Two packs of Cancidas were bought for Alexei Nevstruev. Irina provided 25,000 roubles (about $900) for buying this medication, and Dmitry paid for another pack. An anonymous contributor donated $1000 for buying Cancidas and asked us to add the remaining part of the sum to the money raised for Angelina Ladyko, who needs a hearing aid. 29.05.2005 We are whole-heartedly grateful to members of the Orthodox community of nurses (founded at the 1st City Hospital of Moscow) Tatiana Vasilieva, Elizaveta Shilova, Victoria Pavlyukova, Tatiana Larina, and Nadezhda Grishnova, who are providing round-the-clock care for Vitalik M. from the town of Syktyvkar. This orphan boy is a two-year-old patient of the Abdominal Department.
31.05.2005 sos! Alexei Nevstruev, aged 11, urgently needs financial help. He has acute lymphocytic leukemia and invasive lung aspergillosis. He is in critical condition due to pulmonary fungal lesion. The only drug that can save him is Cancidas. One dose (50 mg) costs about 18,000 roubles ($640), and the treatment should last 10 to 14 days.
27.05.05 Maxim Apalkov died at the intensive care unit in the night of May 26. This wonderful boy, who had been so gravely ill since his birth, was surprisingly courageous. He was a very pure soul and just a very chaming boy; he was capable of being happy and bringing joy to all around him. Maxim had many friends. They were near the boy and his mother Nina to the last minute, trying to help the boy in his struggle with the infection, managing to get (sometimes from other countries) rare and expensive drugs. It was simply impossible to believe that Maxim could die. Forgive us, little Maxim! We failed to help you. 26.05.05 Natalya Vetlugina paid 12,000 roubles for Nastya Meleshenko's corset. When Nastya put in on, she immediately managed to stand up and, after several steps all by herself, asked her mother to take her to the church. She dreamed so much of entering it herself! Her mother took her to the church door in a stroller, and then the little girl managed to enter it and even walk a few steps up. Natalia transferred 10,000 Euro for Dima Zemlyanskii's treatment to the account of the Munster University Clinic. Since the beginning of April, $2500 (or 1995 Euro) was collected for Dima's treatment in Germany via this Web site. So, we are happy to inform everybody concerned with Dima's destiny that the money for his treatment in Germany has been raised. However, the Zemlyanskis still need money just for living. 25.05.05 The staff of the Moscow representative office of the White & Case International Law Firm regularly provide significant help to patients of our hospital. Some days ago, Maya Melnikas from this company had a birthday party and asked her colleagues to bring no presents for her but instead to transfer this money to children of the Russian Children's Clinical Hospital. As a result, the children received about 25,000 roubles ($900) from Maya's colleagues. Such events have recently become a good tradition among our benefactors. 23.05.2005 The Donors-for-Kids group and the Drova chain restaurant have arranged an event stimulating potential donors. In the summer of 2005, any person who donates platelets for children from the Russian Children's Clinical Hospital will receive a coupon providing 100% discount for a business lunch in a restaurant of this chain. It is the first time that businessmen in Russia support blood donors. We hope that it will give many children a better chance for recovery. 20.05.2005 Slava Vazhenin does not need granulocyte transfusions any longer. Engraftment of donor marrow has started, and his own granulocytes have appeared. Now they must help the boy to fight the infection. We thank all donors who have helped Slava live to this moment!
19.05.2005 The Russian Chess Federation has transferred 300,000 roubles (over $10,000) for Dima Zemlyanski's treatment in Germany. We are whole-heartedly grateful to the Presidium of the Russian Chess Federation and personally to its chairman Alexander Zhukov, First Deputy Chairman of Russian State Duma. Also, a benefactor named Alexander transferred $1000 to the account of Dima's mother Elena Zemlyanskaya to provide for board and lodging: Dima and Elena will have a social apartment in Munster, and this will cost 40 Euro per day. The daily food expenditures are approximately the same. Dima Pylaev died in the evening of May 18. His disease started long ago. First it was lymphoma, then a relapse in the form of lymphocytic leukemia. The only way out was marrow transplantation from his father. The first transplantation took place in November 2004, then donor cells were replated in February 2005. Both times, no engraftment took place. The last attempt was made on April 26. The transplanted cells started working, Dima even gained his own granulocytes. But his organism, exhausted by the long disease, couldn't bear it anymore. His lungs failed. Dima understood that his condition was very grave. He was taken to the intensive care unit on May 17. After a day and a half of artificial pulmonary ventilation, Dima died. During the terrible last hours, Dima's mother constantly repeated, "Everything has been done for us. The doctors fought up to the last day. The donors kept coming up to the last day." Olga knew what was happening. But the thought that other people struggled for Dima up to the last day made her stronger. 18.05.2005 Maxim Apal'kov will not need granulocyte transfusions. The presence of a fungal infection, which can be fought by donor granulocytes, was not confirmed. Additional examinations showed that the complications in the boy's condition were due to the CMV infection, and granulocytes are of no help in this case. But Maxim, just as other children, will need platelet transfusions.
