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30.11.00 Yulya Konyaeva can already walk again following her operation which was carried out in Izrael. She recently visited Moscow
to attend a Paediatrics Conference and all the doctors were amazed that she started walking again after only a brief period
of replacement therapy with only small amounts of preparation administered to her. Yulya has enough medicine to carry her
through up to March 2001 and Yulya's parents hope that the budget means would allow them to buy the necessary medicine in the
future. 21.03.00 480,000 roubles were collected for treatment of Yulya Konyayeva (about $17,000). The Committee of the Ministry of Health of Russia made a decision to exchange this sum into dollars at a discounted rate to pay for Yulya's treatment abroad. As a result, now Yulya's account has $50,000. This sum is enough to send Yulya to be treated in Israel where the best specialists in the world on the Gosche syndrome work. 17.01.00 Igor donated $1,000 for Yulya Konyayeva. 10.01.00 Kostya from Rostov transferred $200 to Yulya's Mom for food. Yulya and her mother are now living home in Rostov until the question of where she will be treated is decided. 25.12.99 Valery transferred 300 rubles for Yulya Konyayeva. 9.12.99 Danila gave 4,000 USD more for treatment of Yulya Konyayeva. 9.11.99 Danila donated on behalf of himself and his friends 2300 USD for Yulia Koniaeva. 8.10.99 Eduarg gave 100 USD for Yulya Konyayeva. 4.10.99 Danila and his friend transferred 1500 USD for Yulya Konyaeva's treatment. 30.09.99 Dilyara from Astrakhan transferred 100 rubles for Yulya Konyayeva. 1.09.99 Danila gave 4000 USD for Yulya Konyayeva. 7.08.99 A young woman from Finland sent 1500 Finnish marks for Yulya Konyayeva. 30.05.99 Denis gave 700 USD for Yulya Konyayeva. 29.05.99 An anonymous benefactor brought 300 USD for Yulya Konyaeva. |
 We are appealing to the whole world for help! Our elder daughter Yulya is 14, for nine years she has been seriously ill. She is now in the Russian Pediatric Clinical Hospital, in the traumatology department. Yulya is diagnosed with Gaucher's disease. This rare disease is characterized by the degeneration of bone tissue, caused by the lack of an enzyme, responsible for the bone system. In 1998 Yulya's condition has rapidly deteriorated, she experiences acute pain which cannot be relieved even with strong drugs. The girl's extremity joints are deformed, she is constantly in cast and confined to her bed. In the spring of 1999, Yulya had undergone two surgeries. The post-operational period is very hard for her; more and more new focuses of the disease appear. All efforts of doctors, surgery and pain-relievers are just palliatives for the treatment, which could save Yulya. She needs replacement therapy with the ceresim enzyme. This therapy costs about 80 thousand US dollars per year. We know that Gaucher's disease is reported to be successfully cured in Israel. We implore everyone to help our people with necessary materials which neither the hospital nor our family have, or to help organize for her the course of medical treatment in Israel. Yulya's greatest wish is to walk, to run, to jump, to be joyous and happy. We do believe in sympathy, understanding and kindness. The Konyayev family, Rostov-na-Donu. |
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