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Katya Gordeeva |
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My daughter Katya is 1.5 years old. She is a merry and active girl, who likes
to play with other children, although she cannot yet walk owing to congenital hip dislocation.
She has spent a long time in plaster, and now her both legs are in special splints.But some time ago we learned that she has a much worse diagnosis: mucopolysaccharidosis typ 1 (Hurler's syndrome). Children with such a disease seldom live more than six years. My husband left us after he learned about Katya's illness, and I have to raise her all by myself. She is to have bone marrow transplantation. But she is my only child, and so there is no related donor. Search for such a donor must be performed abroad, but this will cost such a lot: 15,000 euro! Please help us raise this sum! We have little time, because it is highly desirable to perform this surgery before she turns two. Yours respectfully, mother of Katya Gordeeva The doctor's commentOn August 13, 2008, a joint meeting of specialists at our hospital considered further therapy of patient Ekaterina (Katya) Gordeeva, born February 5, 2007, diagnosed with mucopolysaccharidosis type 1 (Hurler's syndrome). Allogeneic transplantation of hematopoietic stem cells is the only efficient method of treating this condition. It should be performed as early as possible, before irreversible alterations develop in the central nervous system and other organs. Physician-in-charge S.V. Mikhailova
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News4.05.2009 Katya Gordeeva was to have her transplantation in May. However, it turned out that the potential donor has medical contraindications, and therefore the transplantation will have to be postponed until a new donor is found. 8.04.2009 We are completing the fundraising for the benefit of Katya Gordeeva. We thank all who have responded and personally Sergei Bogdanov, who yesterday donated the remaining 125,000 roubles ($3750). 19.03.2009 Bone marrow donors have been found for Yura Ponomarev
and Katya Gordeeva. Yura's transplantation is planned for the
end of April; Katya's is likely to take place in May. 9.09.2008 We whole-heartedly thank Ilmar, who handed us the complete sum required to pay for unrelated transplantation of bone marrow to Katya Gordeeva. The fundraising for Katya has been completed. They have helped |
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