17.05.2005 About the treatment of Alina Faizulina and Katya Sorokina. Their doctor-in-charge Larisa N. Shelikhova tells us, "As to Alina Faizulina, we are going on with the therapy of her basic disease, rhabdomyosarcoma. Unfortunately, her tumor has not disappeared completely after all the treatment: chemotherapy, marrow autotransplantation, and radiation therapy. We had to start special chemotherapy for refractory tumors. Presently Alina endures this chemotherapy quite well, her condition is satisfactory, and we hope that the therapy will be efficient. The progress will be clear after the end of her current block of chemotherapy. Between the chemotherapy blocks, the girl receives out-patient treatment and arrives at the hospital twice a week." "Katya Sorokina is in remission. She has almost completely recovered after marrow autotransplantation. Now she receives Proleukin. She feels good and energetic, and she need not take any antibiotics. However, she is still transfusion-dependent, i.e., needs blood components (once or twice a week)." 16.05.2005 News release: concert "Give Me Life" The only performance under the title "Give Me Life" will take place at the Sovremennik theater on June 1, 8:00 p.m. It will tell about children who have recovered from cancer, who have conquered the disease, and about children who can conquer it with your help. Among the participants, there are more than 30 top Russian movie, theater, music, and TV stars. If children die of cancer, it is not because cancer is incurable. Cancer is curable. This disease is dangerous, grave, but curable. It is just that we don't provide due treatment to these children. Ten years ago, the survival rate of children with cancer in Russia was only 5%. In America and Europe, it was 70%. Now we have taught the doctors and mastered up-to-date treatment methods. Now 50% of children with cancer survive in Russia. In America and Europe, 80% survive. We are 30 percent behind. Five thousand Russian children fall ill with cancer each year. Half of them, that is, 2500, survive because of due treatment. And 30% more, 1500 children, could survive but die. Each year. Because there is a shortage of medicines and equipment, good clinics and qualified specialists, donor marrow and donor blood. All of this could be bought for money. Each year, 1500 children in Russia could survive but die just because we had too little money. In Beslan, 186 children were killed. And here we have almost ten Beslans each year. Just because there isn't enough money for the treatment. How come that Russia hasn't even a single up-to-date medical center for child oncohematology and only three clinics performing marrow transplantation, whereas there are 90 such clinics in Germany? How come that Russia, where only 10 percent of children with blood cancer receive the needed marrow transplantation, has no marrow donor bank of its own? How come that mothers of children who need daily transfusions of irradiated donor blood have to carry the bags of blood from the Russian Children's Clinical Hospital (which is the clinic of the Institute of Child Hematology) to the other end of Moscow in order to irradiate this blood? How come that the Institute has no apparatus for blood irradiation? This setup costs $200,000. The price of a car carrying any government official or any prosperous manager of a large company. We believe that no person in the whole world would refuse to save 1500 children if he or she knew about this possibility. We think that the state officials and businessmen are blindfolded by prejudices and obsolete dismal myths concerning cancer. We think that state financing and charity donations in the sphere of child oncology are so scarce partly because people just don't know that cancer is curable. We want to tell them that cancer is curable. We want to tell that a child's organism can endure this treatment, which is often too severe for an adult. All the funds raised due to this performance will be used to buy a setup for irradiation of donor blood and for marrow transplantation operations to children with leukemia. 14.05.2005 Since April 19, 2005: A total of 8600 roubles (about $300) was paid to perform tests for the Departments of General Hematology and Marrow Transplantation. 20 packs of Zovirax wirth 32,153.80 roubles (about $1500) were bought for Katya Sorokina from the Department of Oncohematology-16. 6 packs of Remicade for a total of 158,058.72 roubles (about $5650) were bought for Sofia Zabolotskaya and Polina Trushina from the Department of Immunology. A Neuroelect neurostimulating device worth 28,320 roubles (about $1000) was bought for Andrei Timoshenko fro the Department of Microvascular Surgery. 10 packs of Valtrex and 10 packs of Brifeseptol for a total of 10,860 roubles (about $400) were bought for Alina Faizulina and Katya Sorokina from the Department of Oncohematology-16. The necessary medical consumables for a total of 434,540.11 roubles (about $15,500) were bought for the Departments of Marrow Transplantation, Oncohematology-16, and Oncohematology-27. 5 packs of Desferal worth 10,832.85 roubles (about $390) were bought for Vitali Mstoyan from the Department of General Hematology. 2 packs of Epivir worth 14,719.68 roubles (about $500) were bought for Igor Obolenski from the Department of General Hematology. 2 packs of Cytotec worth 13,608.76 roubles (about $490) were bought for Maxim Apalkov from the Marrow Transplantation Department. 3 packs of Remicade worth 79,029.36 roubles (about $2820) were bought for Nastya Zhuravleva and Department of Immunology. A modular hip prosthesis worth 129,690 roubles (about $4650) was bought for Sasha Tadtaev.
10.05.05 About pleasant and handy presents. During this spring, our children received many wonderful presents. So there will be a little bit less unhappiness and boredom at the hospital. Some presents, so to say, just cry out to be told about. For example, just imagine that there is a horse at the hospital church! Yes, it has been there for five years or so. Continued...
06.05.2005 Dear friends, we are happy to inform you that Dima Zemlyanski and his mother have arrived in Germany for treatment. The managers of the Munster University Clinic allowed, as an exception, to start Dima's radiation treatment without preliminary payment of the entire sum needed for the treatment, because violation of the treatment schedule prescribed by the protocol would be extremely dangerous. Now Dima will be able to start the required treatment, and we have somewhat more time to find the money for it, because the problem of payment has not yet been resolved! We are whole-heartedly grateful to our dear friends, the Russian Orthodox parish of Zurich and personally Father Oleg Batov and his wife Maria, for help in negotiations with the Muenster University Clinic and for providing a letter of guarantee. We also thank the Aeroflot company for allowing Dima and his mother to buy tickets at a reduced price. We are sincerely grateful to Irina, who gave $2000 to the Zemlyanskis for their flight to Germany, food and everyday needs.
