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17.02.2003 Remicade worth 25,526.16 roubles was
bought for Katya Markova and Valera Khailov. 08.01.2003 Mr. Dill from the USA and Petr Kroslak from Slovakia will provide Katya and Valera with all the necessary medicines throughout this year. 17.12.2002 Two vials of Remicade worth 49,780.94 roubles were bought for Katya Markova and Valera Khailov. 05.12.2002 Two more vials of Remicade were bought: one for Valera Khailov, and one for Katyusha Markova. 29.11.2002 Sidokhina transferred 100 USD for Valera Khailov via the online credit card system. 12.11.2002 Cavara donated 500 USD for Valera Khailov via the online credit card system. |
This is a plea to everybody who can do something for us.
Please help us!We have a terrible grief. My little son Valera, a four-year-old boy, is gravely ill. Valera is a lively, playful, merry, and sociable child. He likes studying, reciting verse, drawing, and cycling. He laughs in such a clear and merry voice. But our normal life ended a year and a half ago, in June 2001. Valera was vaccinated in his day-care center. Three days later, he developed a high fever and rash. It turned out that he fell ill with rubella. In a week, the fever rose to 41 C (105.8 F), and his joints were swollen. We tried to treat him in three hospitals of three towns: Prokhladnyi, Nalchik, and Essentuki. But nobody could help us or even diagnose the disease. At the end of August of 2001, we took a bus, went to the regional children's hospital in the city of Stavropol, and at last learned Valera's diagnosis: Wissler-Fanconi subsepsis. This is a disease of the connective tissue. The doctors in Stavropol prescribed hormonal drugs, and Valera's condition improved. The fever lessened, the rash disappeared, and the joints were no longer swollen. But our joy was brief. The boy's condition again became worse in March 2002. Again very high fever, rash, and swollen joints. We were admitted to a town hospital in Nalchik but received no real help there again. So I asked the doctors to refer us to Moscow and finally took my child to the Immunology Department of the RCCH, where we have been under treatment up to now. Valera's disease was diagnosed here: juvenile rheumatoid arthritis, systemic form. This disease affects virtually the whole organism, all its systems. Since Valera fell ill, he has been receiving various medicines: hormonal, chemical, antibodies, etc., but there is no positive effect. We tried to treat him using various folk remedies, but there was no success either. For the last six months, Valera has been having a constant high fever of 40-41 C (104-105 F) and pains in his joints. His suffering is undescribable. But now a new drug has appeared, and one course of this medicine will make Valera healthy again. It is called Remicade (Infliximab). It must be administered for one year according to the following scheme: one vial, then another vial two weeks later, then yet another six weeks later, and then one vial every eight weeks. One vial costs 770 USD. We cannot buy such an expensive medicine ourselves. Valera's father left the family when our boy was 18 months. But we hope for the best and believe that kind and compassionate people will help my son to get well - there is just a single step to be done for his recovery! Please help us. Maybe the health of my little son depends on you and you will save him so that his merry laugh won't stop. Thank you very much for supporting us! Natalia Viktorovna Khailova 10.11.2002
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