 |
|
|
||||||||
|
|
||||||||
|
01.01.2004 We are sorry to inform you that Dima Kuzmin died in 2003
of an exacerbation of his illness. |
Good health to all of you!I am Lilia Mikhailovna Kuzmina, and I am 29 years old. I have two children: a daughter and a son. My son Dima is seven now, and he has been suffering from mucoviscidosis since he was four months old. It took a long time to determine the diagnosis; the doctors at the regional hospital treated him for chronic pneumonia, and it was only a year ago that we arrived in Moscow, at RCCH. And here we learned that Dima has mucoviscidosis. Dima did not yet know his diagnosis but felt that he was suffering from some terrible disease. During a crisis, he is endlessly coughing, up to vomiting, and cannot even sleep at night because of this cough. Our local doctors cannot help Dima; the local hospital does not even have the necessary antibiotics. When his condition becomes acute, he becomes thin up to emaciation, really terrible to look at. However, when Dima feels better, he is interested in everything and keen on learning everything: what? how? where? why? He is a little day-dreamer; he loves animals and dreams of arranging a real zoo at home. He also likes drawing and listening to book reading. But his right lung is virtually failing him because of this illness, and he cannot breathe well. The only thing that can help him is a special oxygen concentrator. It costs more than 3000 USD. So it happened that I bring up my children alone, my husband is divorced from me and does not provide any help at all. I am working as a janitor at a boarding school and receive a monthly salary of only 800 roubles (ca. 25 USD). Even if we add Dima's pension to it, we will not manage to raise the money sufficient to buy a concentrator. I pray that somebody will feel our pain and help us buy the oxygen concentrator for my son. Lilia Mikhailovna Kuzmina Pskov region, town of Opochka 24.04.2002
|
 | |
|