05.05.2005 Katya Sorokina's blood counts are already almost normal. She has even been allowed to leave her sterile ward. So far, however, she may walk only in the hospital passage.
04.05.2005 Said-Emin Usmanov died in the resuscitation ward on May 2. Dr. Dmitri V. Litvinov tells, "The boy, who was in aplasia after a chemotherapy block, developed fulminant sepsis and, as a result, acute cardiovascular failure." When we placed the plea to help this boy on our Web site, it was clear that his condition is extremely grave. But still there was hope. Said-Emin believed that he would yet walk and looked forward to receiving a corset, which would help him stand up. We were well acquainted with this friendly family, which fought for the boy's health for many months. Our sincere condolences to the boy's parents Aimani and Salman. 03.05.2005 The Easter services took place in the hospital church. In the morning of Holy Saturday, May 30, there was a Divine Liturgy. Then the Easter cakes were distributed among the hospital departments. And at the midnight of May 1, the main Easter service began. A procession walked along the Leninski prospekt. Thus year, the doctors had allowed especially many children to participate. The night was so warm and quiet that even parents with small kids and children in wheelchairs joined the procession. See photographs.
26.04.2005 Recently we learned that Dmitri Malikov, a well-known Russian pop singer, is an attentive reader of our site. He and his wife phoned us and came to the hospital. Their attitude to the children was very kind and unaffected. They first visited patients of Oncohematology-16 whose stories are displayed on our Web site, and their all other patients of this department as well. Dmitri smiled at the children and joked with them, told them funny stories, yet we could see tears on his eyes when he was leaving the wards. Tears that the children didn't see. When Dmitri saw the drawings of our young artists, he said that he wanted to have one of them: bright flowers against a dark background. These beautiful flowers, created by a gravely ill child in spite of everything, are a sign of wonderful spiritual strength, which is something we should learn from these courageous and talented children. Dmitri wants to hang this picture in his studio. The guests were deeply moved by what they saw at the hospital and said that it is necessary to draw the attention of actors, musicians, cultural activists to the problem of helping gravely ill children. Now he will try to tell his colleagues about his impressions. Kids and mothers from the Oncohematology Department wrote a small letter
of gratitude to Dmitri for his kindness and compassion.
The whole sum for Sasha Tadtaev's prosthesis has been raised! Sasha is invited to the RCCH. We thank everybody who has responded.
A few words about the results of recent unrelated marrow transplantations. In the case of Zhenya Efremova, who had this transplantation a month ago, her blood cell counts regularly increase, indicating engraftment of the donor marrow. Zhenya was even allowed to go out of her sterile ward into the passage. Maxim Apal'kov hasn't yet shown signs of engraftment, and another portion of donor cells was administered to him. He behaves very courageously and feels more or less satisfactory.
24.04.2005 A few more words about our friends and fulfillment of best dreams. Once, on the eve of New Year, kids from the Oncohematology Department were sitting and sadly moaning, "It would be good to be home, it would be good to have a holiday." And Denis K. arranged a poll: which famous person do the children want to see most of all? It was to be just a dream, but we decided: the "winner" of this poll must visit the children at the hospital! The kids wrote the names of football players, actors, etc. on colored square pieces of paper. But mostly these were the names of musical groups, and the absolute winner was Roma Zver' and his group Zveri. It is wonderful that we didn't have to insist at all. (However, the musicians managed to come here only in April, when they had a break from their concert tours.) And so they came to the hospital with five huge bags of toys. At first they planned to spend no more than two hours with the kids, but then they had to forget any other business scheduled for this day. The enraptured children surrounded them, and the musicians just couldn't go away but instead walked from one department to another and then yet to another. They visited all the departments with the most gravely ill kids: Oncohematology-16 and -27, General Hematology, Oncology, Kidney Transplantation, and even the sterile Marrow Transplantation Department (where only Roma himself was allowed to go in and only in special sterile clothes: smock, shoe covers, cap, mask). The doctors permitted them to hang toys in plastic bags outside the window of each sterile ward: thus the kids will be able to look at these toys through the glass. In general, the musicians brought a real festive mood to our hospital! They left us their phone number and promised to visit us later, too.
19.04.2005 Since April 13, 2005: Five packs of Zovirax worth 8038.45 roubles ($290) were bought for Zhenya Shcherbakova from the Marrow Transplantation Department. Four packs of Eloxatin Leof worth 47,200 roubles ($1685) were bought for Pavel Kuzin from the Department of Oncohematology. One pack of Gliatilin worth 379.95 roubles ($14) was bought for Sveta Volik from the Department of Oncohematology. Twenty packs of Zovirax worth 32,153.80 roubles ($1150) were bought for Katya Sorokina from the Department of Oncohematology. Six packs of Remicade worth 158,058.72 roubles ($5650) were bought for Sofia Zabolotskaya and Polina Trushina from the Department of Immunology.
24.04.2005 SOS! Dima Zemlyanski needs urgent help.
Dima Zemlyanski's polychemotherapy has been successfully completed. To conclude the treatment, Dima must also undergo radiation treatment according to a radical scheme. He had a consultation at the Russian Scientific Center for Roentgenology and Radiology. And the doctors suddenly discovered that, given Dima's myocardial condition, radiation treatment of his mediastinal lymph nodes using an ordinary accelerator is absolutely out of the question, because this treatment would be life-threatening for him in itself. And the equipment necessary for due treatment isn't available at any radiological department in Russia. Dima's medical certificate (in Russian)
This was quite unexpected for everybody.
It has been recommended to continue Dima's treatment at the Munster University Hospital (Germany), one of the few medical centers that have the equipment necessary in this case.
The treatment protocol requires that Dima should start radiation therapy no later than on May 10, because a longer time between the end of chemotherapy and the beginning of radiation treatment may make all the preceding chemotherapy meaningless! And, according to the terms of treatment in this German hospital, full payment for the treatment must be provided by the patient by the moment he or she is admitted to the hospital. This treatment will cost 20,000 euro.
Dear friends! We must help Dima. You have done so much for conquering his disease. But this step remains. Yes, we were not ready for it. But we can't leave this boy in trouble!
18.04.2005 Dmitri V. Litvinov, the head of the Oncohematology Department, tells about his patients: "As to Alina Faizulina, we had long consultations with specilists from the Burdenko Institute of Neurosurgery. And it was decided that the slight residual component after the radiation therapy, which we had planned for neurosurgical removal, should not be removed right now, because there is no convincing data confirming that it is not just a post-radiation scar. And it is too dangerous to remove it at any cost, because it lies too deep. The girl has returned from the Burdenko Institute of Neurosurgery and resumed her chemotherapy. After the next course, her situation appears to be absolutely stable, both clinically and neurologically. There is no convincing data as to the existence of a live tumor, so we can say that she is all right. More than 40 days have passed since Katya Sorokina's marrow autotransplantation. There are certain slight signs of engraftment, but, unfortunately, her leucocyte count is very low. Her clinical conditions is quite decent, no signs of infection, no fever, but leucocytes don't grow as yet. But it is too early to lose heart; there is still come time, and we hope that the girl will recover."
15.04.2005A few words about everyday life of the hospital. We thank everybody who provides the children with games and stationery. In March, all 30 in-patient departments of the hospital handed us applications for playroom equipment. And presently the teachers of all the department have already received stationery and table games. This work is going on. The Detski mir ("Children's World") trade center has sent us large toys (doll prams, rolling toys, trikes, etc.). Some of them have already been sent to the playrooms of the Departments of Psychoneurology 1 and 2, Nephrology, Gynecology, Ophthalmology, and Microvascular Surgery; others are waiting for their turn. The Department of Oncology, to the kids' real delight, received a huge puffing and honking toy train, which can accommodate a whole crowd of children. At the same time, of course, many things are still lacking. If you can help us with children's games, books, kits for creative work, etc., please contact us at deti@blago.ru, and we'll tell you what exactly is needed and in what quantities. Our little patients and their parents also receive clothing and footwear. The goods that were sent from the Moskva trade center in Lyublino have not yet been exhausted, and another car with new good clothes and footwear for the children came to the hospital in the beginning of April (many thanks to Katya N.!) Last week, 18 kids from the Department of Oncology and their mothers received various clothes, all quite new: coats and jackets, boots and shoes, underwear and socks. Of course, this help is very important for departments where children have to spend many months. And kids from the Kidney Transplantation Department received a wonderful present from the Game Land publishing house: a Game Cube gamepad with a set of games for it. Four players can use this gamepad at a time. This present was brought by Yuri Pomortsev, publisher of game journals of the Game Land publishing house; Fedor Usakov, editor-in-chief of the Mobil'nye komp'yutery (Mobile Computers) journal; and Mikhail Razumkin, editor-in-chief of the Strana igr (Game Country) journal. The children also received disks with PC programs and books on computers. The guest talked to "kidney" patients (many of them are enthusiastic and really advanced computer users!) for several hours and promised to visit them in future.
14.04.2005 Maria Julia Mantilla Garcia, Miss World 2004, visited Russia last week. Although she had many plans for this visit, the young girl from Peru willingly responded to our invitation to visit gravely ill children at the Russian Children's Clinical Hospital. Accompanied by Julia Evelin Morley, president of the Miss World competition, and Miss World committee members, Maria Julia visited patients of the Kidney Transplantation Department and Department of Oncohematology-16. In spite of the language barrier and the presence of journalists and TV correspondents, the meeting with the children was warm and touching. Maria Julia approached virtually every child, smiled and said several kind words to everybody. Each kid received a photograph with her autograph. And when Maria Julia saw little Maria Gudimova, who will have to go through unrelated marrow transplantation, and learned how seriously this girl was ill,
she immediately offered her help and said that she was willing to pay for activation of Maria's donor. Julia Morley, president of the Miss World competition, officially invited our beauty Katya Sorokina to England for rehabilitation after the completion of her treatment. The result of the visit was that the Miss World committee expressed its willingness to provide regular help to the RCCH. Presently the actual directions and volume of this help are being discussed.
13.04.2005 A total of 7200 roubles (ca. $250) was paid for tests and medical services provided to Zhenya Shcherbakova, Dasha and Stas Krasavins, and Dima Rogachev from the Marrow Transplantation Department. For Katya Sorokina from the Department of Oncohematology-16, 20 packs of Zovirax worth 29,800 roubles (ca. $1000) were bought. For Zhenya Shcherbakova from the Marrow Transplantation Department, 20 packs of Valtrex worth 51,628.20 roubles (ca. $1850) were bought. For Alan Tovgazov from the Thoracic Department, an untrasonic inhaler and tonometer worth 2600 roubles (ca. $93) were bought. For Zhenya Kudryashov from the Department of Immunology, an Accu Check Active glucometer worth 2200 roubles (ca. $80) was bought. For Danya Plieva from the Department of Oncohematology-16, 1 pack of Calcium D3, 8 packs of Neuromultivit, and 6 packs of Alcar for a total of 2830 roubles (ca. $100) were bought. For Larisa Aibazova from the Department of Oncohematology-27, 3 packs of Zeffix worth 7677.12 roubles (ca. $275) were bought. For Zaira Chanieva from the Department of Oncohematology-27, 3 packs of Zovirax worth 4919.52 roubles (ca. $175) were bought. For Nikita Pogrebnoi from the Department of Oncohematology-27, 5 packs of Mitoxantrone-Lance, 5 packs of Uromitexan, and 15 packs of Holoxan for a total of 21,820.27 roubles (ca. $780) were bought.
28.03.2005 A total of 8876 roubles (ca. 325 US dollars) was paid for the necessary tests and medical services provided to Dima Rogachev and Beslan Saaev. Also, 140,000 roubles (over 5000 US dollars) was paid for the treatment of Dima Zemlyanski. For Dima Rogachev from the Marrow Transplantation Department, Epivir (total cost 14,835.60 roubles, or 540 US dollars) was bought. Also, Epivir for the same sum was bought for Igor Obolenski from the Department of General Hematology. For Zhenya Shcherbakova from the Marrow Transplantation Department, 7 packs of Medovir worth 18,331.06 roubles (ca. 670 US dollars) were bought. For Egor Kindeev from the Department of Oncohematology-27, 2 packs of Ursofalk and 1 packs of Zeffix worth 4373 roubles (ca. 160 US dollars) were bought. For Artem Avirkiev from the Department of Immunology, 3 packs of Diflucan and 7 packs of Mycosyst worth 5569.21 roubles (ca. 200 USD) were bought. For Dima Zemlyanskii from the Department of Oncohematology-27, 1 packs of Ceenu and 4 packs of Leukeran worth 6862.59 roubles (ca. 250 US dollars) were bought. For Alexander Emelkin from the Department of General Hematology, 2 packs of Ursofalk worth 1813.96 roubles (ca. 65 US dollars) were bought. For Katya Korshunova from the Department of General Hematology, 6 packs of Roaccutane worth 16139.10 roubles (ca. 580 US dollars) were bought.
26.03.2005 Zhenya Efremova and Maxim Apal'kov had unrelated marrow transplantation on March 24. Preliminary freezing of the donor bone marrow was performed for Maxim's transplantation; it is the first such case at the RCCH. Thanks to this procedure, the marrow was safely transported from the United States, and there was no need to worry about its preservation during this long flight, which could also involve some delays. So, Maxim's preparatory chemotherapy was performed according to a more sparing schedule. The doctors are pleased with the results of both operations. Now we are waiting for the children's response to the treatment.
Katya Sorokina is successfully recovering after marrow autotransplantation and fells more or less good. The doctors are satisfied with her condition and with the results of the treatment.
We open a new part of our site. It will tell about the destinies of the former RCCH patients after they leave the hospital. During the 15 years that the Help Group has been working at the hospital, we have seen dozens of gravely ill children and become friendly with them. Many of them were cured of their terrible diseases thanks to the doctors' efforts. Some of them have already become adults: they study and work, marry and have their own children. Some have just forgotten about their childhood illnesses, which fortunately didn't leave any trace; others have to observe certain limitations. But one thing is common for most of these young people: their wonderful courage and optimism, which have helped them not only to cope with the disease but also to struggle against everyday problems in their grown-up life. We ask all our "graduates": please write to us, please tell us about your lives! It is very important for all of us: for those who are now patients of this hospital, for their parents, for visitors of this site willing to help them!
25.03.2005 Today we received a lot of books and stationery (15 boxes!) as a present from the Biblio-Globus bookstore. It is the second book-trade holding company that has offered its help to the RCCH and provided books to it. Earlier, we became friends with another large bookstore in Moscow: the Moskva bookstore. The managers of the Biblio-Globus bookstore say that they are ready to provide books and stationery for our hospital on a regular basis. We are whole-heartedly grateful to them and personally to Boris Esen'kin, Alexander Korshunov, and Inessa Antonova.
24.03.2005 Some news about patients of the Department of Maxillofacial surgery. Dr. Sergei A. Yasonov told us, "Ira R. was admitted to our department with the following diagnosis: syndrome of hemifacial microsomia, which means underdevelopment of the ear and lower jaw on the left. The treatment is aimed at correcting the deformation of the auricle and lower jaw. It includes several stages. During the first operation, a compression distraction apparatus was set on the girl's lower jaw, on its underdeveloped half on the left. After 2-cm distraction was achieved and the jaw was successfully extended, the girl went through the first stage of auriculoplasty (plastic surgery of the auricle): a cartilaginous framework was placed under her skin. The girl remained at the department to have specific wound-healing treatment. After the closure of the callus formed as a result of the 2-cm distraction and after the healing of sutures in the auricular region, the second stage of the operation took place: the compression distraction apparatus was removed and plastic surgery of the chin was performed simultaneously with an operation on the upper law in order to form a normal smile, to achieve good matching between the positions of the upper and lower jaws. At the same time, the next stage of auriculoplasty was performed: partial lifting of the auricle. Presently the girl still has a small deformation of soft tissues in the region of the left cheek, which should be corrected after she turns 13 or 14. And the auricle will be completely reconstructed in the nearest month or two. Now the auricle is being contoured, i.e., all the contours of the cartilages become definite, but it is still as if located under the skin of her head. And now, to make the ear, so to say, a separate organ, we must perform an operation to raise the auricle above the skin surface. After that the girl will go home and wait for the next stage of the operation: on the soft tissues of her face."
The situation with Alina Zaitseva was unexpectedly resolved. When the law on monetization of social benefits was put into force, there appeared serious problems with the transportation of ill children to the place of their treatment. Now free-of-charge transportation is no longer available, among other people, to disabled children in orphanages and boarding schools, i.e., to children who live only at the expense of the federal budget. The situation became absurd and almost impossible to resolve: now it is the managers and directors of the orphanages who must find the money for the children's visits to hospitals. This is why the problem with Alina Zaitseva's visit to Moscow (where she was to have an operation) existed for some time. But now we have received news from Kazan: Alina had an operation there within the Operation Smile International charity program, which is aimed at providing free-of-charge surgical help to children with maxillofacial pathologies and is supported by American and Western European specialists.
17.03.2005 The Moskva trade company (district of Lyublino) sent a lot of clothing and footwear for RCCH patients of all ages, including teenagers: warm and light fashionable jackets, sweaters, blouses, T-shirts, caps, jeans, trousers, underwear, shoes for all seasons and of all sizes. First of all we'll give these things to children who have to go through the longest treatment, because they have got no seasonal clothes or have already grown out of them. More than 100 children in need will receive these useful presents.
Igor V., who is now recovering after a serious operation, has been fully provided with stylish and comfortable clothes for the spring and summer. He was very glad to receive the presents. Zhenya Privalov, whom we have been supporting for a long time, is again in hospital: he will have to spend three months in plaster. He was also successfully equipped: in addition to various clothes for the spring, he was also given a sheepskin coat that was just his size.
The Russian office of Procter and Gamble (town of Novomoskovsk) has already helped us many times. The cleansers and detergents produced by this company are not only helpful in everyday life but absolutely necessary for our departments where sterility is required. We thank E.V. Marakhovski, CTO of this office, who organized the delivery of these presents to the hospital: 200 kg of detergent, 80+80 bottles of Fairy and Comet Gel cleansers, 120 bottles of Ace bleacher. All these detergents and cleansers will be used at the Departments of Oncohematology-16, Oncohematology-27, General Hematology, and Immunology.
16.03.2005 From February 28 to March 14: A total of 18,000 roubles (over 6000 US dollars) was paid for laboratory examinations for the Kidney Transplantation Department.
Medicines were bought for the Departments of Oncohematology-16 (34,512.79 roubles, i.e., ca. 1250 US dollars), Oncohematology-27 (10,797.22 roubles, i.e., ca. 385 US dollors, Immunology (14,411.79 roubles, i.e., ca. 515 US dollars), and Medical Genetics (27,702 roubles, i.e., ca. 990 US dollars).
For Katya Sorokina, 4 packs of Adalat and 50 packs of Mycomax worth 17,910.50 roubles (ca. 650 US dollars) were bought.
For Zhenya Shcherbakova, 5 packs of Zovirax and 2 packs of Medovir worth 13,615.20 roubles (ca. 500 US dollars) were bought.
For Beslan Saaev, 14,952.00 roubles (ca. 550 US dollars) was paid
for the necessary tests.
For Vadim Markunin, Adalate and Neotigason for a total of 3418.06 roubles (ca. 125 US dollars) were bought.
For Taya Sheremet, 4 packs of Pulmozym worth 43,946.88 roubles (ca. 1600 US dollars) were bought.
15.03.2005 A baby was born yesterday, on March 14. Why are we writing about this?
Because his mother, Lena Reznichenko, was a patient of the Kidney Transplantation Department of the RCCH. She arrived at the hospital in mid-1990s and spent three years there under regular dialysis, waiting for a donor kidney.
At the end of 1990s, we started receiving the first news about our girls who had had kidney transplantation and then gave birth to their own children. Each of these childbirths is a real miracle. However... somehow you get used to such miracles, because more and more babies are born each year.
This is what Lena wants to say:
"I just tell all the girls and boys from the Kidney Transplantation Department that we go through this operation just in order to live. To study, work, marry, have children. Don't think about the operation itself too much."
11.03.2005 Pulmozyme worth 43,946.88 roubles (ca. 1500 USD) was bought for Taya Sheremet. Since the problem with providing the medicines to this girl has been successfully resolved, we remove her story from the first page of our site.
On March 9, Dasha and Stas Karsavins, who have recovered after unrelated marrow transplantation, went home to Yekaterinburg together with their parents. There they will be under observation at the Yekaterinburg Hematology Center, which maintains continuous contacts with our doctors. Let us wish good luck to this wonderful family!
Some news about patients of the Oncohematology Department.
Katya Sorokina had marrow autotransplantation after the end of her chemotherapy.
Alina Faizulina, after the end of radiation therapy, was transferred to the Burdenko Research Institute of Neurosurgery. There she will be operated in order to remove the residual tumor. Then the girl will return to the RCCH to complete her chemotherapy and to have marrow autotransplantation.
Dima Zemlyanski sent a letter of congratulations to our Web site: "It is still snowing outside, but I can already see some tiny buds on the trees. This means that Nature is awakening from winter sleep and getting ready for quick renewal. Life goes on. And the first holiday in spring is International Women's Day, March 8 - I think this is not just a coincidence! I want to thank you again and again for my own chance to see Spring. Several months of treatment are still expected, but now I see future with optimism, because I know: there are people who don't stay indifferent to other people's troubles, people who help not only with kind words but also with their deeds. I wish you to see many and many grateful children's smiles in your lives. The smiles of children whose destinies you have forever changed for the better. I wish you love, good health, success and luck. Yours respectfully, Dima Zemlyanski"
01.03.2005 On February 19, 2005, a photographic competition "Through My Eyes" was held at the Departments of General Hematology and Marrow Transplantation. It was intended to be part of the international project "Through My Eyes: A Day in the Life of Children with Cancer Around the World," which was organized by the International Society of Pediatric Oncology (SIOP) and International Confederation of Childhood Center Parent Organizations (ICCCPO). For a week, from February 15 (International Childhood Cancer Day) to February 22, the ill children all around the world made photographs for the international exhibition that will be held in September 2005 in Vancouver (Canada) during the ICCCPO Conference. However, our project turned out to be self-sufficient and very interesting. We handed digital cameras to children, and they photographed everything around them at the hospital. Continued...
28.02.2005 Since February 12, medicines for the Departments of Oncohematology were bought for a total of 132,259.81 roubles (ca. 4700 USD).
26.02.2005 The news about candidates for unrelated marrow transplantation.
A letter from the mother of Sasha Melnikov, a patient of the Department of Oncohematology.
"My name is Natalya. My son Sasha Melnikov was born on April 8, 1994. Now he is eleven. He was born a healthy and lively kid, not too large, but very merry and curious. He went to a kindergarden and then to school together with other children of his age, and they always liked him for his kind heart. Not that he was very enthusiastic about schooling, but, being so quick-witted, he easily coped with all his studies. Continued...
22.02.2005 We open a new part of our Web site. It will inform the readers about the development of new medical technologies at the RCCH through charity support. At present, there is no place in the world where high-tech medicine can exist without the support of sponsors. The cost of these up-to-date treatment methods is so high that even in the most developed Western countries, where the state can allot very much money for social needs, both the budget and the insurance companies sometimes fail to cover the expenses of this treatment. Implementing new technologies, making them routine and regular, one helps not just separate people but dozens and hundreds of patients. And charity is the way to solve this problem. Support of programs involving the development of new medical technologies at the RCCH is presently one of the main goals of our Help Group.
19.02.2005 During the third decade of February, unrelated marrow transplantation is to be done to Maxim Apal'kov from the Department of Clinical Immunology. This is what Maxim's mother tells:
"We were admitted to the Department of Clinical Immunology in 1997, when Maxim was just 7 months old. Since 1998, we have been receiving constant treatment there. The diagnosis is primary immunodeficiency, Wiskott-Aldrich syndrome. During all these years, Maxim has been fighting for his life. But, in spite of all the treatment, we ran into another trouble: malignant tumor of the lymph system (Hodgkin's disease) was diagnosed in 2003. There were other complications: a fungal disease and cytomegalovirus infection. Our child has successfully coped with them. But his main disease is still with him. The only chance for recovery, for a healthy life, is marrow transplantation.
Although Maxim is only seven years old, he is optimistic. He hopes that the doctors and many other people can lead him to recovery. He went to the Marrow Transplantation Department in very good spirits, had a look at it, and said that he liked it. He is a real fighter.
We come from a very small settlement in the Kursk region, where people just don't know what marrow transplantation is. The doctors ask, "And how will they perform this operation? Will they inject this marrow into his spine?" This is what the surgeons ask - that is, they just don't know what it is all about.
Ordinary people helped us in raising funds for the operation. None of them was rich, so everybody gave just a tiny bit. The announcement was given in the "Orthodox encyclopedia" TV program. So, our benefactors were Orthodox people who believe in God's mercy and in their own strength. It was only thanks to them that the necessary sum was found.
Maxim will be the first patient here to receive bone marrow from an American donor. Usually donors for the children can be found in Germany, but our case turned out to be very difficult, and it was only in the US that a donor was found. So, much more money was required for the transplantation."
18.02.2005 Dear friends,
This plea is mostly addressed to Muscovites. New patients from orphanages have been admitted to the hospital. What they need most is our and your friendly support, company, home-made food, sometimes postoperative care (and, of course, disposable diapers). See our page about children left without parental care.
11.02.2005 Suince January 1, medicines for a total of 176,714.94 roubles (about 6300 USD) were bought for the Departments of Oncohematology and Marrow Transplantation.
10.02.2005 Children die... Here, at the hospital, where doctors give them all their skill and intellect, all their spiritual and physical strength, where the best medicines and contemporary treatment methods seem to be available, when everything has been tested, calculated and thought over, when all things necessary (and even more) have been done, when the loving and self-sacrificing mothers and fathers are near, when dozens and hundreds of people pray together for this infant's or this adolescent's survival and health... And still children die. Nobody can explain why this child has not responded to treatment, why a medicine that had saved so many other patients of the same department was useless for him or her... Why?
In the beginning of this year, we saw many children's deaths. Including impossible, inexplicable, dismaying deaths. It has been a long time since our hospital had last seen so many funerals.
Yesterday, at the burial service of Nadya Kol'tsova, who died of aplastic anemia, Father George Chistyakov said just a few words. But, at this terrible moment, these words possibly conveyed something very important, concerning Nadya and all other dead children, mentioned or never mentioned here.
"Brothers and sisters,
Today we pray for the soul of an infant, innocent and pure infant Nadezhda. We also pray to her as to one of the saints and ask her: little Nadya, now, in your everlasting life, please pray for us with your innocent lips and ask God to have mercy on us.
This what we pray and weep about.
And your tears, dear Nadya's relatives, let these tears turn into a prayer. Let the tears over a dead body turn into a prayer to this fair angel whom we see now."
Priest George Chistyakov. Oration at the burial service of Nadya Kol'tsova. February 10, 2005. Church of Sts. Cosma and Damian.
3.02.2005 Dima Zemlyanskii is feeling better. During the last weeks, he has been spending a lot of time at the computer. Now he has got Internet access via his mobile phone, and he managed to send us an e-mail himself. In this message, he tells how he copes with the depression and with the hardships of the disease and treatment. Continued...
2.02.2005 Recently two visitors from Beslan appeared in our hospital church: Marina Kadzaeva with Gleb Totonov, a boy of four. A short time ago, they returned from Italy together with other Osetian families whose children had been treated at the RCCH this autumn.
Marina Kadzaeva told us:
"We, my little boy and I, visited Italy for a month and a half for rehabilitation. Gleb was very seriously wounded during the terrorist act, he has got awful traumas, and in Italy he received everything that was necessary for him: both treatment and psychological rehabilitation. I calmed down a bit, and we were somehow distracted from the negative emotions, from the darkness that is filling Beslan now. When we returned to Beslan, this darkness again enveloped us as soon as we left the train, and we again recalled how wonderful, how good everything was in Italy. Our best impression was the kindness, the smiles and compassion of all the people who met us there, who were always with us. They arranged sightseeing journeys for us. As far as I remember, Italy stretches for 1300 km from North to South, and we travelled along 1000 km. Rome was very impressing; we looked through virtually all parts of the city. Also very impressing were Venice and Verona. Then there was that amazing encounter with Albano, the singer: he specially took a flight to see the Beslan children for a hour and a half and the give a concert. It was so wonderful to speak to those people. Many thanks to Ennio Bordato, who organized this visit and our stay in Italy. We could always contact him on any problem and always received a positive answer. One of the aims of this visit was to show my child to Italian doctors, and Ennio organized everything. And, of course, I am grateful to all the people who supported us so much here, in Moscow, during the treatment at the hospital, and who helped in organizing this wonderful journey to Italy."
19.01.2005 Good news from the Department of Maxillofacial Surgery. The money donated by our benefactors was used to buy a so-called Obwegeser set for the department. It is a set of special surgical instruments necessary for correcting deformations of the facial skeleton. Thanks to these new instruments, the RCCH specialists will be able to perform such operations in conformity with contemporary world standards. The set costs 267,941 roubles (ca. 10,000 USD). The instruments have already been received, and the doctors of the department will soon start operations using them.
18.01.2005 The sum of money received from you was sufficient to buy Pari Boy Turbo compression inhalers not only for Sasha Andreev and Sasha Volkov from the Department of Medical Genetics but also for two other patients of the same department: Denis Belyaev and Nadya Cherkasheva.
15.01.2005 Dr. Dmitri V. Litvinov, Head of the Department of Oncohematology, told us the news about three of his patients: Petimat Umarova, Alina Faizulina, and Katya Sorokina.
13.01.2005 Because of the difficult financial situation at the hospital just before the New Year holidays, the money donated for all the children was used from December 15, 2004, to January 1, 2005, as follows. Medicines for a total of 399,926.67 roubles (ca. 14,300 US dollars) were bought for the departments of General Hematology, Marrow Transplantation, Oncohematology, and Immunology. The necessary tests for a total of 13,155.18 roubles (ca. 470 US dollars) were paid for. Medical consumables for a total of 57,614.28 roubles (ca. 2060 US dollars) were bought.
12.01.2005 On Saturday, January 8, at the ending day of Orthodox Christmas celebrations, there was a festive Divine Liturgy at the Hospital Church of the Protection of Holy Virgin. Continued...
11.01.2005 Kolya Melnikov came to the hospital for a routine check before the New Year holidays. This is what Kolya's mother told us. Continued...
04.01.2005 New Year celebration at the RCCH
The whole hospital celebrated the approaching New Year on December 29. This means that this holiday came to every little patient in each of the 30 departments where children receive in-hospital treatment. It is the 16th time that we arrange the New Year celebrations. But still we were full of anxiety during the last days, although many good friends and assistants have appeared during these years and although we have probably learned about all possible pitfalls. Besides, 100% "mobilization" of the organizers (by phone, of course) has been achieved, which is essential for the RCCH with its huge area (10 buildings connected by passages, which means literally miles of walking). At the end of the 1990s, we had to run these miles to and fro several times a day: to load a cart with presents for a certain department in the church, to clarify some problem or to receive information, to get rid of any accidental confusion... And there were so few of us at that time. During the first years, we distributed presents among the departments till very late in the evening and were just half-dead with tiredness, and the children had to wait for Santa Claus for hours (and, due to bad luck, he often ran into them in a passage or turned the wrong way). Continued...
|